So, two days before my annual mammogram I have a call from a very up beat lady to say my (2nd) post cancer mammogram is cancelled, but not to worry as it will be rescheduled post the coronavirus scare..... to say I am feeling uncomfortable and stressed is an understatement, how long will this last and has anyone else experienced a similar situation? I appreciate the staffs concern (as a frontline working Nurse) but having ‘shelved’ this for 11 months, now feel exposed and scared that something may be amiss (I had no palpable lumps- it was picked up on my first mammogram) has anyone else had this situation? I am in NHS Lothian.....
Good Evening or Good Morning to you,
I am sorry to read what has happened to you with regards the cancellation of your mammogram.
This is stressful at the best of times, with many strange emotions going through our minds.
I don't know what to say to ease your mind, but, think of it in maybe the bigger picture....
Would you feel comfortable going to have your mammogram?
Would you feel comfortable willingly walking into the current hospital environment?
I am wondering if the staff are needed elsewhere at the moment. I also wonder if you had any concerns you would have contacted the department before now.
I was due a check-up 3 weeks back, with the travel and the worry I phoned and cancelled/postponed my appointment, as yet nothing booked, plus I would not feel comfortable going anytime soon - I thinking the risk is too great. I do understand your concerns, I really do, but with the risk of what is going around, well, it seriously needs to be avoided.
I don't know what to say, you could ask if they are doing them anywhere else, but, can't help that many operations are currently cancelled - so I really can't see mammograms going ahead.
Personally, I would try to put this out of your mind for a few weeks and then see how the current situation is, keeping in mind 'we are supposed to be staying in - to help us stay alive' - keep thinking this and I am sure waiting a few weeks will seem the most sensible and far safer option.
I saw my consultant last Monday 16th, and she told me that mine would also be postponed from early April until late June/early July. I received a letter from my surgeon about an appointment for my annual check up and (he knows I'd like) to discuss reconstruction in May instead of April. She thought that would be either by phone, or postponed.
I'd like the mammogram, and was going to ask for u/s on the mastectomy site too, as t was close but clear of my chest wall. I'm not taking my letrozole because Moorfields said it could have caused my posterior vitreous detachment and bleed a few weeks ago. She told me to wait until I saw Moorfields again, but they have now cancelled all appointments so I'm off it until summer. It adds 4% at 10 years, so will try another AI, but not until my eye has hopefully recovered. I'm in London, the epicentre in the UK, and a neighbour 2 houses along was diagnosed 10 days ago so thr while house ate in quarantine until next week.
As a nurse in a busy acute hospital, I fully understand the risks involved... it’s such a worrying time all round, OH isn’t very understanding to my concerns which is why I turned to here.... I am very aware that I’m not alone in this, but it’s just so frustrating!!!
Hi ... same here. I was due my second post diagnosis mammogram last Monday but I got a phone call a week today telling me it was postponed. I’m not too worried as I’m still doing self exams and will contact the follow up team if I have any concerns. I’m different from you in that I self referred via GP when I had initial concerns 2 years ago. My mammogram 8 months before and in breast clinic we’re both reported as normal.
best wishes x
“ The only constant thing in life is change “
My 2nd post diagnosis mammogram was due to happen next Thursday I have also had a letter to say it's been postponed and I will be contacted regarding a new appointment. Whilst I understand the reason for this and quite frankly would be worried sick about going to the hospital for my appointment I now find myself back to where I was post op waiting for results. I can't sleep I worry about every ache and pain and feel physically sick that my cancer may have come back. I had no symptoms my cancer being discovered at a routine mammogram. I know that all of this is irrational but I feel like I am back to square one and have no one who understands the stress this is causing. How have others dealt with the worry gremlins at this time
I was diagnosed June 2015. First annual June 2016, second July 2017, third September 2018, fourth October 2019! On the positive I get checked for longer !!!
Seems that as usual it's down to a postcode lottery when it comes to treatment. I too am due my 1st anniversary review and mammogram next Wednesday and was really worried it would be postponed. Sure enough a letter came this week postponing until Aug but at the bottom was a paragraph saying if I wanted it re-instated they would. I phoned and sure enough they said no problem if I wanted to come in I still could.
It's a big deal for me as I've been building up to this review and I'm ok with going to the hospital as I've been a couple of times already for treatment and blood tests during the current situation and they are doing a really good job of keeping us safe. There's a good separation between routine treatments and the virus stuff going on in my local hospital and they are doing a good job of shielding us from the virus.
It should be the same across the country but sadly it appears not to be the case.
Take care and stay safe
XOXO
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