Hi you’ve found the best place for advice and support. It’s a very friendly community made up of those starting out on their treatment, those with lifetime treatment and others like myself who are a NEDDY (no evidence of disease ).
Have they given you any indication of what to expect from biopsy results? Take someone with you as it’s good to have a second pair of ears. BC is very treatable. If you click on my name you’ll see my history. It’s worth filling in your profile as it saves you repeating information
I’ve been told they are almost certain it is BC. No indication of what results will show. Don’t think they wanted to commit. The consultant did mention various options including shrinking and lumpectomy.
Warm welcome to the club no one expected to join from us as well.
Everyone hated this waiting for results period and it can mess with your head if you let it :-/ Try to do things, go places or chuck yourself into a hobby - Anything that takes your mind off it and kills the waiting time.
You will have a few aches from the biopsies for up to a week so please don't go thinking this has 'upset' the area and causing it to spread.
J was diagnosed May 2012 and is also a NEDdy so please be reassured this is do'able and has a very high recovery rate contrary to what you see on TV and in the media.
Are you waiting for the results before telling family and friends apart from whoever goes with you for the results ?
Hi G n’ J, thank you for your warm welcome. Great news you are NEDdy.
Yes, my biopsy area is sore and around my chest and arm and yes I was worrying it had spread. I have been called for a bone, liver, chest scan next week and bloods. Is this routine? I then go for results on the 20th.
i have told friends and family and had to tell work. I have not told my children (17, 16 and 12). Two are in middle of prelim exams. I’m not sure what to do. Advice welcome.
Hi , it sounds like they've seen something in your nodes (if they are testing some of them), and thr scans you are having are called staging scans, which is routine if in the nodes. One of my sentinel nodes was positive so I had chest and torso CT scans and a nuclear bone scan before treatment continued. They just want to make sure they know as much as possible in order to treat you effectively:)
“Remember to look up at the stars and not down at your feet. Stephen Hawking,
it’s normal to feel sick, panicked etc. As mentioned above the waiting fir treatment plan the worse. I didn’t tell my daughter who was away in Uni until I had biopsy results. I then drove straight to see her (80 mikes away) as I didn’t want to do it over the phone. She was shocked and had a little cry and decided to come home with us that day. We had a holiday booked to New York 5 days later . I was told at my results appointment to go as it would take a couple of weeks for surgery. So we all flew off to NY and it was great to get away and I did enjoy holiday. I was lucky as at my diagnosis in the Wednesday the BC nurse offered to come out to talk to my family on the Friday. By this time I had my questions as did my family.
Your children will be ok after initial shock. It’s ok to cry but when you tell them you will have your treatment plan and this will reassure them xx
Hi , sorry to hear your news but glad you've found d this page as everyone has been so helpfull to me since I was diagnosed in November.
Firstly, I found that this stage (and most people agree) is the worst. The shock of finding out and then the uncertainty of waiting for scans and proper biopsy results so you know exactly what you are dealing with. When you have a plan and treatment starts you feel better because you are doing something to fight back.
My daughters younger (8). We waited till I had all my results and treatment plan before we said anything. It may be that your children will pick up something is wrong so you may need to speak to them earlier. One thing I will say is speak to the school when the time is right because my daughters school have been so helpfull and supportive of her in school and us as a family.
Do keep posting because someone is always around, hope this helps. Xxxxx
I do agree about telling then after you have a treatment plan as waiting for results and plan is really stressful. I was diagnosed last April, when my youngest started her GCSE's a few weeks later and my older daughter had important maths exams. You should tell the school so that they can be supportive and submit an 'extenuating circumstances' form with actual exam papers. It sounds like your team are well organised so at least tou don't have to wait too long for the results.
“Remember to look up at the stars and not down at your feet. Stephen Hawking,
