It seems I'm a patient now!

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But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • Thinking of you all glad that hubs is surrounded by his loving wife and family . 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • So sorry to hear what you're all going through, and thinking about you all. It's good that you're all there, and have help with the practicalities. Xxx

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Former Member
    Former Member in reply to moomy

    Thinking of you all at this sad time,I lost my husband to lung cancer 17 years so can imagine what you are going through , you will never forget these times but you will learn to live with them. Sending much love and hugs take care of each other xxx

  • I think the emergency systems are all now in place, we even had my GP who is one of the two who specialise in cancer care, call in on his way home, very caring and checked him over so gently. Hubs is well sedated and we have numbers for rapid response if he becomes agitated at all, they’ve been out this evening already. They are all so gentle with him. One of the regular carers has got very attached and is feeling it, I’m not sure how much counselling help they get. 

    son, daughter and their partners are doing the night shift between them, I’ve been fed and sent to bed early with an Amitriptyline so that they hope I will sleep as I suspect I only got about an hour in the last 24, although I was lying down for a bit I couldn’t sleep of course.

    Hugs xxx

    Moomy

  • Sending some fairy dust back to you     Sensible to go to bed and let others take the reigns for a while  Difficult but try to sleep you need your strength for days to come . 

    Thoughts and prayers are with you 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • Wishing you some rejuvenating sleep . Lovely that you are both surrounded by your wonderful family. Good to allow yourself to be on the care receiving end for once. Sweet dreams, love and a great big virtual hug, HFxxxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • The rapid response nurses have just been out again as apparently hubs got restless again snd managed to turn on his side, pulling himself over; son was with him and rubbed his back, assuming it was itchy/sore, and called the nurses who helped reposition and gave him a further injection, son was coming to the end of his ‘shift’ and daughter has now taken over. Our kids are stars, they had planned this so that any problem would be on either of their shifts. The nurses reassured us all, and told me to get back to have some more sleep, with a hand squeeze. 

    Hugs xxx

    Moomy

  • I’m so glad your kids are with you and you’re supported so well, so much love to treasure. Hope today is a good day x

  • You have such loving and caring kids  being there for their dad and yourself. Such difficult times but between you all and the lovely support you are getting from rapid response team when needed you are making this time as easy as possible for hubs, sending huge hugs for all of you xxxxx

    SantababyHeart️
  • Hubs is gradually shutting down, extremities are paler and cooler. Hospice nurse has just been (with a student) to top up driver and the sedative has been increased. The family and partners have been totally amazing and I got such a lot of sleep, they insisted they took turns and needed to call out rapid response team a couple of times which is why the sedative has been increased. 

    I’ve just insisted they have a break too, after all I think I probably got 11 hours sleep (!)  the dogs need a walk etc! 

    Hugs xxx

    Moomy