Just diagnosed

FormerMember
FormerMember
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Hi, I was diagnosed with grade 2 invasive ductal carcinoma which is ER positive, PR positive and HER2 positive.  I've read about HER2 but what does the ER & PR stand for?  many thanks,

  • FormerMember
    FormerMember

    Hi Daisy.  

    They are the hormones. Er is oestrogen, PR is Progesterone. They are the things that feed the cancer. It sounds ominous but actually it’s not all negative. If you are positive for those things they can give you treatment specifically for them. It will mean a lot of treatment, but probably also a good outcome. 

    Wishing you all the very best of luck. X

  • Hi Daisy

    Sorry to hear about your diagnosis but you've come to the right place.  ER and PR stands for estrogen and progesterone. They are hormones which can feed the cancer. It's a very scary time and support can be sought on here from the many ladies who are have been through or are going through what you are now.

    When did you receive your news? Hope you're okay xx

  • FormerMember
    FormerMember in reply to Elsie77

    Hi Elsie, I had my 'normal' mammogram call up for 29th May and then had a recall at the hospital for 13th June, where they did an 'Ultrasound' biopsy.  I had an appointment for Monday 24th for the results, but they brought it forward to the Friday 21st when I was informed that I had breast cancer.  It all went a bit whirly really and I kept wanting to ask if they had the right person, but another appointment for a second biopsy using mammogram and vacuum, was made for Tuesday 25th June.

    I'm sorry to go on but - I got the results from that last Friday 28th June, and will need to undergo a mastectomy and chemo, but because of the way the invasive/non invasive lies, they don't know which to do first - op or chemo!!!!???  I'm going for a MRI scan on Tuesday 16th July, so hopefully that will give me some answers.  

    thank you for listening,

  • FormerMember
    FormerMember in reply to FormerMember

    thank you.

  • FormerMember
    FormerMember in reply to Elsie77

    I'm sorry Elsie, but I didn't inquire as to your state of health.  are you her because you are or have gone through this or have  you supported somebody during this period? I apologise for being rude and self indulgent.

  • Don't worry I know exactly how you're feeling it is a whirlwind in those first few weeks after diagnosis. When the Macmillan nurse took me into the room afterwards I just wanted the grab the pack off her and run away. I didn't really take anything in or process it for a few days. I'm more settled now I have my plan and start my chemo on Monday. I'm having that first then a lumpectomy all going well. The worst part was waiting for everything.

    Good luck with your MRI scan, here if you need us xx

  • Hi daisydoodlbug

    your right it is such a whirl in your head . I was called. Back for calcification of right breast never heard of it . But reassured when was told no lump . Biopsy taken and two weeks later 25/6  got diagnosed with non invasive and to a lesser degree invasion ducal cancer.

    Another biopsy rushed thru cos they disagreed on size then phone call on Monday and meeting yesterday . I made decision for mastectomy because of size of area . I go in tomorrow . All I can say to. You is the speed is so scary !! Just get all the info you need to try to make sense of it all 

    you have come to the right place for support and help . This is where I finally found some answers from lovely people who can share what is happening to them .  that helped me find a way out of the maze . Hopefully You will feel so much better when the decisions are made and you can take control. 

    Take care 

    love and hugs 

    xxx

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • FormerMember
    FormerMember in reply to Northerner

    Hi Northerner,

    Good luck for today, I was recalled for calcification and they found the lump, and the HER2 positive protein.  I'm hoping that after the MRI things will move, as being in limbo is not a good place to be. 

    Please let me know how you go on, 

  • FormerMember
    FormerMember in reply to Elsie77

    I went back for the results on my own as it was only 'calcifications', how naive was I being!!  The doctor said cancer, DCIS, surgery, chemo; I think those words were all I heard and couldn't take it all in.  My heart dropped and hit the floor along with my jaw, hopefully after the MRI I can move along with a plan.

    Thank you,

  • Hi Daisy Dooglebug

    yes Limbo horrible !  

     I felt calmer the instant I made the decision between lumpectomy or masectomy.  When on recall assessment they couldn't find lump with ultrasound or mammogram ... " only " calcification . It can sound so reassuring so no I don't think you are naive .  Then after positive biopsy  surgeon still couldn't find lump . At the moment all I'm concentrating on is today . Only 8 days since diagnosis only two days since coming out of brain freeze ! Can only remember seeing more non invasive cells with what looked like a couple of invasive .

    I just want rid !

    At the moment I only know sentinel nodes being done . As nothing showing on ultra sound on nodes . When today over I will then really start with more ???? At review .... I only cope when I know everything . 

    I will let you know 

    Thankyou for thoughts 

    love and hugs xoxo

    One step at a time and ...Breathe !
    xoxox
    Margaret