I dare my oncologist today as I'm meant to have chemo tomorrow, but don't feel well enough. I told her that I've had blurry vision for nearly a week (don't get your eyes tested for a whole after chemo), still have a tightness in my chest(sent for ecg which came back possibly abnormal with possibly widened left aorta), tiredness to the point of falling a lot (chemo makes you tired), die mouth (I have a big mouth ulcer after having a glass of prosecco last weekend on our anniversary, headaches, upset tummy and feel sick. She checked my blogs and they weren't all back but 2 of the ones that were were in red, meaning low (but ok anyway to go ahead)
I really don't feel well enough to have my final round of EC tomorrow, but feel bad saying no on the day. I suppose I wondered if any of you have gone into a chemo session feeling rough, and it being ok?
I was very poorly after my 5th chemo and my oncologist said no more !
Does someone take you to chemo ? Because with blurred vision you can’t drive . Chemo effected my eyesight and I had my eyes tested 2 months after my last chemo and 3 monthly since at no cost - I’m in Scotland . Still had to pay for new glasses each time though !!! Eyesight settled now but that’s a year !
If it’s not too far and someone is taking you , why not go in anyway and speak to the nurses and oncologist again . Ask them if by missing your last chemo could it effect the outcome of your treatment ? Get all the facts while talking with the nurses. Then make up your mind . Don’t be bullied but I’m sure they won’t . Make sure you have someone with you .
I wish you well , it’s not nice having all the worry and feeling poorly . It’s your body and your life - you do what you think is best. Don’t worry about saying no on the day as it could be the other way round - them saying no to you on the day . I
Try and sleep
love
Ruby Rose
Go Ruby Rose I will have it, but just want to delay it for a week until I recovery more. It's nteresting what you say about the eyes though, and reassuring that your eyesight returned to normal over time. I'll make my mind up in thr morning, but don't feel 'right' tonight. I should have told her that I wanted to delay it rather than tell her all my ailments, and I'm really annoyed about that!
The way I felt over the weekend and yesterday morning with the diarrhoea I was thinking the same myself...I was dizzy and shaky again and felt so cold. When the nurse phoned from the chemo unit to do my toxicities she said we should maybe delay it for a few days and went to speak to the doc. If I'd had any more yesterday afternoon or evening I wasn't to go in this morning...but I didn't...and my bloods must be ok as they never phoned back...so I'm sitting here eating my Frosties and need to hurry up and get ready. This time last week I was quite upbeat, had my makeup on etc...as the Pax side effects hadn't been too bad....the nurses commented on how good I was looking......I don't think they'll be saying that today! So it's a long day today with all 3 drugs.
It's a weird feeling of not wanting to go and wanting it over and done with...I hope you feel better whatever you decide x
Hi I went in with my chemo bag, but some ro ther sister when I got there, telling her how the cycle had been, and how id been awake since just after 4am feeling terrible today. They checked my vitals which of course were fine, but she kindly let me postpone it until next Monday after my Macmillan nurse had a chat with me and my oncologist was emailed.
How are you after today's chemo? Fingers crossed that it isn't too bad. My daughter sent lots of pictures of the pier walk on Sunday and I must say I'd not like the return part in a wind!
Oh I've got a few pics of that harbour....some with the waves crashing fight over! Iv'e put a wee chemo story on the chemo thread. Hope having a delay helps you feel better prepped and ready for next week x
Thank you. I'm a little better today already, and planning a 2-day trip to Edinburgh at the weekend to see my 99-year old uncle as I don't know when I'll have a break again and haven't seen him in 10 weeks. My daughter coming down from St Andrews as well for the weekend to see her great uncle, go shopping and a nice meal out, as well as watch her new flatmate in St Andrews who is from Edinburgh play rugby in the Varsity match at Murrayfield on the St Andrews team against......Edinburgh!
i live about About an hour and a half north of St Andrews . I really like St Andrews . Edinburgh great too . When my younger son worked in London we enjoyed that too.
Great that you are feeling better , one thing this BC journey teaches us - do today as tomorrow is promised to no one .
So have a lovely time with your family , just remember to avoid crowds in close confines .
Take care
love
Ruby Rose
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