Hello to all of you wonderful people, who are currently going through radiotherapy and welcome to August's Radiotherapy Chat.
This is a place where you can offer support , ask for advice, receive support and just query anything involving radiotherapy. A couple of quick tips, if you're driving to your radiotherapy appointments each day, or any time, ask if your hospital offers free parking for people going through treatment, or if they have a voucher for a discount off parking fees, which a lot of hospitals do offer. Also, try to keep the area moisturised with a fragrance free lotion, to help with soreness. You'll find want more tips along the way on this thread.
For more tips, heres our Radiotherapy Tips Page and I'm sure you all have some of your own tips to share, and ones that people post that you will find useful.
Heres also A link from the Macmillan Information pages, which also includes a helpful video that some of you may want to have a look at.
This is a link to July's chat for those of you who would like to see how the thread works, or to just have a look back at last months chat and see what you can find out from others. It will be locked shortly from replies, but you can still take a look.
Whatever reason you find yourselves here, just remember you're all so strong, amazing and simply the bravest. You've got me again this month! And we are always here for you. You'll always have your Macmillan family here for you, which includes other members who have helped you and been there for you.
Lots of love, hugs, light and healing to each and every one of you,
Alex xxxx
Hi nanny frog
i use the R1/R2 gel/cream. I am 12/15. I do think the gel helps take the heat out, i put that on as soon as i get home. The cream is ok, soothing, but those tiddly sachets are a pain
My skin is ok, pink but no breakdown.
i also use Aproderm, which is like Aveeno without the paragin and cheaper. Aproderm Collodial Oat cream. I slather loads of that on several times a day.
I am sticking with the R1/R2 but for me i needed a big pump that i could put loads on to prevent skin friction under my boob.
so sorry you have such a long journey. My pains and overall uncomfortableness was worst the first 7-9 then seemed to plateau. Then i started to feel exhausted.
It is doable . Yes the weekends are soooo good.
yvonne
xxxxx
Hi Nanny Frog,
I’m very interested in the breathing technique as my cancer is in my left breast, as close to the heart as you can get it really. The radiotherapist from the Macmillan helpline support told me about the breathing and why they use it. When I do my exercises I try holding my breath for 20 seconds with some of them to try and practice. Any other top tips?
Enjoy your weekend off and good luck for next week,
Linda xxx
Hi Nanny Frog, it’s me again! I’m with Lincoln hospital too! The staff in the breast unit have been absolutely amazing! I know how much of a pain that journey is for you, I do sympathise. I’m just off the Bicker Bar roundabout so I have a head start on you lol
Crikey! Forgot we have a Bank Holiday coming up!
love and hugs, Linda xxx
Hi Mrs Marvel - thanks for replying. You also have a long way to go from Bicker - that’s where I pick the A17 up from Spalding - the worst part of the journey is actually getting out of Spalding - takes me 45mins to hour to get to Donnington. Any way it has to be done so just have get on with it.
Have you been for your radiotherapy planning yet? That’s where I was helped with making sure I was doing it properly - the only tip I have is once I’ve got my breath to the right place I concentrate on something else until they tell me to breath out - the breathing monitor is a big help cos it goes green when you get it right and that’s where you have to hold it.. Sorry if I’m repeating stuff you most likely know already - But keep practising it’s all we can do.
Hope you enjoying your weekend - I’m trying but feel a bit lost and lonely for some reason
Hi nanny frog,
I am with you on the lost and lonely.
It feels like I have been spun round very fast for the last few months, when it stops for a day or so, like this weekend, i get that feeling.
Almost like what do i do now? Been speeding along on the rollercoaster, come to a halt. Body and mind geared up for speeding, so long since it was normalish almost cant deal with it.
I need to be kind to myself. Think it will take me a while to get into a routine again.
Xxxx
Hi Missybb - thanks for the extra info about skin care. You definitely right about the ‘tiddly sachets’ - certainly struggle to cover my boob with it. I’m pleased I was lucky to get my dr to prescribe it - I would have been well disappointed if I’d had to pay for it - I find the gel does cool things down but it’s sticky and messy - because I have about 2 hour journey home I put it on before I leave the hospital and have bought myself a soft cotton poncho to slip over which seems to be working. I will definitely be getting some Aproderm cream to add to my care routine.
I don’t know if I feel so rough and exhausted so early in my treatment because I also have diagnosed fibromyalgia/CFS - I think treatment and travelling is possibly causing me to have what I call - Fibro flares - they leave me feeling pretty grim at the best of times.
You enjoy your weekend and best of luck with rest of your treatment - be good to know if the R1R2 works and prevents skin breakdown - spose time will tell.
I cant believe the Red tape! 100 miles round trip? No breathing support? Thats ridiculous!
I'm do sorry you're having so many problems. Hugs and love coming your way xx
Hi Lamata74 - unfortunately no choice with the journey - but you mention ‘breathing support’ - just wondering what support should be available? I do breath hold with help of a visual monitor during treatment - but is the ‘breathing support’ you mention something different?
Hi nanny frog,
i have ME, so i wonder too if i am more prone to the exhaustion. Will let you know how my skin does.
Xx
Hi Nanny Frog, just sending love and hugs and support. It is a crazy roller coaster we’re all on that’s for sure. It was 3 weeks after my surgery that I got weepy and lost. For some reason I felt compelled to hug random strangers lol! I hope you are having some you time this weekend and relaxing.
I haven’t had my planning yet. I’m at Lincoln on Weds to see the oncologist so hopefully will get some dates or direction then. I suppose I have to wait for the scars to all heal? My appointment is at 5pm if that’s any good for you? My husband is driving so he could take us both. At least you would have a bit of a rest for half your journey.
By the sounds of it the rad unit at Lincoln sounds like a switched on place, i’m Glad I’m going there.
love and hugs xxxxx
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