Morning ladies
I was diagnosed at the beginning of May, had a lumpectomy 7 weeks ago and wondered when I'm supposed to start radiotherapy and Tamoxifen? I'm under one hospital for the operation, then one for oncology and the another to have radiotherapy, just wondered if this was normal - so much waiting around and not working just wanting to get on with it. Thanks
Morning
i was Diagnosed beginning of April, had Lumpectomy end of April. I went to see Oncologist in June, that’s when I started Tamoxifen and then started Radiotherapy beginning of July (3 more to go!)
I had operation at one hospital and Oncologist & Radiotherapy at another one.
Yes the waiting around is the pits. I had the World Cup to keep me occupied lol. Take some you time, enjoy the summer, it’s awful having to cover up in this beautiful weather lol. Hopefully it won’t be long for your Oncologist appointment and then things get rolling.
Good luck with the rest of your treatment.
Julie xx
There’s No Rainbow Without A Storm.....
Live Love Laugh....
Sure Fine Whatever....
Hi
i was diagnosed at the start of June and had my lumpectomy a month ago. I’ve got a radiotherapy appt on 22/8 when I’m back from hols. I was originally told that I’d start radiotherapya couple of months nags after my op so end of August/early September, once I’ve healed from the op, and I think Tamoxifen after that but might have misremembered that last bit.
I will also have been under 3 hospitals (clinic and appts under my local one, op in another that my surgeon works in and chosen for date available, radio in specialist cancer centre). It’s all coordinated through the clinic though I think.
Have you got an oncology or radio appt coming up? Perhaps chase it up with your BC nurse if not.
Best wishes
Liz
x
Hi Liz
it has been awful having to cover top half and I’m a sun worshiper lol I tend to sit indoors with no bra/crop top on and just a vest top. You can feel your chest burning even with a tshirt on.
The Tamoxifen I’ve have mood swings and MAJOR hot flushes/hot sweats lol. I take mine at bedtime now so side effects are not as bad
Julie xx
There’s No Rainbow Without A Storm.....
Live Love Laugh....
Sure Fine Whatever....
Hi lizzy
i was diagnosed 18th April
surgery 10th may
started tamoxifen 13th june
started radiotherapy 6th July
mine was all done at the same hospital site just different departments
i did feel like I was waiting forever but now on my last day of radiotherapy I think it’s gone quite quickly
good luck & sending hugs xxxx
See you've had lots of good replies
Here is a LINK to this months RT Thread/Group/Club.
The opening post has lots of good advice
There will be a new one come 1st August too.
Hope all is going well.
I was in High Wycombe for ops, Stoke Mandeville for onco and Churchil for RT. Plus so many other scans for other things. I think I've got a whole bingo card filled of hospitals. I did find it tiring but they were well tuned into who I was, no notes or info was lost. Can't complain at all about most of my treatment
Tamoxifen this link is from someone not sure about Tamoxifen but it has many ladies discussing their SE's and life on Tamoxifen
Take care
Leolday56
Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x
You’re welcome Liz
It does seems endless at the beginning but hopefully you'll get started soon.
You take care
julie xx
There’s No Rainbow Without A Storm.....
Live Love Laugh....
Sure Fine Whatever....
Hi Xjuliex
i have my last RT tomorrow, hurray!
I have an area of pinkish skin that’s it! I have got some aloe Vera gel in case accumulative effects break out in couple of weeks.
I was diagnosed end of May; Opp’ following week. I started tamoxifen a month ago and I can honestly say I have no side effects. I was extremely concerned about side effects and after talking to the consultant I decided just to take tablets and go with the flow. I do take them at night. I do know that I am really blessed I have spoken to friends who sadly have a variety of side effects.
Since joining this site I quickly realised that we all have our own way of responding to treatment and we all cope in varying ways.
Love to you x
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