Just creating this breast cancer chemo aid blog - So I can link to it in discussions rather than pasting it all in.
This will be updated as other helpful hints are posted in the Main Breast Group.
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My Oncology unit gives ice lollies before Chemo as it lowers the temperature
in the mouth and helps against mouth ulcers.
Pineapple is also good before and after any ulcers appear .
How do others cope with chemo head. Some days its all I can do to concentrate. Any advice much appreciated as I am only halfway through my chemo at the moment.
There is a very informative page about 'Chemo Brain / Chemo Fog' at Cancer Research UK (CRUK)
You can view the page using this link.
It is a real condition - for those just mildly affected it can be brushed aside as a comical moment but for others who are worse affected it can be quite debilitating.
Most of this eases a great deal after chemo but it can take six months plus to recover from, and may even leave traces which are more permanent.
Hope this is of some help, if you are worried for later, or affected right now by this do let your oncologist know about it.
Take care, G n' J
can i ask why still bottled water is on the taboo list please?
If you take it as written (it comes from the NHS Foundation food & safety advice for chemo patients) they are only referring to the 'Mineral' type waters not all of them :) Why they only mention 'still' though I have no idea ?
I'm assuming that depending on the source these various minerals (volcanic or otherwise) could be literally anything and they can't all be checked that they won't affect the efficiency of the any of the many different chemotherapy drugs, so it is better to avoid all mineral type waters.
The commercially produced 'flavoured' waters you can get on multi-buys would mostly be made from basic tap water unless otherwise stated on the label, and are much cheaper.
Hope this helps, G n' J
aw lovely, thanks G n' J xx
I wish I had gotten Ibuprofen Gel after first chemo session as vein damage made stretching my chemo arm painful enough to make me use my 'bad' no-lymph node arm more. Now I'm past FEC and the pain has faded.
Also wish I'd ask for help with the itchy palms earlier as thought it was an old allergy. Then after my 3rd chemo a nurse finally said "Oh yeah, it is quite common Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia." They gave me pyridoxine and it seems to be helping.
I've read lots of threads and picked up tips along the way such as -
1. chemo makes you UV sensitive so don't go out in the sun wearing less than factor 30
2. you can't have gel nails because your nails will weaken and you can't set the gel with a UV lamp.
My question really is, if it wasn't for this forum, where else would you find this information ? and instead of reading lots and lots of old posts, is there a collated list of do's and don't's ?
Several have given this 'collated list of do's & donts some thought but didn't think it would be practical. That is how the breast groups monthly chemo club came about :)
A lot depends on what type of chemotherapy regime you are placed on and which of the many side effects could take a liking to you. It was fairly straightforward when the 'norm' was FEC only FEC-T, or 12 x Paclitaxel but there are so many variations now, some including the newer targeted therapies it is becoming a chemo cocktail minefield.
Determining which items could be helpful or harmful to you can be challenging - so you just end up with a very long list of donts that most could be OK with :-/
What a helpful list! Just what I was looking for.
I missed the patient info session this week as the onc nurse was off sick, so wasn't sure of the sort of things to bring or aware of some of the helpful hints and remedies. Thanks for compiling such a comprehensive compilation :)
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