Hi,
This is especially for people pre-chemo and having chemo.
I started in April four cycles of EC every three weeks then four cycles if Docataxel. I still have my hair, I managed to bear the cold cap I did have side effects like most people and even now still feel wiery and head hazy but this will go in a couple of weeks.
what I have learnt from this as I was at home alone and drove everytime for my treatment even though I have a wonderful supportive family, dont spend time thinking about the side effects and the what if’s just deal with things on a daily basis or as it happens. Look after yourself ,keep busy. I wrote a daily to do list and if It didnt get done I added to the next day. I am so organised now for christmas just got radiotherapy to get through and then thats it, will then start to get my life back to as much normality as is possible and even think about going back to work.
Everyone is different and cope in different ways but I just want to re-itterate there is light at the end of the tunnel as I started this journey in January very very frightened. One major operation and chemo overwith and I am stronger and so relieved.
x
Hi Bramble22,
You will get through it! One day at a time thats all you need to aim for. I thought at my initial discussion about chemo that there was no way I would get through it all ever. I really was scared and felt very alone,my macmillan nurse was fantastic too.
Thinking of you ! be positive if I can do it You certainly can.
x
Thank you for your post...I'm on my own too and had just moved to a new area before I was diagnosed. I had imagined, in my usual stubborn and independent way that I would be driving to all my appointments. I had a faint out my back garden after 2nd FEC and it completely changed the 'chemo journey' I've been on. I developed severe anxiety....fear of leaving the house on my own or driving in case it happened again. I'm on medication now to try and control the anxiety and a friend drives me to most of my appointments (now on weekly Paclitaxel, 4 to go). I have managed to drive to 2 blood appointments in the last few weeks...while talking to someone on the phone...so that's an improvement...but going out for coffee with a friend the other day...for 2 hours...left me shaky and lightheaded.
I can't wait for these feelings to pass and get back to my usual self, going for drives, towing my caravan...even going to a shop on my own would be a good start!
Hi feemcg,
I feel for you being on your own. It makes this thing extra hard. I've lost confidence like you and have not been out on my own for months. I'm just worried I'm going to get dizzy and collapse. I go out with my partner and hold onto him all the time. Just keep looking ahead to when this treatment is finished and you'll be out and about no problem. I'm looking forward just going to Asda by myself! I have a lot of pain in left arm after lymph node removal so carrying shopping to the car is also a problem. I haven't driven the car yet in case I get dizzy, so it's either my partner does it or I order online. We'll get back to normal soon, whatever that is. Keep your chin up, you sound like an amazing independent and strong person.
Babs x
Hi
If getting the supermarket shopping to your car is a worry - Just ask at the checkout and they will get a colleague to do this for you. Don't be all coy, they are only to willing to help. When home if the bags are a bit heavy transfer to extra bags to lighten them.
G n' J
Hi Feemcg,
So sorry to hear your having a rough time. Be strong keep going and definitley keep talking and sharing your feelings either here online or with your friends. Your not alone! You will get to the end and get back to your usual self!
Take care
Streets
Hi Dreamthief, thanks, that makes sense.
Babs x
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