I have just joined the Macmillan community and very interested to read other people’s experiences with tamoxifen. I started it in June after 4 EC90 chemos and 15 radiotherapy sessions, following a lumpectomy in Feb. The tamoxifen seems to have put me into instant menopause with horrible night sweats and hot flushes throughout the day which just feel like someone’s pressing a booster heater button with no warning, all too often! I also feel more tired sometimes than I think I did through earlier treatment, plus I was interested to read other people having joint pain....my knees and hips can feel like an old lady’s some days. I’m doing stretching, weekly yoga and walking lots but feeling old! I’m 53. I’ve also just developed lymphodema in my operated breast. It’s all so annoying as I thought I’d got through the op, chemo and radiotherapy so well, but 4 months after that finished I suddenly feel done in. I’m seeing a specialist physio for lymphatic massage next week. Can anyone reassure me feeling like this 4 months after treatment finished (apart from the ongoing tamoxifen) is normal? A phase that will pass...soon??
