Newly diagnosed...very scared of whats to come

FormerMember
FormerMember
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Hi, after a biopsy I was told yesterday that I have breast cancer. 

It's all a bit of a blur and although I had already convinced myself before it was diagnosed it was still a shock and I just broke down in the meeting room. 

I have so much going through my head I can't sleep or stop crying. 

I need to pull myself together. I've been told the cancer I have is very common (in the ducts) it's 3cms and in "early stages". They couldn't see any thing in the lymph nodes so think it's only in my left breast.

They are waiting for the results of the her2 and that will determine what treatment they start me on. However they have said it will be a combo of chemo and an op. 

The options are to either have the op first and then chemo for approximately 16 weeks or chemo first to shrink the lump and then operate on what's left, if anything. 

If they go the chemo route first then they want to put a marker in my breast so they can locate the lump if it shrinks. 

However they have kind of left it to me to decide. They would prefer the chemo first option but I have never Done this before and don't know which way round is best. 

My hubby thinks the chemo first like the docs want to do however I just want it out. The thought of it being and growing inside me makes me feel sick. But obviously I want to do the right thing. 

In the meantime the hosp are arranging a CT scan, a ECG and I had blood taken yesterday whilst I was there. 

They have said that there aren't enough beds in my hosp for the chemo so I'll have to go to Christies in Manchester but that's a hours drive a way.

They also want me to stop working whilst I'm having chemo, but I can't afford to do that. I'm reading so many terrible things about chemo and it's side effects it's scaring me. I'm lucky I work for a supportive company but I only get 1 week full pay and then go on to statutory. I'm going to cancel all my holiday time and hopefully use some of those days to cover any time off. 

I'm hoping I can work between treatments. 

The doctor seemed positive that it can be treated and cured but I'm only at the beginning of process and I'm not sure how I'm going to cope if on day 1 I'm a sobbing mess! 

Hubby is being super strong and even asked his boss if he can go on shifts to earn more money, but we have debts and I'm worried about paying the min payments if I loose pay. Someone said as long as we pay the secured debt then things like loans and credit cards we can pay a token gesture for a few months. 

It's all the unknown, I'm afraid it's spread and they will find it on the CT scan, im afraid of the side effects of the treatment, im worried about money etc it's only just begun! 

Someone has said I'll have to get rid of my dog due to germs! I can't do that...thats just a straight no!

My mind is the problem at the moment, it's just not stopping. I have so many questions and worries I don't know where to begin. 

Also... As I haven't rambled on enough! Last Aug I suffered from bilateral pulmonary embolism and have been on Warferin and now Apixaban ever since. They don't know if the clots were due to the cancer but at the time I didn't show any cancer symptoms or if the colts were a separate issue but now I'm worried it's affecting my lungs?

Good grief I'm a mess 

  • FormerMember
    FormerMember in reply to moomy

    Hi Moody,

    I’m not getting on with this drain so am sure things will improve when it’s out.

    lm focusing today on old fashioned letter writing, and then a cup of coffee in the garden.

    maybe start a gigsaw , today the blue thoughts can take a hike, one day at a time from now on,

    well that’s the plan anyway.

    thank you for the support.

    stay safe

    mimi121

  • Hi Mimi,

    yes I hated the drains (2, one fairly surface which came out after a few days, the other deep and stayed in place for 15 days) and towards the end managed to trap, trip, and sever! But my team were all accustomed to that! Our care here is all done by the bc team rather than DNs so I just phoned up and went in!

    you’ll get there, it feels slow at present but it will pass, enjoy that coffee!

    Hugs xxx

    Moomy

  • Hi

    my story on my profile if you want to read click on my name.

    Glad you feeling a bit brighter today whilst your having your relaxing day have a browse around the threads .

    There is one that is gardening some lovely pics . You are trying to get herbs lovely can I suggest you plant some summer bulbs . As they grow you will be recovering some of us did this whilst getting chemo then when we finished our spring bulbs were flowering ...lovely sign of new life .

    Margaret x

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • FormerMember
    FormerMember in reply to Northerner

    Hi

    Thank you

    yes maybe some plants as well, my fpgrandaughter wants strawberry’s and tomatoes so busy times ahead.

    stay safe

    mimi121

  • Hi Mimi,

    our local garden centre are dealing with mail order, they sell plants, plug plants and some groceries too, so even in lockdown it’s worth searching out places which deliver!

    Hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Good Morning,

    Ill have a dig around and see what I can find!

    Does anyone have any tips for trying to get comfy wit a drain in? Please.

    stay safe,

    Mimi121

  • If you're wearing a comfy bra, then try to pad round the drain with gauze? 

    That might help....

    Hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Good morning All,

    The drain is still in hasn’t reached 40ml yet for 2 consecutive days so It will be with me for a little while longer I’m afraid.

    I have been using my heart shaped pillow for support but after a week it wasn’t smelling to pleasant it’s in the line as we speak, I found a handy replacement in my neck pillow, good alternative.

    its worth a try,

    Ive been watching Designated Survivor , certainly takes my mind off things for a few hours, been planning my herb garden, and generally relaxing, trying not to think too far in advance one day at a time.

    Stay safe all

    mimi121