Hello from hospital

FormerMember
FormerMember
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After gradually feeling more exhausted the last few day. My hubby rang the helpline last night. They advised going to A and E to be on the safe side .. I’m still here :-(

temp was ok when we left home , but was 39.2 when we arrived . have had iv fluids, and Iv antibiotics.. temp still not coming down enough.i feel ok until the paracetamol wear off. Now have various canulas in.. the doctor even wore a mask when he came in this morning which shocked me a bit .. I pray this doesn’t happen every time !

x x

  • FormerMember
    FormerMember

    Hi 

    Maybe you can't trust a man to wrap pressies Gift but they know when to make that call.... Mask so pleased he did.

    Sorry you got stuck with neutropenia with your very first session. They won't let you out until they have this fully under control.

    Normal length of stay is around 2-3 days on anti-bios to reduce the risk of sepsis. J had the same with her 2nd Docetaxel and they delayed her 3rd one by two weeks to recover.

    It is scary how quickly temp can shoot up once you get up to 38C that is why they quote 37.5 before phoning.

    Hope you get to checkout of Hotel NHS soon, hugs, G n' J

  • Hi ,

    so very sorry you’ve got to hang out in Hotel NHS but hope the anti-b’s will do their job swiftly and you’ll be able to escape.

    take care and remember it hopefully won’t be for long.....

    hugs xxx

    Moomy

  • Hi Janey,

    I started chemo a year ago. It’s a tough time of year to have it with all of the bugs around. I had to go into hospital once when I was on the taxol part of FEC-T. 

    My children are in school, so I knew it would be difficult. A couple of evenings when they were particularly full of cold, my husband read to them and tucked them in as I’m asthmatic and very prone to catching these things anyway. I bought some Q Shield hand protection stuff and carried around antibacterial gel. Just before I started chemo, I went to an outpatients appointment and 24 hours later, I started with the norovirus, so since then I’ve tried to avoid touching door handles and used the gel liberally. 

    I wasn’t too worried on the third week, but the week after chemo, I knew my blood counts were low and really tried to avoid illness then.

    Gook luck with the rest of the treatment,

    Sarah.

  • FormerMember
    FormerMember in reply to Sarah1111

    Thank you ..:-)

    on my second anti bs of the day and have had a bloody awful headache that won’t shift . They gave me oromorph .. made a massive difference . 

    Have even managed to eat a bit .. hubby popped home to sort some stuff out them coming back .. leaving again at 7 am to get son ready for college .. trying to keep it normal ish as he got upset again when I had to come in. 

    Have been texting him so he knows how I’m doing 

  • FormerMember
    FormerMember in reply to FormerMember

    Morning.. I got moved to a ward at 1am .. well I have got a big airy room with an en suite. And 

    Definetely feeling a lot better in myself . Doc just been round .. going to be definetely in tonight .. possibility of home late tomorrow or the following day as cultures not back . Doesn’t think they will find cause of infection as apparently they often don’t . He’s starting me on some injections that will build my white cells up but they will cause aching bones . 

    The woman In The next room and her visitor have sang all morning :-)

    x x

  • Aha! 
    that’s the magic G-CSF jabs. Aching bones can be helped by a specific antihistamine (I know, odd but it works) called Claritin (generic name is Loratidine, lots cheaper and ok) 

    Not that many folks in the UK seem to know or use it but it’s really widely used in the USA by haematologists.

    Hugs xxx

    Moomy

  • Ah yes, as Moomy says, Clarityn helps. And good that they have given you oromorph, this has been heaven sent for me on doxy. 

  • FormerMember
    FormerMember in reply to daisyjake

    , Glad you are feeling better. Hope your out of hospital very soon.

    love T x x

  • Dear

    great your getting in better , I forgot to mention those injections in my first reply to you on the other thread you first posted on . I got the injections and was never admitted again. Hopefully the same for you . 

    take care and I hope you get home again soon. 

    Love 

    Ruby Rose Rose 

    • My face looks better when I smile - so smile it is ! 
  • FormerMember
    FormerMember in reply to Ruby Rose

    I’m here until Thursday . My levels are improving and want to keep me in until I’ve done 5 days antibiotics. Then am back on Friday for consultant appt as a follow up to first chemo !! 

    Ward doctor said onco may  adjust my chemo and may give me mor regular injections for white blood cells as may stop it occurring again.  

     Have still got my singing neighbour :-) 

    x x