Don’t know what to do :-(

Morning

So sorry to read this - must be terribly upsetting for everyone.

Have you thought about contacting SCOPE or CerebralPalsyOrg UK to see if they can offer some advice. Most phone lines are open early. As you may need someone with CB experience to talk it through with.

You could ring the Macmillan Support Line to on 0800 808 0000 and speak to one of the nurses.

Hope you can get him the help he needs

G n' J

Going to make some calls today and college will keep me up to date with how he is . The main problem will be that he needs an interpreter which can take take time to arrange .. and also if he doesn’t want to get involved he will just look away and blank it out.

College have spoken to our GP who is going to ring later . Also contacted a charity who are going to get involved and use college staff as interpreters ( don’t know when though). 

Its awful being so helpless. X x

Hi

At least some progress is being made, hopefully some help via the charity can be put into place fairly quickly and the GP doesn't leave you hanging for too long.

Assume it is good news from the college as you haven't mentioned them phoning you about any behaviour issues then ?

Please don't beat yourself up about feeling helpless, it's not as if you asked for any of this - he is probably having problems understanding/accepting the changes and worrying for his mum

Hugs, G n' J

Everyone has rang back and trying to get things in place but as it is a difficult situation it’s all going to take time. 

He had a breakdown at college this morning but they have managed to get him into a cookery lesson for a bit. The charity are working with the college and the GP is contacting the deaf mental health team . He wouldn’t get in the taxi at college yesterday as he was sure I wasn’t going to be here!!( that’s not in my plan!) just dreading him coming in tonight as don’t know what’s going to happen . X x

Hi

So sorry to hear about this. All this is hard enough without the  feelings you must be having regarding your son. 
I hope things improve very soon. 

This is a time when you should be thinking about yourself and as mums we find that difficult enough but for you this must be exceptionally difficult. 
Please let us know how you are getting on x x

Hi

My heart goes out to you , once you manage to get an interpreter could you maybe try a mainstream Maggies type of setting , where families with or without other difficulties attend ? I’ve no experience in your situation but maybe seeing other families being supported and being told that there loved one , although battling cancer is going no where soon, and that life will be good again ( hopefully) . 
He may believe the people at Maggies and take in what they say and explain things in small doses . 

don’t know if this helps . Life can be so cruel . 

thinking of you 

love 

Ruby Rose  

OMG I don’t know what the various people have done today but he has come in and gave me a hug.. he was texting me asking for MaccyDs and Fifa points on his way back!! . Still going ahead with everything that has been arranged for next week x 

it has made me and my husband feel 1 million times better.. we were at a complete loss . 

I am so pleased for you. We have enough upset from the actual treatment  without additional worries like the ones you had this morning.

Hopefully things will continue to make more sense for your son now.

Love Karen

Hiya

So pleased the fears you had for your sons homecoming were unfounded.

Lovely piece of news to read....

Hugs, G n' J