So...hello to all. I was not expecting to be joining a group like this last week! On Friday I went to the breast clinic for the 1st appointment....still thinking I was probably a fraud! And feeling somewhat nervous about a needle biopsy....how could that not hurt in such a soft sensitive area I thought. (it really didn't!) Now I feel I've joined a club that I did not want to be part of! As we all have.
Well the staff were fantastic (of course) and the consultant was quick to tell me after examination & asking what I thought, that it was indeed a cancer. (Do they normally tell you immediately, before mammogam & ultrasound, or is it because I'm a nurse & have fair medical knowledge?). So then I sit outside again & tell my son. I said he would never have said that if there was an inkling of doubt, because he can't backtrack on something like that. And I look down at my boobs & think mmm....well that's going to be a bit odd....I'm sort of fond of it now! (Assuming the left one would need complete removal).Then I thought well that's one way to lose a bit of weight (haha) cos they're a fair size...well double D, not enormous. Is it only me that thinks such random thoughts?! I tell you what though, it also crossed my mind that maybe only 20 years ago, I would be thinking it was a death sentence, whereas now, I just think 'OK, surgery, treatment, done'. Sadly my Mum died of breast cancer when I was 12...it felt weird that here I was 45 years later having the same diagnosis. I'm glad my Dad's not alive, he would be very sad & worried.
Then I went back in for the mammo & ultrasound & the dreaded biopsy, which was OK. The ultrasound showed it is 'very small' and the lymph glands are not affected'. Wow....I physically felt my mood soar to almost elated. How lucky am I? He showed me this mammo in comparison with my last on the massive screens & there it is...a white blob. The blob of horror haha. (Why can't you do emojis on this?!) Then I see the consultant again, with my son & the Macmillan nurse is already there! And we chat to her too in a separate room. Wow...what service we get. I was thinking it's a shame it's not like that in every department...I have crohns disease and I can assure you it was nothing like that when I was diagnosed, even though I went on to need 3 major abdominal ops & knew little about it before.
So, altho' it's 'very small' it seems the whole thing is going to take over my life somewhat. I went to work yesterday & was walking round thinking 'I'm different from everyone else...I've got cancer'. You sort of have to practice saying the words. And there's the wondering of 'why'? Haven't I had enough, with the crohns. I'm well atm on immunosuppressant drugs....I do hope I don't have to stop them. And I don't get sick pay (except statutary) so I better not be off too long! I've done some googling. Still not sure how this is going to affect me. Can I do radio & go back to work each day? Or am I kidding myself?
Oh well....sorry to go on a bit....just offloading. You don't have to reply, it's just I like to write stuff down....it's out of my head then! Best wishes to you all, whatever stages you're at, whatever you're going through right now. 'In it together' Isn't that a song? Or part of a song. I had been playing Coldplay...'the Scientist' in the car on the way there & my son started humming it & said 'is this your cancer song?' I love that song... have you got a cancer song? The day after I was referred under the 2 week rule, I went to work & they were playing Bob Marley 'Please don't worry 'bout a thing..cos every little thing's gonna be alright'. My bruv changed it to 'Sis don't worry....
I now think I shouldn't post this cos it's far too long....like I say, it doesn't matter if you can't read it all, I'm just using the space as it's been offered to me to offload. Love to you all..
Hi
Yes this is the club no one wants to join.
I've had BC twice and both time is the radiographic that have given me the awareness that I'd got it. The first actually said" if I was a betting man ,I'd bet on this being cancer."
This time it was more what he didn't say.
When I've told people this they've been shocked but it gave me time, before the actual confirmation, that there was something grim coming.
This is very much a club for waiting, for results. surgery treatment etc. This site wasn't available then and it is a God send.
Love yourself
Oh thank you for your reply....I hope you're doing OK. Funny how they can be quite blasé about it...I suppose it's because they deal with it every day. I think maybe I'm a bit nieve about what's in store.
So sorry you have joined us - but you are very welcome. I am just coming to end of RT and really not bad at all. If it wasn't for other issues I would have been able to work whilst having RT. But we are all different. Most of us though don't find RT too bad.
Good luck with everything and I hope all treatment is kind to you xx
Hello and welcome,
though a lot older than you at 74 I escaped it not being in nodes, and HER2 negative though oestrogen 8/8 positive. So I didn’t need chemo (that’s the HER2, plus age I guess) and not radiotherapy either (no node involvement) I do however, need the lovely hormone stuff, Letrozole which I’ve been on over a year now.
I too had a pretty immediate inkling, the fact I found the lump and it was different to the cysts I’d felt years before in that boob, then the Radiographer who did the ultrasound and then guided biopsies did the quiet treatment, slight sucking in of teeth so I knew it wasn’t good. Then my surgeon immediately intimated it would be a mastectomy (partly due to the position, almost at the edge, and also partly previous surgeries) which I too suspected.
Ah well, we are still here and at a point in medicine where bc treatment really is excellent and getting better all the time! Keep posting, it helps, and remember Dr Google is full of scare stories and out of date!
hugs xxx
Moomy
Oh thank you Anne....that is reassuring & has lifted my spirits
Aww thank you Moomy....so I presume you had the full mastectomy. Hmm....I do realise it sounds like I am lucky & got away with it. And I take my hat off to you...you wouldn't expect that whem you're older really. How do you get on with the hormone stuff? It feels like maybe you're mot impressed with it!
I've yet to get my head round the different types, although he intimated I would need Tamoxifen, which is the only hormone treatment I'd heard of. So it must mean it's receptive to some hormone. All will become clearer on Wednesday when I go back.
You are so right, the treatments are so much better....I dread to think what my poor Mother went through. She died 6 months after her lumpectomy & RT. And they weren't told anything in those days.
Sorry you find yourself here but welcome. This is great site for support and to rant, ramble etc. It’s perfectly normal to have your head all over the place x
Hi , ramble away, this is the place to say what you like, rant, rave or moan, or share a funny story, we do laugh here too! Your story sounds quite similar to mine; my mum died from breast cancer when I was 19 and my dad from prostate cancer 7 years later. I've had a lumpectomy, node sampling (thannkfully negative), 3 weeks of radiotherapy and am popping Anastrazole tablets for the next 5-10 years. I don't find the hormone tabs too bad, but maybe it's early days (7 months). I didn't work during radiotherapy but as many have said, we're all different, and I was lucky to be paid throughout so didn't have that to worry about. I'm back at work but so far just doing 3 days per week, on the other 2 I try to walk and have taken up Nordic walking classes as it's great all round exercise. Plodding on at the moment, gradually adjusting to whatever is to become my new 'normal'!
Good luck with your treatment, hopefully you'll have a 'plan' soon and can get started. Keep posting and let us know how you get on!
Hugs, HFxx
Oh thanks for your reply HappyFeet1. Sorry about your Mum & Dad....it's really hard when you lose your Mum, but especially when you're young. The repercussions reverberate throughout your life really. Made me very strong though in a lot of ways. My Dad had bowel cancer, but made a full recovery & lived 20+ years after it.
I probably wouldn't work through treatment if I didn't have to, but I can't really afford not to....but my manager has been supportive & said I can do whatever I can manage, so I expect I will reduce hours (I do 48 hours a week). I'll have to see how I feel. I'm on my own, so it's not.an option.
What was the lumpectomy like....how long did it take to heal? (How big is it? ) How long was it sore for? Did you have under local? And can you drive OK during radiotherapy? Did it make you unduly tired?Sorry....question overload lol I go back on Wednesday to find out what's next, but he's already said lumpectomy & something about nodes, so that makes sense now....sampling. I shall Google Anastrazole.
I like the idea of Nordic walking....not sure if there's a group local to me. I used to walk in the South downs quite a lot years ago. That might be nice.
Thanks again & you keep plodding hun.xx
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