Hi all
I've just been told that I will be having this six monthly for 3 years. I feel really apprehensive having read the information sheet. I have one more chemo then surgery, radiotherapy and herceptin. The thought of 3 years of this feels like a step too far. Has anybody had this?
I have had 3 sessions now...and I have been told I will have it for 5 years. It has caused me no issues. Drip for about 15 minutes every 6 months. Bloods taken the day before. I have had no SE. I have been told that it reduces chance of secondaries in your bones which I believe is the most common recurrence.
Good luck with the rest of your treatment.....I’m a year out and, although creaky, doing well....
Yeah I'm on this as well for min . 3yr had one next due in May .As others have said standard now for post menopausal to protect bones .
Need to be on Adcal for Vit D as well no noticeable SE with first one .
margaret x
Me too. I've had 3 so far, and no side effects. Quick trip in & out, and I'm sorted for another 6 months.
I have been interested in this and reading posts about since I was told I have osteoporosis because of letrazole
I have asked about it twice , especially as I heard it reduces chances of bone secondaries, which he said " there is little proof "
I have just asked for a dexa scan , which shows no deterioration , so I raised it again and was told " we only do this if you already have bone secondaries " which seems like shutting the stable door after the horse has bolted , if you see what I mean !!
It is interesting that different centres do different things !
best wishes to all ….me x
Hi
I was told that Bisphosphonate Zol . infusion would be in my plan on first visit to Onco .Info I was given verbally was it was used to protect bones . I had to have bloods done to check Vit D level (A Nice requirement )
Then prescribed Adcal to keep Vit D at good levels .
I'm in North East but I know others who have posted are in London so it's getting used across the country . Think I'd ask for more info .
P.S. quite a bit of info on line ...I looked up N.I.C.E. and zoledronic .
margaret
I've had one Zometa infusion so far...a couple of days after I had a sore neck, shoulders, hips etc...I had been very 'achy' anyway since finishing chemo, it just felt a bit worse. I think this is more likely to happen with the first one.
I am in North east too but didnt know about this till now
X
Hi
Im with North tees and Hartlepool hospital . Onco is based between North tees and James cook Hospital .
I had my first Zol. Infusion along with no 4EC But had been told prior that it was on plan and had bone blood test done prior .
IF you are worried about it then have a chat with Onco or chemo team they'll be happy to chat to you .
As far as I can tell it is used as a preventative and protection for bones for between 3>6 year .
margaretx
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