Just returned from my results visit and been told that my results are positive. Feel very numb and completely overwhelmed. On my own so it’s hard to take in. I feel like i am drowning
Hi so sorry that you have found yourself here but hopefully we can offer you the support you need.
First of all sending you virtual hugs, there's plenty of those around here. Ask away with your questions, you will have loads and we've all been where you are now so someone will have answers that will help.
From experience, you are in the worst place right now, from here on in it will get better and you need to believe that this is beatable, no matter how overwhelmed you feel now. None of us are superhuman but we've all managed and overcome this nasty disease and you will too.
XOXO
Hi
Ok Breathe ...... we're all here for you to listen and answer any questions . It's a place to shout and rant if you wish we'll listen .
The first thing you will learn is you are stronger than you think and you can and will beat this .
This is the worst time the waiting in between appointments until you get the knowledge you need to fight this . It's hard to believe but you will feel better when you know what your treatment plan is . Then you can take control .
my story is on profile fill yours in as you go along so people learn about your story it helps when we are answering you .
browse thru the threads look at Awake if you can't sleep tonight someone is usually there thru the night
keep posting
Take care
margaret x
Thank you so much. I find your words comforting. It’s nighttime that’s the worse when dark thoughts invade your head. They have said I need a CT scan to check if it has spread. Is this normal? That’s the thing that scares me the most. I think I could be strong to deal with just the breast thing but that terrifies me. Do they do CT with everyone?
Hi
So sorry to see you joining us here - but you have found a great place to be at a tough time.
Eeek, were you at the meeting on your own then ?
The way you are feeling is very normal, everyone gets this brain overload when they get diagnosed :-/ You will have so many worries and what if moments, so do post about these to get yourself some reassurence and support.
Have you been told of any kind of treatment plan yet, or is that the next move ?
btw - quite a few get given a CT scan; although it can pick up cancer spread it is mostly to gather information about your body organs so they don't get any surprises during any surgery or chemo if you need to go down that road.
Hugs, G n' J
Don't know about CT but I'm sure someone will have an answer for you . It might depend on hospital . I know a few people on here have mentioned having them
I understand it being scary but at least they are being thorough
margaret x
Louie
Its pants you're here but you will benefit from hearing others stories, getting top tips, maybe a laugh but also safe in the knowledge that lots of others will have gone through or will be going through what you will...and they will be getting through it or will have got through it which is what you will be doing.
I certainly had a CT scan, multiple biopsies, ultrasound & MRIs so would not be at all surprised if you're having a CT scan, its important that you and your cancer team know what the cancer is up to so they can determine the correct treatment. I would expect other tests too , as I had. From recollection the CT scan was ok, not as noisy as the MRI though if you have contrast die (which I did and would have thought you will as helps things to show up) it made me feel like I'd wet myself - a very strange feeling indeed, I had been warned but still came as a surprise.
Good luck with the rest of your diagnosis.
Sam X
Thank you. Yes I went on my own, mistake really. Trying to be strong and all that. I was really worried when they mentioned the CT scan as that made me think that they thought it had spread. They said it’s precautionary. I should have asked if they do it with everyone. They couldn’t say about treatment as they haven’t got receptor tests back, whatever that means. I just heard voices through fog as I felt like I was going to pass out. It’s a lot to process.
Thank you for all your kind words, really does mean a lot. It’s hard on your own.
Thank you. I should have asked. It was all a fog really
Hi Louie,
i was diagnosed a month ago and like you I had to have a CT scan, I’ve also had several mammograms an MRI scan and several biopsies. My breast care nurse said they want to know everything before they start treatment! As my other half said to me when I was a bit down, better to know everything now than do some treatment now then find something later on and have to do the treatment again. That made sense to me!
I’ve found this forum to be very helpful and the people here very friendly and understanding, after all they have all been where we are at some point!
x
Hi and a warm welcome, hopefully you will feel less alone on here as there are lots of us! Each of us with a different story but able to help and support each other. Like many have already said, I wouldn't read too much into the CT scan as different hospitals seem to have different policies and procedures. And really the more information the team have about you the more tailored the treatment can be. You've described the feelings post initial diagnosis so well - I'm a year on from that shocker but 'fog' is an accurate description of how I felt. Definitely better once more results are in and you get an idea of what your treatment plan might look like.
Am guessing the 'receptor' results are re whether your particular cancer has hormone receptors and/or HER2 receptors as these influence treatments. It's really not worth speculating until you have these results and would certainly advise NOT googling as lots of the stuff out there is old and inaccurate! But as soon as you have them, post here and people will soon respond with similar diagnoses. There are so many of us here with such different cases, no one ever seems to be alone in their type/stage of cancer or treatments. And bear in mind that many people have been on and off the site for years, demonstrating that breast cancer nowadays is very treatable.
Wishing you well and sending hugs, keep posting and as someone pointed out, the 'Awake' thread has people around through the night. Do write down questions as you think of them, to take to the next appointment. And ask ask ask here, no questions silly. Love and hugs, HFxx
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