Hi everyone
If you are having radiotherapy this month, this is the place to ask questions, get support and chat to others going through it at the same time. If you are driving daily to appointments, don't forget to ask if they offer free parking (most do), and it's a good idea to keep moisturising the site of treatment, for weeks after too.
Here is a link to the Radiotherapy tips thread which contains all sorts of tips posted by breast group members to help you get through radiotherapy.
Good tips are: drink plenty of water; use plenty of cream and keep applying for a few weeks after. Radiotherapy can be tiring so rest when you need to.
There is some extensive information info about Breast Radiotherapy and Possible Side Effects both on the BCC website
There is also a useful Macmillan video here
You can use this link to refer back to the March Chat if there was something there that was useful. We will be closing it to new posts soon.
Wishing you all a smooth ride through this part of your treatment!
R
I'm in for my first radiotherapy this morning. Can't say I'm looking forward to it but hey ho needs must I suppose . Im just hoping I can hold my breath well enough as I have a cold and cough just now.
I also have an appointment at the breast clinic tomorrow after my second rads which is adding to my anxiety I think. I can feel a wee lumpy bit on my affected breast which I am so hopeful is just left over scar tissue from the therapeutic mammoplasty to remove the tumour back in October and nothing sinister. I just want this all done with now so I can have my life back to some sense of normality.
Hope the first rads went well, today and hope it goes well at breast clinic tomorrow!
R
I hope all went well yesterday. I have to say personally, I found rads a doddle compared to chemo and it was over so quickly.
Just keep moisturising. I had my last one on 5th March.
Good luck at the breast clinic. X
Thank you ladies, it went fine. I was quite nervous before it whixh I wasnt expecting as I'm usually quite a stoic sort but it was over so quickly without a fuss.
I developed a hot, slightly swollen boob last night which I was slightly surprised happened so soon. I thought it would take time to build up (guess who did no real rads research before starting lol)
Apprehensive about breast clinic this afternoon but relieved to have got an appointment so soon after mentioning the lump to the BCN.
Good luck to.everyobe else having rads xxx
Good Morning everyone! As there have been no recent posts, I'm assuming everyone is doing ok with their rads? Or have we just given up??
I finished mine last month, but since then have developed the dreaded rash and itchyness. Remembering what I was told on my last session, I bought some hydrocortisone cream and have been applying it regularly, but now - 3 weeks later - it's still there! It's right at the top of the area they radiated in the centre of my chest and just a bit under my collar bone so it's visible when I wear an open necked shirt or lower t-shirt. I've been covering it in aloe vera gel and moisturiser every time I think about it. What I really want to know I suppose is - is this normal? How long does it carry on for? I don't want to bother the nurses if all they say is keep creaming it!
On another side note, I have my second session with my Macmillan counsellor today - I felt sorry for the poor guy at our first session as I spent 50 minutes pouring out the story of the last two and a half years! But it felt so good to be able to open up to someone who would not judge how I was dealing with it all. And yesterday someone from the Hospice bereavement service rang me. Although Mike never made it to the hospice, the nurse at the hospital had referred me to them. She offered me some group sessions once I finish my one to one sessions, and sounded really positive that I would find it beneficial. So I'll investigate that later too.
Anyway, I hope everyone is doing ok. There is a light at the end of the gloomy tunnel. And I hope that you all have a happy Easter.
Hi
Just picked up in your post about the area under your collar bone. I continued using my radio gel until I finished the pot and then after that used Epimax cream (prescription from my doctor for an area of scar tissue elsewhere). It was about a year before the area which had been radiated - which looked like sunburn, gradually faded.
I also found that it was about a year before I could happily lift heavy bags of shopping without it really hurting when I laid on it overnight. When I had my final appointment with my BC nurse a few months after radio, she said "it's early days yet" - so I guess it probably is normal. The radio beams continue working long after the rads have finished.
Mine wasn't an itchy rash though (although it itched a bit), so if you find it too much, I'd suggest you either pop to your doctor to get a different cream or speak to your BC nurse to get a suggestion what type of cream would be best for it.
Happy Easter to you too
Hello all,
I am due to start 15 sessions on May 1st.
My question is ... what is the likely hood that I will be able to self drive to and fro appointments for the three and a half weeks?
Would it be advisable to get lifts for the later sessions?
On my own so would be relying on friends etc
Thank you in advance x
I was able to drive myself to and from each of my 15 sessions. Granted by the end I came home and collapsed on the sofa for an hour or so, but I would not say that I felt I was unsafe to drive. Of course it depends how far you have to drive home.
And don't forget to ask if they offer free parking at the hospital for radiotherapy patients!
I finished my treatment on March 26th and for the first week after treatment I was wiped out, but apart from a "sunburnt area" I now feel fine with it all.
Thank you Sandie, that is really helpful.
Onwards and upwards x
Hi
As has already been said, depends on how far you have to go and how well you personally cope with radiotherapy.
I drove over 60 miles (there and back) to my radio - and I also didn't realise that parking was free, so had to find a side road to park in away from the hospital.
When I was there, one lady also drove herself daily after work, like me, but she said she'd been falling asleep at her desk and I did wonder how safe she was behind the wheel! Another lady I met was the same as me - perfectly ok. When I discussed things, the one thing I noted was the lady with fatigue wasn't drinking very much - she was only having one cup of tea during the day at work. I made sure I was drinking pints of squash, coffee and green tea and then treated myself to a large 'posh coffee' from the hospital coffee shop for on the way home. I am convinced drinking loads was what prevented my fatigue. They advise drinking plenty of fluids as well.
I did have lifts lined up for the back end (ie the last week) as I didn't know how I'd react, but didn't need them. So maybe worth getting them on the rota just in case you need them.
Best wishes,
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