Hello there
I have a question about side effects from tamoxifen.
I am currently on 20mg a day, brand is WOCKHARDT.
I had chemo March to May last year, RT in August, and in December had final treatment of 11 cycles of Herceptin.... so currently Tamoxfen is only treatment I am still having.
In the last 6 to 8 weeks, my pain levels have gone through the roof - muscles, bones, joints. Night time is worst, to the point where I can't stand or walk sometimes. And constant nausea of varying levels.
My insides continue to be a terrible mess.
But the worst development is acid reflux. I have had reflux issues for years but it was manageable and didn't impact too badly on me, but over the last couple of months it has become horrendously bad, and nothing alleviates it - not medication, not diet, not exercise, not the position I sleep in, nothing! I don't get indigestion with it, is just acid and subsequent fumes and it causes sinus problems, upper respiratory issues, and gets in my eyes when I'm sleeping.
My question is, has anyone else suffered acid reflux or similar issues when on Tamoxifen. I read on a thread elsewhere that people were having some issues with reflux and digestive issues, and they changed the brand of Tamoxifen they were on and it helped a little bit.
Anyone here experienced this, or had different side effects with different brands of tamoxifen? Or is changing brand a myth.
Also, is tamoxifen a drug you can have a break from (obviously not stopping it unless onco says it is okay to), and if it is and anyone has, did the side effects go away for a bit?
Another thing that is really getting me down is I am not losing weight. With all the above issues, I am barely eating, but what I am eating is mostly healthy diet food (lean meat, vegetables, mostly salads comprising every single vegetable imaginable that can be eaten raw, green tea, water). Has anyone else had issues trying to lose weight after treatment? I am persisting and telling myself my body doesn't know if it's coming or going still, and all the right things will happen in time ha ha.
thank you for 'listening', seems I only come on here to whinge.
All the best to everyone xxxxx
