Dreaded waiting game

Hi Jacksnan

Go to the thread Being Placed on Hormone Therapy While Surgery or Chemo is 'On Hold'

There is a big discussion going on there.

I am sorry you are in this position.  They are gradually closing off all options.

It is all so brutal.

There is a petition against Government strategy on FB.

D

Can't you at least get your results if team aren't meeting at the moment. Is your cancer ER+ as you'd st least be given tamoxifen or letrizole in thr meantime. Maybe message your breast muse and ask.  Consultants are  all extremely busy now, and recovery rooms are now intensive care. I'm in London,  where all the main hospitals have seen dozen of deaths already and hundreds of people requiring hospital treatment due to thr virus. 

Hi .

You are not alone not that really helps,

I had my surgery 2 weeks and 1 day ago and had my results Thursday and yes my treatment is now being altered. . .but I am still in talks about that (well by talks i mean me calling up firing questions at my breast care nurse bless her ) it's a worrying time for everyone. 

Do you know more about what type you have etc. And have they given you a telephone apt instead?

Hugs at this crazy time!

X 

Hi, I was told grade 2 idc. ER+PR+HER2 borderline. 18mm lump but said may be grade 3 as had to wait 3 weeks for op. 

Plan would be radiotherapy then tablets but need to wait until histology back due to HER2 as borderline for chemo. 

Still not had results back after 3cweeks which is annoying as so many people are getting results after 2 weeks. X

I pay for private medical but have been told useless as they have had to hand over to nhs

.bless you that is a long wait. . . I think 10 days is normal for my hospital. Mine is 23mm er + her2 - and grade 3. ( thought it was 16mm grade 2 so was a bit of a shock when I got results) they said I would have had chemo next. . . But instead it's now just tamoxifen zolodex and radiotherapy.  Don't be afraid to call up and ask about your telephone apt or how your meant to be given your results. . . It's important you know what's what and what's next. 

I do hope it's good news when you do finally get them . . Keeping everything crossed for you. X

They are saying after 3 weeks results not back, they would ring me with any update Monday which will be 4 weeks. 

I am under major centre for BC so possible they are just inundated. 

I totally get staff even in pathology protecting themselves but surely to prevent build up of people of going to doctors with stress, painkillers post op. Depression as can't get results of said op. Re operation due to C spreading they would do something at least. 

Hi,

It's a disgrace that important plans are being cancelled, I can understand the fight against Covid-19 but surely they could prioritise Cancer patients as well.  My Husband had his Bladder Cancer treatment cancelled which was to start today and he's a private patient.  His Consultant told us they are going to be doing telephone Consultation's both for NHS and Private patients, we are in Sheffield.  It still doesn't get him his treatment though.  I'm considering telephoning Consultant again because I'm so worried about the delay, he had a Grade 3 tumour. I wonder if it's worth you telephoning your Unit back and asking for a telephone Consultation and how long your treatment is likely to be delayed? 

A bit of pressure sometimes goes along way to getting what you want, I've had to do it myself during my Cancer journey.

Sending Best Wishes. 

Hi i know how you feel.I have incurable breast cancer first was treated 2 years ago and last year has returned in my lungs.I am doing well on chemo everything shrinking.I am due back for chemo 15.4.and I am dreading from the phone call that it has been cancelled.Everytime the phone rings i jump.I had to have antidepressants prescribed because I cant cope with the stress anymorw.My hubby is going to pick them up from the pharmacy so I hope i "knock myself out"so I dont have to cry every day.

They dont have any idea what these people causing cancelling and delaying treatments.Keep talking about the immunity and risk.What about risk of cancer spreading? Or be in pain from cancer?

I feel if I fall at home for example and break my leg they will just leave me to die.

Its not fair.I hope the tablets will help me.

I am so sorry.

Hugs to you. 

X