Just reaching out (been a while)

FormerMember
FormerMember
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hi everyone, i’m lying in bed with sleeping hubby & puppy and my head is whirring, I don’t sleep very much anymore but I think that just makes tiredness/fatigue worse FlushedGrimacing! Been signed off by dentist so I can go ahead with Bone infusion so thats good I guess although I’m nervous...anyone else on Zoledronic Acid?!.... waiting for scan date (final 1 for this year)....Zzzen getting alot of leg ache and cramps (maybe thats the drugs?!).... don’t want to be a drama queen but really feeling a bit like stop the world I want to get off and catch my breath.... i’m just iZzzo year 5 and I’m so grateful to still be here and doing as well as I am but when I try to talk to friends about how i’m feeling I get ‘you’ll out live us’ , ‘we could all die tomorrow who said yourZzzoing first’ , I guess I’m just feeling tired Zzz, bit lonely Pensive, bit over whelmed. 

I feel like I shouldnt feel like this there are alot worse off and guilty I do feel like this but now its out there...does anyone else get days or nights like this?!

  • FormerMember
    FormerMember

    Hello

    I've never had any of the things you mentioned, but I'm awake having one of those nights too. I've just retired. I'm 62 and wondering what my life is going to be like. This is the second time I've had BC, groundhogday in every respect. This has been one of the worst night.

    You might be lonely, this isolates us in a way many people don't understand but you are not alone. Always someone here.

    Can I suggest you contact Macmillan, Robert Ogden or the Haven. All charities that can provide counselling and support. Last time I went to the Haven and they were brilliant. I actually went five years after first BC because I had a melt down. I was " cured" so why wasn't I back to normal?

    Turn over,give them both a cuddle, breath them in and have a nap.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi bartki......sorry you can’t asleep, night are worst for worry aren’t they ? If you are getting cramp try magnesium ......best wishes

  • Hi Barki.  I have been having Zoledronic treatment I have the 4 th one in November please don’t worry about it, they will put a canular in your vein on the back of your hand it only takes about 15 minutes, after the first treatment I did have aching joints but only for a day haven’t had any other symptoms so far only two to go now for me going to the dentist was worse because at the beginning I had to have a tooth removed, it is important to have dental check 6 weeks before treatment.Good Luck Sending hugs.x

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for your reply and wise words, means ALOT

  • FormerMember
    FormerMember in reply to FormerMember

    Yep it sucks especially when alarm goes off for work..ugh

    thanks I’ll defo try that.

  • FormerMember
    FormerMember in reply to Boobylou

    Hi, thanks for your reply, I feel your pain on my dental check up it resulted in having 2 wisdom teeth and 2 cysts removed, struggled recovering but 5 lots of antibiotics & 3 months later all signed off and had 1st infusion Thurs, your right it was OK but felt like flu next day, bounced back quickly enough sat/sun...onwards and upwards waiting on scan to see where i’m at.