Invasive pleomorphic lobular cancer

FormerMember
FormerMember
  • 3 replies
  • 277 subscribers
  • 1118 views

Hi everyone, does anyone else have this variant? It seems to be very rare :-(( 

  • FormerMember
    FormerMember

    Hi 

    Welcome to the club no one wants to join :-/

    Pleo is uncommon but is treatable with a high recovery rate so please don't go thinking the worse.

     posted a message asking about Pleo a couple of weeks ago - This is the link to her discussion if it helps for now.

    I have tagged flowerpotter but they haven't posted anything since so may not check in very often.

    Was yours Pleomorphic LCIS but is now classed as invasive, or is this Invasive Lobular BC with pleomorphic cells as well ?

    Hugs, G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you so much  Dreamthief,

    I have emailed flowerpotter. Mine was described as invasive Pleomorphic Lobular BC from the beginning ( they found the pleomorphic cells in the first biopsy) and I’m stage 2 ( 2 lymph nodes). The little research I’ve been able to find is alarming but out of date and such tiny numbers that it can’t be statistically significant ( thank goodness). My tumour was not huge, and I have high Allred scores, so I’m reasonably optimistic. I can’t find anything anywhere that gives this variant a high recovery rate (!!) but I’m hoping that’s to do with a tendency to late stage diagnosis ( which I'm not) and I’m still looking:-) If you know of any up to date stats on IPLC I’d be really grateful! 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi 

    Unfortunately Pleomorphic is classed as an aggressive type but there other factors to consider. How many lymph nodes were found to contain cancer cells, any vascular invasion etc.

    You may be offered chemo as a systemic (whole body) treatment if they have any concerns there may be stray cells that need wiping out, or even as a standard treatment for this.

    I wouldn't read too much into stats to be honest as they are only averages and they cover everyone from 28 to 88 years and each case is individual. Treatment regimes for cancer are changing for the better every 6 months so all the stats are at least 5 years out of date.

    Hugs, G n' J