Feeling abandoned

FormerMember
FormerMember
  • 19 replies
  • 273 subscribers
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I dont know how to feel now, i actually feel abandoned which i am sure is stupid. After mastectomy i waited for onco test results which showed that chemotherapy would not do anything for me and had a phone call to collect prescription from hospital pharmacy. Since then ive heard nothing . I have no futther appts which is probably good but i feel as though i have now been left to get on with it. Has anyone else felt like this . A mad few months of tests and the op and now nothing . .

I know I've been lucky really and I've had an easier journey than a lot of people. I feel  guilty even feeling like this. 

Sorry for the moan 

Pipsqueak

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Pipsqueak

    My treatment post surgery has been done at a Macmillan centre. Now I'm a bolshi cow so I would be tempted to just turn up there. It's easy to fob people off on the phone , not as easy face to face.

    Obviously you don't go in bolshi, that just gets people's backs up but I'm sure you will get sorted.

    Please feel free to borrow some of my bolshi.

    Water boils in a pan, your body is priority.

  • FormerMember
    FormerMember in reply to FormerMember

    Silverberg used to have bolshi but lost it in my old ageLaughing  so yes please I'll borrow some of yours x

  • FormerMember
    FormerMember in reply to FormerMember

    Happy to oblige. 

    I'm sure hubby will be happy for me to have less.

    Leaking in Germany at the moment. I'd forgotten what these hot flushes were like. Thanks letrezole for reminding me.

  • FormerMember
    FormerMember in reply to FormerMember

    Grinning, enjoy Your trip ,   I've Been a bit leaky last week but only to be expected in that heat!  I have appt on 13th  for prosthetic fitting so will  ask more whilst there. 

    Xx

  • FormerMember
    FormerMember

    Hi Pipsqueak

    I understand how you are feeling, I had mastectomy on 19th June, do not have to have chemotherapy or radiotherapy which is fantastic. I have been prescribed Letrozole, lots of hot flushes but can put up with that !! When I was told I didn't need any other treatment other than the Letrozole I was over the moon. When the hospital discharged me following a few visits after the operation I kind of felt a panic setting in. As you said months of tests, hospital visits before the operation and then everything stops for a year!! I think this is natural to feel this way, although we are the lucky ones  not needing radiotherapy or chemotherapy, the emotional journey still goes on.

    Never apologise for moaning, there is lots of support on this site for you.

    Regards

  • FormerMember
    FormerMember in reply to FormerMember

    Hi pipsqueak,

    Horrible feeling that! I get it completely! I'm starting radiotherapy next week after lumpectomy (no chemo thank God) but what is supposed to happen after?

    Macmillan do a kind of 'after the event'' support.  Cant remember exactly what it's called but may be worth searching this site? 

    I discovered this support last night and it's now my lifeline, so you always have us too Blush 

    Hugs

    Jo xxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi pipsqueak,

    Horrible feeling that! I get it completely! I'm starting radiotherapy next week after lumpectomy (no chemo thank God) but what is supposed to happen after?

    Macmillan do a kind of 'after the event'' support.  Cant remember exactly what it's called but may be worth searching this site? 

    I discovered this support last night and it's now my lifeline, so you always have us too Blush 

    Hugs

    Jo xxxxxxx

  • When I was diagnosed in 2015 my BCN told me she was now my advocate for 5 years and I could call her anytime .  I made use of this last year when my 3 year mammogram did not go to plan and she helped me.  

  • FormerMember
    FormerMember in reply to FormerMember

    Rita I think half the problem is going through all the " I Have Cancer" scared to death but trying to be  strong anyway. Then  the relief of no Chemo and thinking wow brilliant! Then thinking is this it ? Am I cured? Is it going to come back? Will I know if it comes back? I didn't know this time  how will I know if it does?

    As you say it's the emotional side that keeps going on . 

    Thanks to you and everyone who has answered this post, it does help  to offload here 

    xx