Side Effects of Herceptin Injections

I have had ridiculously itchy skin on forearm, unable to sleep, runny nose, flushes.   It’s pants!!

Hello sueque1

I am so sorry to hear about the bad side effects of the Herceptin.  I had to say I was dreading it.

I have been ever so lucky though, I asked my oncologist for an HER2 retest because I was borderline with the ICH and then marginal with the FISH test and it came back negative.  Because I was then ER positive and HER2 negative I was able to go for the Oncotype DX test which also confirmed I was HER2 negative and also that my cancer recurrence was low so now I don't need Herceptin and I don't need chemo either.

I am however facing a second surgery because they discovered occult DCIS which didn't show up on the mammogram and so now I am going for further surgery with hopefully partial breast reconstruction.  No doubt this will be followed by radiotherapy

I hope it improves for you

X

Hi had 4 so far had some mild  nausea which seems to be fading .Skin very dry so some itching ,still got runny nose

Also aches and pains but still far easier then chemo. SEs 

margaret x

Hello Margaret

I was initially diagnosed ER positive and then HER2 Positive.  They told me that if I was HER2 positive I would need Herceptin and Chemo.  I was told Herceptin would not work without chemo?  Why were you prescribed Herceptin without chemo?

Best wishes

X

I must be very lucky, I haven’t had any so far. I’ve just had 10/18 injections to date.

Hi

Sorry wasn't clear enough ..I meant SE were easier than the ones I had on chemo . My story on my profile .

Story started last June with mammogram then diagnosis

followed 8 days later by  MX then chemo now Herceptin and Bisphosphonate.

its correct that in this country N.I.C.E. states you don't get Herceptin without chemo .

Sorry bout mix up  keep well

take care 

Margaret x