I had a single mastectomy and immediate DIEP reconstruction just over 2 weeks ago. Recovery was going pretty well until a few days ago, when I started to notice hard lumps. They don’t hurt when pressed, but overall make my breast ache terribly - particularly towards the end of the day. I’m normally a DD cup so am wondering whether it’s the weight of the newly constructed breast, the wrong sort of bra, or just one of those things. The worst lumps are on the outside edge of the breast, close to the arm pit, and include one that is near where the breast drain was inserted. I’ve tried massage but that doesn’t seem to help.
My surgeon was adamant that I needed to wear the bra as tight as possible, with the straps pulled up, so that I got really good support. Wondering whether I’ve done this too much and caused the problem. Because of my size I invested in proper mastectomy bras, but he bottom and side edges seem to be just in the wrong place.
Sod’s law means that the lumps appeared just after my follow up appointment at the hospital - it’s one and a quarter hours away so not easy to pop back. Spoke with the BCN who says she thinks it’s probably necrosis, but nothing to worry about as the lumps are relatively small..Still worried though!!
Interested to know if anyone has experienced the same and found it disappeared eventually by itself, when it needs further investigation and crucially, when I can expect the breast not to feel like a bazooka!
Hi
i had a DIEP on 16th January. I can't help with the lumps I'm afaid. Had healing issues but seems generelly lump free. But was interested in the bra situation. I have never been told to wear a tight bra. Mind you would be difficult as I am an E/F cup on my healthy side and my DIEP turned out to be a B cup (was promised a DD but hasn't worked out that way). Isn't it strange how different surgeons do different things. I also only had a drain for my lymph nodes - none for my breast or tummy wound. Didn't get any seromas.
Do hope you get sorted. And from what I have read it does sound a bit like fat necrosis. I think massage is meant to help with that - but probably takes a week or two or three.
Take it steady with your recovery and hope all is going well apart from the lumpiness.
Thank you Anne - really appreciate the post. All things considered, I'm doing really well - moving easily (because they used tissue rather than any of the muscle from the stomach, so my core feels pretty intact). I think some of the 'burning' sensation will be nerves getting back into action, but I do worry that the location of the breast drain means that any bra I wear will be pressing on the damaged tissue. My surgeon was very vocal about having good support, as he said that otherwise it puts strain on the stitches holding the new tissue in place.... Maybe I've not found the right bra, but I did get proper advice from the lovely ladies at M&S.
Do you think you'll go for some sort of augmentation in due course to even things up a bit? My surgeon made my new breast slightly larger (I had what was amusingly described as 'plenty of apron' on my tummy, so he had masses to work with). He said mine might contract a bit after the swelling goes down. The huge bonus is the flat stomach - it's not been like this for about 25 years!
Best wishes
Rachel
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