EndoPredict Result to Chemo or not?

Hi

I'm no expert but Endopredict argue their test is more accurate as it also takes into account the size of the tumour and the status of the nodes. Onco type just studies the genomics of the tumour itself. 

Nic 

Hi peterawake

No wonder you're bewildered!  I guess you are in such a difficult position that really all you can do now is think "If I didn't have chemo and I was within the 6% in 10 years - how would I feel?"

In 2017 when I was diagnosed with Gd 2 IDC, Gd 3 DCIS no spread to lymph nodes, ER+ IDC - the OncoType DX/ EndoPredict weren't around - so I'm in the dark as to any potential for return.  I would have liked to have known and if I'd been diagnosed a year later, I would have known!  Each year now (next one approaching), I know I am utterly convinced that it will be back, whereas if I'd known via one of those tests I wouldn't be so 'nervy' about my approaching annual.  I personally would have taken chemo if any test had been available in 2017 and pointed towards it - much as I would have hated it, the knowledge that I was adding another layer of protection against the cancer would have been reassurance to me.  As it is I always make sure I get a holiday before my mammogram 'just in case'.. not nice to feel this way every year is it?   

So, that's what you have to ask yourself - can you live with the decision you make?  Chemo is horrendous but achievable - can you live with having chemo or not having chemo andworrying it will come back (within the 6%) / having it actually come back (within the 6%).

Kindest wishes,

Hi lesleyhelen,

Thank you for your reply. Chemo doesn't guarantee it won't return, unfortunately but as you say it adds another layer of protection, hopefully.  My Team have been so against me having Chemo and have now thrown into the equation I might be doing myself more harm to come off Hormone Tabs to take Chemo, nightmare situation.  I think we must all feel worried about it returning, everyday I wonder where it's lurking! 

Meet again Monday with them.

Best Wishes.

Hi Haysie,

I've always wondered why OncoType didn't take into consideration the Tumour size, because you can have a 2mm or a whopping 5CM, surely the size should count. All a nightmare, I long for my old life with no health worries.

Best Wishes.

peterawake

I know what you mean. I mourned my old life for a very long time after my first diagnosis. 

I'm interested in what you say about stopping tamoxifen. I've had to stop while I have chemo for my second primary. My onc told me that the chemo would also work in relation to any cells knocking about from the first cancer. Obviously you're being told something different! We are at their mercy.

Xx

Hi Haysie,

My head is sometimes spinning, don't know what to do for the best. The Hormone Tablets are supposed to sort out the cancer cells knocking about, so they tell me, but obviously not otherwise would there be any relapses?  I have always wondered if the Tablets are strong enough to stand up against cancer cells. Drs all have different opinions although each MDT seems to be united in their treatment plan. Keep us posted when you start Chemo.

Best Wishes.

When I was diagnosed with my secondaries, I was taken off Tamoxifen straight away (after 3 years) as the oncologist said that they obviously hadn't worked! 

I'm now on palliative (permanent) chemo and there's been no mention of going back on any sort of similar tablet at any time! 

I suppose it my be different for a second primary tumour though...