Screening, tamoxifen, double mastectomy... confused

FormerMember
FormerMember
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Hi,

I hope I’m posting this in the right group... I think so, I looked at some of the other discussion thread and think it sits best here... I’ve spent a week or so reading through different groups and feel very lucky, which might seem odd but... what can I say I’m a glass half full kinda girl.

So I’ve been going through the genetic history stuff and have been advised that I’m “increased risk” I’ve got several option but after reading all the official stuff don’t feel like I’ve got all the answers I’m looking for and I hope that some of you lovely folk can put a more personal side to my questions...

My options are;

Regular screening... 12monthly check ups. My Weight is ok and BMI good.. but I drink too much...don’t we all!!! Blush

for me I’m not sure how I’d carry on just “waiting” I think I’d feel constantly on edge... does anybody follow this option and how do you deal with it??   

Tamoxifen..

this one really throws me, I understand the logic, but the side effects seem like they would make family life really hard, I have 2 small people (1&3 years) and I don’t want to effect their childhood as “mummy being sick” I know that it’s a good option and I’m grateful that it is option but in my position is it a workable option?

You take it for 5 years and then it works for a further 10, so I’d be 55(ish) can you take it again? Because by that age I’d still be an increased risk... am I taking it for the rest of my life?? 5years at a time??

Surgery... double mastectomy...

wow... how do you even get your head round this... how long does recovery take? If you select reconstruction, I’ve read that implants can feel cold, and that you don’t have as much feeling in them... what’s that like?

I imagine the relief when it’s done is huge, but does anyone regret them?

If any lovely folk are still reading this and haven’t  dropped off to sleep any comments, good and bad would be grateful...

  • FormerMember
    FormerMember

    Hi I’m sorry I can’t help you with any of your questions but I’m sure someone will be along who can.

    Wishing you all good things for you and your family xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you xx

  • Firstly sorry you having to make these decisions but yes you have found the right place for advice and feedback. 

    Tamoxifen - I was dreading it, reading all the side effects but it is different for everyone. Been taking it since March and have to say I have a few hot flushes a day - nothing dramatic no sweats to be honest I hardly notice I take it , certainly doesn’t make me feel ill. I know some people have a hard time but don’t presume the worst.

    Implants - I had a single Mastectomy and implant a year ago. It is still odd.If I hug someone I presume they can feel the solid lump against their chest in the same way I feel the lump inside  me. The skin is still numb across the scar and it slightly colder to touch. I recently had an implant on the other side to balance me up and that feels totally different as it has breast tissue around it to soften it. The Mastectomy side has thinner skin. It takes a while to adjust but ou do get used to it over time. 

    i have a friend who had a double mastectomy with implants in a similar situation to you - she wanted them off without the fear of a cancer growing. In clothes you would never know and with 2 implants you could even direct the bra! Always a positive. 

    Hope that helps a little?.. 

    staying positive . Helen x
  • FormerMember
    FormerMember in reply to Helen K

    Thanks Helen for your reply, much appreciated!!! 

    It all seems a bit of a head **** at the minute, I’m a numbers person so the odds are better having the double mastectomy, because that gives the best odds...my husbands worried I’m not exploring other options... 

    thanks xx