Awaiting biopsy results

Hi Linbo

The waiting is horrific and this is a world of waiting. 

I can't really make things better, nothing will help you sleep or change you into a calm human being.

However I can give you a bit of advice. This is my second go at BC, last time was 12 years ago and I'm waiting for surgery on the 18th.

Make sure you take someone with you.This is not something you should do alone.That person might ask a question you hadn't thought of and two heads are better than one.

Make sure you take a pen and a note pad or something to write on. If it's bad news you will be given dates etc which you won't remember.

Remember the doctors and nurses have done it all before, there is no such thing as a stupid question and they will guide you through whatever the results.

I hope the news is great. Please come back and let us know.

Silverberg

Im so sorry you have found yourself in this situation. I definitely remember the anguish and fear. Because you don't know what exactly has been found your mind goes into complete overdrive. It is quite normal to be sick with worry and unable to sleep.  Once you know what the problem is and the team's advice on treatment you will have something to focus on. You must take somebody with you to your results appointment. They may give you treatment options and you may be given a lot of information which you just won't remember. It is all a huge shock at the moment but things will settle a little when you have some clear information. Remember to ask loads of questions however silly or stupid you think they may be. Good luck for Thursday. XXxxx

Sorry you find yourself here.  When I went for my results appt I took my hubby but I don’t recall asking any questions!!!!  Surgeon told me I was taking it very matter of fact ,  I didn’t realise there was a ‘way’ UK react.  

I had 6 samples taken of two areas.  One area was benign the other wasn’t!  Last year at y 3 year check up they saw something on my mammogram and did a biopsy of my good boob but it came back as nothing !  They repeated mammogram and whatever they had seen was no longer there .

Thank you all for your replies. I went thinking I’ve got an infection and was side swiped with this. It was like being pushed onto a merry go round and I’m not able to get off of it. I’m trying to stay as positive as possible but it’s so hard. 

Hello  

well I find myself not in Limbo anymore! The week wait for results was horrendous. I have now been diagnosed with inflammatory breast cancer. I have my body CT Tuesday and then back on Thursday for results and treatment plan. I don’t think it’s properly sunk in yet. 

Xx

Hello,

On a positive note.....you now know what you are dealing with and yes, for a while it will be horrendous and the treatments will probably not be pleasant........I am sure everyone here knows just how you are feeling today because most of us experience something similar. Shocked? Confused? Numb? 

However, it is much better that you have a diagnosis you can fight. Imagine if you hadn't gone about the infection......well, luckily that isn't the situation. Treatments are very good these days. I was diagnosed nearly four years ago. My cancer is still clear. Like you, I was shocked when it showed on the mammogram. I hadn't any visible symptoms.....

I hope you will be encouraged by the success rates. You will certainly be supported by the other members on this site especially those who find themselves at the start of their treatment like yourself. Ask any questions you want.....rant at any time of the day or night.....cry if you feel like it....There will always be someone online to share their knowledge or experience, listen to your mood or put a ' cyber' arm around you and give you a hug. 

I wish you well. I'm sure you're not naive enough to think that it is going to be easy and it would be dishonest of me if I tried to pretend the treatments are not hard at times, but be reassured, it will be worth it and times does move on so that like me, in a year or three, you will find yourself replying to someone newly diagnosed and saying ' Today( even if it returns in future) I don't have cancer!'

Take care, relax this weekend, try not worry( if only!  ) and go on Thursday armed with companion and notebook ready to tackle the next few months.

Love Karen.

P. S. If I can answer any other questions over the next few week don't hesitate to PM me. I will be happy to share what I know.

Thank you so much for your reply. Yes I know it’s not gonna be easy. To be fair when I heard I felt relieved because I finally knew what was happening and I can move on. The not knowing was horrendous. Thank you for your support xx

Hi Limbo

I'm sorry it wasn't better news. 

Now the process starts its a bit of a rollercoaster ride. There are some very low lows, but quite slot of black humour.

I'm here after a new diagnosis the last one was 13 years ago. I'm not an expert at the cancer but I've done quite well at recovery. So my thoughts for the day.

Waiting is the name of the game. Nothing really you can do about it but get your head into the mindset and always have a decent book on the go.

Make plans. Rather than say" I can't I don't know how I'll be" . Arrange stuff people are very good and if you have to take a rain check they understand. Well the ones who care will.

Get prepared before op, with stuff you need for hobbies, or hospital. I've just had a bunion done and if you usually drive you can feel very trapped. I've got some t shirts with hidden support for days when I'm too sore for a bra. (Hubby wanted to know why I couldn't use the ones I had last time. Bless him.)

A nurse told me to wear nightie and dressing gown if people are expecting too much. It's easy in a busy household for people to forget you are not 100%. But that only works if you don't usually wear it from dawn till dusk.

Always talk to people about how you feel, especially if dressing gown doesn't work.

Be kind to yourself. Little steps and small goals on a daily basis. If today's not a great day tomorrow will be better.

Hugs and love

Silverberg

Thank you so much for your reply Silverberg

Hi Linbo, haveyou found the IBC Facebook group - it’s excellent and has very dedicated information on inflammatory breast cancer. X