Day 5 EC palpitations?

  • 15 replies
  • 277 subscribers
  • 4152 views

On day 5 of second round,  and I've had palpitations on and off most of today.  Also horrible taste,  pain and swelling in surgery and feeling dizzy. I expected this one to be worse with bloods down,  but I've spent today in bed or up amid down the stairs to to the loo or for food abbs drink! I had a domperidone tablet at breakfast,  but didn't take any more today, si it isn't that... ho hum..:/

  • hi

    how are you feeling now ?

    Carolyn

    xx

     real life success stories to remind you that people do survive breast cancer

    https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457

    Dr Peter Harvey

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

     

  • I rang in and off to A&E to be checked. I'll get fast tracked though, so hopefully home tonight x

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • better to be safe with chemo, let us know how you get on 

    hugs

    Carolyn

    xxxx

     real life success stories to remind you that people do survive breast cancer

    https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457

    Dr Peter Harvey

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

     

  • FormerMember
    FormerMember in reply to Londonmumof2

    Hope you're ok Londonmumof2, don't take any chances.

    HeartsHeartsHearts

    ️Babs

  • Hope you got on OK at the hospital Londonmum, and that they were able to give you something to help with those horrible symptoms.   I hope you will have a better day today.  Take care,

    Blackcat xx

  • What a nightmare! Our A&E is hit and miss at ther best of times,  and i suspect that the time of year and staff shortages exacerbate the situation,  but I really should have left shortly after arriving.

    I waited 20 minutes wait for triage.  I then sat in a corridor in Mains for two hours,  during which time (after about an hour) I had an ECG and blood oxygen taken,  and no blood pressure taken after I refused to have it  taken from my surgery arm (mastectomy and level 3 clearance) which he asked to use twice (!) or my PICC line arm. Last time they took from my PICC line wrist but he didn't do that. 

    I tried to go to ther toilet but one was blocked to the top of the sink and filthy. The other was locked until much later so I went to the one in x-ray along thr corridor. People were coughing (I'm round 2 day 5) and the place was dirty.  At midnight or so I was taken by a junior doctor to a cubicle which wasn't cleaned from before, and had no sheet on the bed.  She asked where the linen was and covered the trolley bed loosely (why were the cubicles not cleaned?),  but the area was littered from ther previous people.  She then started to have me fill out an admissions booklet with her,  and I genuinely believe it was her first time in A&E. I asked why we were filling out the form as i only wanted a blood test and she put the form away.  She took bloods and I waited almost 2 hours (normally under an hour for results) so I asked one of the nurses and she beeped her. A few minutes later she appeared and said the bloods were fine though talked about electrolytes and red blood count and never mentioned white blood counts, or clotting which was raised the week before. She'd been looking up my chemo,  and suggested I talk to my doctor about further investigations and possibly stopping if it's affecting me badly (!!!) and started to tell me how it could affect my hair,  nails and mouth etc too...... I must have more hair left than I thought as I didn't have a scarf or wig on.

    All that time there was loud coughing nearby from a man and I was worried if he had TB or something else for me to catch.  I arrived home at 3am and now feel unwell today with a sore throat:/

    I think that I'll talk to my doctor about the palpitations as I'm not risking my heart, and the experience has made me question the dose at least.... and whether to bother phoning in with red flags. 

    Feeling meh today.... and still have the palpitations... but at least I'm home. 

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Hi Londonmum,

    So sorry to hear about your nightmarish experience in A&E - the lack of cleanliness and of understanding of how to treat people on chemo sounds horrendous.   We have enough to worry about at the moment without having to think about catching extra germs.  Hopefully you will be able to speak to your oncology unit tomorrow (I guess, if it’s like mine, it’s not fully operational at the weekends) and get some proper evaluation and treatment.   In the meantime, it is great to know that you are home.  I hope that you are having as good a day as possible, and that the side effects will pass very soon.

    Take care, and let us know how things go.

    Blackcat xx

  • Thanks Blackcat, 

    I've stil got the palpitations and feel really unwell,  but have spent most of today in bed so not as tired.  It's all made me a bit miserable and cranky so my normally demanding daughters are keeping their distance until lI'm less miserably and moany!

    I hope that everyone else is having a better day than me:)

    Xxx

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • FormerMember
    FormerMember in reply to Londonmumof2

    Oh Londonmum, sorry I missed this post till now....as you know over the last few weeks I've been the expert on dizziness, shakes and palpitations....although I couldn't fault my hospital admissions at all. I'm still unsure if my palpitations are due to my low blood counts or anxiety  but it's a horrible feeling and makes me feel more panicky. I've had about 8 ECG's in the last 4 weeks, including 24 hour telemetry and not one of them has picked up what I'm feeling...fluttering up and down the middle of my chest, pulsing lump in my throat etc. It's settled a good bit now since I've been feeling generally better the last couple of days.

    I can't give any advice on how to make it go away other than rest up and try not to worry about it (don't worry is rubbish advice, sorry)...as you know I worked myself into a frenzy and now Diazepam is my friend!..but I had to be reassured that they couldn't find anything wrong with my heart on ECG. Really hope it starts to subside for you x

  • FormerMember
    FormerMember in reply to FormerMember

    Londonmum ,what a nightmare ,hope you can see someone early Monday , be proactive 

    the hospital sounds ghastly, have you thought about writing to the oncologist ? You were put at risk , and there is no reason for a hospital to have dirty toilets .....

    hope you feel better soon and get some proper care ....xx