Post op fears

FormerMember
FormerMember
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i was diagnosed with invasive lobular cancer to my left breast at the end of July. I had no symptoms and it was picked up on a routine mammogram. As it was invasive they did a follow up MRI scan which did not give any indication that it was in the lymph nodes. This was fantastic news after the shock of the diagnosis. I was adamant that I wanted a mastectomy as my best friend had died from breast cancer when we were in our 30s following a lumpectomy. It took 4 doctors to finally convince me that I could have a wide local incision with a therapeutic mammoplasty to help take away my fears of the cancer returning.

i am now 1 week post op and feel glad that I listened to the surgeon who appears to have done a lovely job but on my discharge paperwork from the ward, it says that they removed hot and blue lymph nodes. I know the blue will be from the radio active dye and I have tried to research hot lymph nodes but it is all very technical. I go back on Tuesday to get my overall results and to see if I need chemo or not. I am very very anxious about this. I know I have to have radiotherapy but does a hot lymph node mean that it could have spread?

  • The hot is the radioactive part, the blue is the dye they inject, sometimes during the surgery.  The number of nodes and their sizes are also usually given, and they are the sentinel nodes based on where your cancer was.

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • FormerMember
    FormerMember in reply to Londonmumof2

    Does this mean that the cancer has likely spread to the lymph nodes?

  • No, the markers used (radioactive and coloured) have done their job and identify the nodes that the cancer is most likely to have spread to (usually the first and nearest. It means nothing. If you're having a sentinel scan it means that nothing showed in the ultrasound scan. Only about 20% of people having sentinel scans then find something in the nodes post-op, and usually minor. x

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Hi @AMB1, as has confirmed - here's a link to breast cancer care which goes into more detail for you.

    Try and relax (I know - easy to say!) before your SNB results as the MRI should give you more reassurance that everything should be ok I was diagnosed over 2 years ago and didn't have an MRI. Not sure if it's new or if it's just certain hospitals that do these as an 'extra'.

    The type of cancer you have ER+ |Oestrogen positive (generally no chemo - depending on how ER+ you are), so they may be running extra tests to see how positive you are if they are saying that you might not need chemo. It is out of 8.  There is also a new test which wasn't around when I was diagnosed called the Oncotype DX test which is more accurate the previous methods, but that takes longer to get back.

    Best wishes,

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  • FormerMember
    FormerMember in reply to Londonmumof2

    Morning

    The dye shows up the nodes that are first in line. The lymph nodes are a bit random in their position so that's why the dye is used. In the olden days they just took them all which can lead to problems that might be unnecessary. They did that to me last time. 

    I've had lumpectomy, clear sentinel nodes, I'm on now with radiotherapy. Listen to the nursed Tec they know what they are doing

  • Just to clarify, you may have an Oncotyle DX test or similar. Our hospital trust have in-house Prosigna testing, which is clearer in risk level than Oncotype DX and being used in the Optima trial. The NHS only ever do this profiling on women who are node-negative.

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,