Starting 6 months of chemo

FormerMember
FormerMember
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Hi everyone, 

I'm starting 6 months of chemo on Thursday and feeling very anxious and scared. 

Weekly for 12 weeks and then 3 weekly for 12 weeks followed by radiotherapy. 

I live alone and my grown up children don't live near me. I have good friends around but no one in the house with me. 

I'm most worried about the side effects and living alone and having to call an ambulance if my temperature goes up etc with the dangers of getting an infection. 

I'd be so grateful for any help and advice. 

Thank you  Hugging

  • FormerMember
    FormerMember in reply to Elsie77

    Thank you so much and hope you are recovering well xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Holbox123 

    Thank you so much. Good luck for today too, I'll be thinking of you. 

    That would be lovely to be long distance chemo buddies. Not sure how to add you as a friend but please add me if you know how to. 

    Take good care xxx

  • FormerMember
    FormerMember in reply to wombat.23

    Thank you so much Gay, so kind of you. 

    I hope you are recovering well and wishing you all the best. 

    Take care xxx

  • Hello Holbox and Littleoak,

    Just to say we'll be thinking of you today ( and anyone else off for treatments of course) but I'm sure all will go much better than you anticipated.  I remember the fear of the unknown.....and you won't  have to worry about that next time.

    I think it would be great if you can become chemo buddies....I made a friend on this chat line 3 years ago and we have been there for each other through some quite difficult times since and we hope to meet soon.....a weekend in Bordeaux is a possibility  for the Autumn.  If gers crossed......

    Take care and let us know how today has gone. I'm off to make plum jam. A neighbour brought me a bucket....probably 10kg ...of ripe plums last night. It will keep me busy!

    Love Karen

    1. I
  • Hi Little Oak,

    Just wondered how you are doing today, and hoping that your first session of treatment went as well as possible yesterday.  It must be good to have got the first session under your belt.  I am a few days after you in this scary process, as I will have my heart echo and pre-chemo appointment on Monday, and then (if all goes well) my first session of EC chemo on Wednesday.  Like you, I live alone (with two indoor cats) and am fearing the side effects, as I like to be independent and am hoping not to have to bother my friends and lovely next door neighbours too much.  It is good to share experiences and tips, so I’m sure that this forum will help us all to get through the rollercoaster of treatment.  

    Take care of yourself, and let us know how you are doing when you can.

    Blackcat x

  • FormerMember
    FormerMember in reply to FormerMember

    Were friends now you did it somehow - I sent you a message if you click on the envelope on the right hand side you can get to your messages x

  • FormerMember
    FormerMember in reply to Lacomtekp

    Thanks Karen, 

    Everyone is so supportive and this feels like a safe place to sound off and get good advice. Good luck with the jam, I’ve just taken a lemon drizzle cake out of the oven (got to maintain normality) 

    I got a call from the BC nurse earlier, when I told her I was planning to go to work next week she seemed a bit surprised. Am I being silly thinking that I can still work a few days a week. I can’t imagine coping if I can’t go to work and take my mind off this disease. 

    Eileen x

  • If you feel you can get to work and can do your job, you go.....I had other friends who did and were fine but don't  expose yourself to germs if your work involves lots of people.

    Only you will know how you are feeling......I expect your nurse was a little surprised that you are considering work for next week because you weren't feeling completely well today. Perhaps you should see what the weekend holds before making a decision?. I was already retired when I got bc. I never had to consider if I felt like working although I doubt I could have. 

    I am really pleased you have felt well enough this afternoon for baking.....It suggests things are going well for the moment. Don't  overdo things over the next day or so though...you probably still should think of having some rest.

    It's good you can chat to the other ladies who started chemo this week or will start next.....you will find their friendship invaluable. 

    Take care.

    Love Karen

    .

    Take care.

    1. I
  • FormerMember
    FormerMember in reply to Blackcat20

    Hi Blackcat 

    Thank you so much for your lovely message. 

    A very long day in hospital yesterday as they were running 2 hours late and then it took hours to set me all up (I'm trying the cold cap and it felt ok as I'm used to sea swimming without a wetsuit!) and then run the chemo through me for 3 hours, I think we left hospital around 8pmish. A friend stayed overnight but I didn't sleep well as I was on high alert for the side effects like a meerkat. Feeling okish today and went for a walk this morning, the district nurse came this afternoon to give me an immunity boosting injection. On my own at night from now on until my son comes for a few days on 24 August. That's what I find the hardest having no one in the house and like you having to ask my friends for help but they've all been amazing and have got a rota together to take me to my weekly chemo. Hopefully I'll calm down with it all as time goes on.

    Hope all goes well for you. I had heart scan, CT scan and body scan before the start of my chemo. I'll be thinking of you xx

  • FormerMember
    FormerMember in reply to FormerMember

    I've sent you a reply message xx