It seems I'm a patient now!

Glad to hear that you now have some joined up care- pity it took so long but hurrah now it has happened.Great to hear that Hubs feels better too. Keep up the good work but remember to have a few rest periods yourself too.More hugs Kwissy  xx

Hubs is off his food again! Pah! Just when I thought we were over that hurdle…..

Hugs xxx

He’s just managed scrambled egg on toast though….. 

hugs xxx

I think it's a glass of wine night again for you tonight .  I'll join you as had to cancel our evening out as hubby went to bed at 6pm and when I woke him at 7.30pm he wasn't refreshed enough to get up ,  He struggles with fatigue if he exerts himself after his spinal injury so I'm having a vino and control of tv x

I'm very happy to join youGrogg 

moomy I've been following your progress over the last 48 hours. That it took so long is unmentionable but at least things look better for the days to ccome.Will your husband be able to keep this GP? I'm so pleased it rained.....you're still doing too much. My Dad says ' a weed is a flower someone has yet to recognise.....' It's  such a good approach to the garden!

Take care of yourself. Love Karen

Lacomtekp. Cheers .  The bar is open x

Wrote a reply, it posted twice and then I deleted and it deleted both! Pah! 

Had a phone call from a very Irish Registrar at Oxford, apologising for phoning at 8pm but he’d agreed to get in touch after talking with GP earlier. He too feels hubs had an opiate overdose, interestingly he said they find that drugs like Oxycodone get used for cancer pain, then when treatment is under way and working and the pain decreases, the pain killer becomes toxic in its own right. Said that although the drug life is 12 hours the effects will still be ‘washing out of his system’ for a while yet.

ive read about the interaction of Citalopram and Haloperidol and am going to request a different antinausea at night. I realised why hubs suddenly felt sick, I’d not given Citalopram with a meal. 

I do feel generally much easier in my mind that it sounds as if things (immunotherapy)  ARE working (though of course a scan will tell them far more, later this month) though the Registrar couldn’t be certain without results. So we may have longer, just need to get hubs less sicky, better in mood, eating more and doing a bit more exercise! (Not a lot to achieve, eh?) 

Hugs xxx

Morning. It sounds like they’re finally doing some ‘joined up thinking’ and working better together and hopefully they listen to your research and help you with those drugs. Hopefully as the hours roll on he’ll start to feel better still. Well it is a lot to achieve but if you don’t aim high!!! Here’s hoping xx 

I’ve not been about as this week I was supposed to be away with my daughter but of course is cancelled and we replaced it with day activities, glass workshop yesterday and Hampton court palace today, kitchen still being done too, busy week!

Hope it’s a good day for all

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Not too good a day so far, but he did have 3 Weetabix…..nothing since.feels too sick (but he’s on the max dose of metaclopromide) 

put in a call about the Citalopram to GP, the Doc who did so much in the last couple of days is choc-a-block (what a surprise?!) and I just phoned back, as the duty doctor hasn’t been in touch, will be phoned about this next Tuesday! So I phoned the hospice at home team instead. 

Upshot is that she will urgently request a swap from metaclopromide to Cyclizine and suggested we stop Haloperidol anyway as from tonight. She also suggested a swap to a different SSRI antidepressant which will act ok with cyclizine and is quicker acting than citalopram anyway. Sounds good. Thank goodness for some sense from SOMEONE! 

When I told her about my research about Citalopram she said Dr Google shares scare stories so i said I was a retired OT and had looked at the BNF site, snd explained about his cardiac arrhythmia. She then understood and agreed she would have done the same! 

It seems I still need to be on his case!!!!

Hugs xxx

I’m regularly picking some of our soft fruit to freeze, this is today’s lot of blackberries….

hugs xxx