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**AUGUST CHEMOTHERAPY CHAT 2019**

FormerMember
FormerMember
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Hello lovely people, and Welcome to the August's Chemotherapy Chat! 

This thread is for all of you soldiers, going through chemotherapy to take a look at, ask questions, answer questions and be there for one another in a way only you guys know how. 

If you want to find this post quickly, you can hit the 'Save In My Favourites' button. 

For all of those of you going through chemotherapy, you are superstars. You are amazing, and you are fighting each and every day, you are my heroes. If you need any extra tips, our Chemo Tips Page is something you may find very helpful, and something that you may find you would like to share with others who are also going through chemo. One top tip, ask about parking at the hospital you are being treated at; for some Cancer patients parking is either free or discounted (big discount!) So it's worth asking about. 

To get a sense of how the thread works, here is a link to July's chat which will be being locked from replies soon, but have a read anyway if you'd like to. 

Remember, you're never alone, you have us! And, just try to focus on what your chemotherapy is doing. Its hopefully kicking your cancers butt. 

I hope you are coping with me doing these! And I hope all of you are doing as well as you can do while going through this tough part of your journies. 

Happy August Everyone, 

Lots of love, hugs, light and healing to each and every one of you. 

Alex xxx

  • FormerMember
    FormerMember in reply to FormerMember

    These are good news. And I hope the changed treatment will be more gentle on you.

  • Good luck tomorrow with the MRI scan and appointment.  I've never heard of Forth Valley Royal Hospital before,  is it a new one? Let us know how you get on. 

    Fee, after all ypu've been through it's no wonder that you're nervous around doctors and in the hospital.  I read somewhere about how people going for chemo can sometimes get shaky walking down the corridor to the unit.

    I'm glad that everyone else seems to be doing ok.i can't believe how quickly the time is going... and if I do this to the end it will be November! It feels like such a long time since it all started, and then it begins again next April with the one-year check and discussion about reconstruction....

    Sleep well everyone  x

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • All the very best for the MRI scan tomorrow, Jojodot, and also for the oncologist appointment next week. 

    Congratulations Fee on the great news about the tumour disappearance.  The gentler chemo regime should be much less stressful on both body and mind.

    I hope everyone has a peaceful night, and a good day tomorrow.  I am off to bed feeling quite prickly/tingly on the scalp, so I guess that I may find some loose hair on the pillow in the morning!

    Blackcat xx

  • My hair didn't start to fall out until about a week after the itching began, and it doesn't usually start until about day 16 for most people  The itchiness can become really annoying though,  and it's  best not to scratch if you can avoid it:) xx

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Hi All,

    starting EC next Wednesday   Finding thus thread really useful .I've seen some mention of sore mouths as a SE ....so has anyone suffered from this and got any tips with regards lip balms ,mouth washes etc .   

    Thanks 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • FormerMember
    FormerMember in reply to Northerner

    My hair didn't start falling out until 13 days after my first treatment, but i didn't need to shave it off until after my second. It became really thin but still looked OK. What surprised me was how much hair i had, loads seemed to fall out but like i say i didn't need to shave it off until 2 weeks after it had started falling out.

    I got a sore mouth, i used a soft toothbrush, my hospital gave me some mouthwash that had an antiseptic in it and i also used OralGel which helped with any sores i got. I did worry about my gums etc but went to the dentist last week and was told my teeth were in brill condition :O) 

  • If you use an alcohol free mouthwash at least twice a day then you should be ok. Some use a salt mouthwash instead.  You could try one but if you start to feel it a little sore try the other.  X

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Hi northerner, not a sore mouth in sight for me after 3 x ec, didn’t need the mouthwash at all. I did have dry lips at the start I used vaseline and burts bees lip balm.

    however I have a runny nose and a tickly cough, whether it’s a se or not I dunno. I do find it difficult to differentiate between what is going on as a result of chemo or not!

    good luck next Wednesday too xxx

  • FormerMember
    FormerMember in reply to Northerner

    Hi 3 cycles into FEC and not suffered with sore mouth although have had tinglings and little issues.  My mouth was a main worry for me as I've struggled with Gingivitus most of my adult life plus, due to a careless accident a couple of years ago getting something from the rafters of the garage I lost my front tooth and now have a plate which I don't really get on with. 

    Before starting the chemo, and since, I've kept regularly using Corsodyl gel to give my gums some additional support and I also use Corsodyl mouthwash twice a day and I often just rinse after eating. My mouth has a prickly feel, especially for the first few days of the cycle but other than that no actual soreness.  I get a very dry mouth and also throat so keep a bottle of water handy everywhere I go.

    I tend not to wear my plate in the house, which does mean that I now pose an interesting sight to any unsuspecting visitors and I seem to have an every increasing body count of extras that I need to ensure are in place before going out in public.

    Leaving the house goes something like:-

    Suitable bald head wear to not give small children a fright - check

    Contacts in to ensure I can navigate safely - check

    Glasses to ensure that I can read the small print - check

    Gap filler to prevent toothless grins - check

    Leftie to straighten out the chest area - check

    XOXO

  • Hi everyone thank you for replies 

    I have now purchased ( I say purchased but being a tight northerner I used boots points ) two large bottles of mouthwash and two tins Vaseline plus toothbrush . 

    Think I will also get some gel for gums as I have  had problems in the past with bleeding. 

    Love the checklist Justtheone

    Think I need one only diff is don't use contacts and need to remember rightie to balance out chest .

    keep smiling 

    One step at a time and ...Breathe !
    xoxox
    Margaret