New here.

Hi

Welcome to the community ..I know you'd rather not be here but it is the right place to be . We're all here for the support that is in abundance . So make sure you come along for a chat no matter what the mood . If ypu want to rant scream even laugh .

Ask any questions someone usually comes along whom has been or is going thru the same .

Have a read of my story on profile very similar story invasive carcinoma  I had masectomy first ,then HER2 pos diagnosis and treatment plan.like you good news first all clear of cancer went with masectomy , lymph nodes clear then the But .....long term treatment .

im am now on day 2 of No 5 EC ( treatment day is day 1)  one more to go . Bisphosphonate started yesterday .. Herceptin will start in new year .

right to your question yes,yes,yes we all feel the same terrified ,angry , can't stop crying,  disbelieve etc etc 

This is the worst time waiting for treatment start you will have to trust us when we say that once treatment started it is not as bad as your imagination is telling you . You will be told all the side effects but it would be very greedy to have them all at once .

We can't promise you wont feel ill at times but just listen to your body and rest when needed . Your team are there to help if you do feel that the meds you got are not woeprking and you are feeling that you are not coping let them know your meds can be changed .

As I said I had chemo yesterday so took anti sick med for nausea half hour before getting up .Then was able to eat cooked breakfast but that's me we all differ . Important to realise no competition in how we feel and react .

I did the same as you and took control of hair loss ,the pixie cut was that much of a success my wig is same as cut . You can if you wish opt for cold cap it can save hair . My choice not to but it was cycle 2/3 before it started to shed .  I have been left with very whispy  comb over that still grows hairdresser tidies it up when she cuts hubbys . I think next time I'll get her to do a no 1 shave to the hairline to give it shape .

I wear hats mainly ..plain beanies with various headbands to match clothing. Baldy in house , wig when I don't want to be seen as centre of attention e.g. Funeral . All a matter of choice .

main thing is to continue what you are doing ..one step at a time  ,control what you can , if treatment makes you feel  remember it means it's doing its job and kicking cancer in the A**e. 

You don't say when treatment starts ..you may not know yet. Try to keep busy in the meantime to distract from the waiting .My cupboards were so organised it was ridiculous. Then when I got dates we went away for few days before it started .

Sorry for long message steroid brain 

margaret x

Hello, , and another welcome!

to add to what Margaret (Northerner) has said; if you feel in a total panic in the wee small hours then do read/post in the busy and long ‘AWAKE....’ thread. It’s not all doom and gloom, it has pictures (which being on my phone plus an ignoramus, I can’t do!) it has humour as well as great support. Be aware though, that a screen may also keep you wakeful! 

sending a big hug xxx

Welcome

moomy and Northerner both speak wise words! What I would add to the mix is that we’re all different so what happens to one might not happen to the other. If you get a side effect that you struggle with then tell your team. I struggled with terrible nausea but spoke to my team and got my anti sickness meds changed. The difference was huge and I could eat again. Don’t suffer too long before you let them know. Good luck and we are all here to help Di xx

Hi mine has been said as small, it's non palpable, consultant advised about 1cm. Worried cuz that's not a definite size.  Surely he would know from looking at my scans etc if it was big, it didn't show on ultrasound. Having masectomy with reconstruction, lymph node scan clear xx