Any advice welcomed

FormerMember
FormerMember
  • 12 replies
  • 273 subscribers
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Hi All,

Hope you don't mind me posting here but I am looking for advice. My mum has been diagnosed with a grade 3, 35 mm breast cancer tumour, we don't know about spread yet. We are going back to see the surgeon this week to find out next steps but they have already indicated she will likely need chemo before surgery so the journey is about to begin.

What I wanted to ask to anyone who has gone through this is there anything you can share in terms of advice that you wish you'd known about or done before starting treatment. I'm trying to focus on the practical things I can do to help her feel the best she can before the process starts - random things like she's really worried about losing her eyebrows so have found someone who will microblade them for her. I know that probably doesn't seem important in the scheme of things but I can't take what is about to happen away but I can try and do whatever I can to make her feel confident and strong in herself.

Any advice, ideas or 'wish I had knowns' would be massively appreciated 

x

  • hi

    wow

    I just read the other post, that's a lot to take in ...

    we're here for you

    I do have lots of things I wish I'd known, in fact I was saying earlier that I wasn't warned about the diarrhoea and constipation. 

    I also posted a thread about eyebrows just last night, a small rave about eyebrow products. it's probably moved to page two of the posts now. 

    hugs to you and your family, you can do this.

    Carolyn

    xxxx

     real life success stories to remind you that people do survive breast cancer

    https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457

    Dr Peter Harvey

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

     

  • hi

    wow

    I just read the other post, that's a lot to take in ...

    we're here for you

    I do have lots of things I wish I'd known, in fact I was saying earlier that I wasn't warned about the diarrhoea and constipation. 

    I also posted a thread about eyebrows just last night, a small rave about eyebrow products. it's probably moved to page two of the posts now. 

    hugs to you and your family, you can do this.

    Carolyn

    xxxx

     real life success stories to remind you that people do survive breast cancer

    https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457

    Dr Peter Harvey

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

     

  • FormerMember
    FormerMember

    Hi 

    What a wonderful daughter you are and so very thoughtful. Yes I had my eyebrows micro bladed and was very pleased I did. One of my friends made me a pack of useful things, like lip salve, hand cream, soft fruity sweets, chocolate, little packs of hand wipes, nice tissues, chewing gum etc.     You can often get some samples from makeup counters if you ask ( Clarins are good).     I also wish someone had told me the venflons they use for chemo are small and if hair loss is expected it happens about 14 days after first chemo.  I will leave it there as I’m sure others will have ideas too.                 Having your support will be amazing, but be kind to yourself too xx

  • FormerMember
    FormerMember in reply to Carolyn28

    Thank you so much Carolyn x

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you so much Cate22 xx

  • Hello Popsy2019

    Wow.

    You are a great daughter to be showing such concern and practical help. I haven't had chemo, only surgery, but.... .list all your questions to the oncology team  , check up if at a later stage you don't get an expected appointment. I left it far too long before questioning , through my son, why I hadn't  received an appointment for radiotherapy, Big panic from the breast care team because it was human error (not from them) and I was 11 weeks late for for starting treatment. So push hard if you have to. Try to make the visits to a  hospital appointment part of a better day. My grand daughter and her mom took me to a garden centre for a cream tea and a bit of shopping after my first MRI and it helped so much to make life seem more normal

      Funnily enough I was thinking yesterday that we should have a permanent site for THINGS i WISH i HAD KNOWN,   Maybe the great team running this site could consider it as the problem is that posts get moved on and the information moves away also.

    I thought of it because I read a post from someone who wanted help with radiotherapy, and I had posted months earlier about water gel to protect the skin, but it had moved on with all the hundreds of posts we do.

    God bless and good luck.

  • FormerMember
    FormerMember in reply to calador

    Excellent idea to have a site "THINGS I WISH I HAD KNOWN", I certainly could have done with knowing so much before my treatment started, only found this site after treatment. 

  • FormerMember
    FormerMember in reply to calador

    Thank you Calador x

  • FormerMember
    FormerMember in reply to FormerMember

    Morning London-based

    Where's my water feature this morning.?

    Just had your favourite fireman in my bedroom this morning. Granddaughter very enthusiastic!

    Good to know she takes after me in some ways.

  • FormerMember
    FormerMember in reply to FormerMember

    Whoops,that should be on the Awake thread, for LondonLass.