It seems I'm a patient now!

Hi moomy  

Firstly I would do what your gut instinct tells you.  As public health england havent got back to you or said anything more publicly about it (and neither have DH ministers), its clearly still going round in your and many peoples mind. But you have done a fantastic job in this country to make the issue real, by sharing your experience through LOTS of media activity,  So you have played a really big part already.  So my advice is think through the risks and benefits to YOU personally of doing this, and then decide as a result what you would like to do.  We will be very proud of you whatever decision you take. 

I suppose asking more info about what it will involve wont do any harm and might help you make your decision. I suspect the film crew will come to England as they film others involved too. xxx

seaspirit44 what a wonderful thing to do, singing whilst you are being treated.  Your medical staff must adore you.  And good luck with your bladder botox, shame its not till September.

xxx

Eddiboy ... hope you’re doing ok in the run up to Monday and you had a good treat yesterday. 

Hugs xx

Thank you Eddiboy, it takes away all the trauma. I hope Monday gies well. You will be so glad to get it out of the way! xxxx

Hi all, 

thank you very much for replying about my post, I suspect I’m going to email this person and find out what might be their intention; how they would use me and any info about my case that I give them.

I know this is still all up in the air since I’ve got no further with PHE therefore it’s still ‘current’ at the back of my mind. I’ve tried to block it out but when I get letters like this, of course it all comes flooding back, together with my inevitable worry about the poor skin clearance which is deemed to be ‘sufficient’. Who knows? It will be a worry that is inevitably there all the time, sometimes more to the fore than others.

I guess we all have the ‘what ifs’, and I really wonder if PHE will acknowledge that my ‘what ifs’ have been generated and added to directly by their failure.

I think I’m mentally strong enough to handle all this again, and I certainly had the backing of my nurse counsellor to battle against PHE when it was all mooted before. I have a personal link to a solicitor who will point me to a good litigation one should I need it. 

Hugs xxx

Hi Eddiboy,

hope you’re planning on a really good, full, enjoyable weekend? 

Big hugs xxx

• Oh.,that is so hilarious!!...I hope you dont mind but I told my sister whos’ husband is now having trial drugs intravenously for his cancer xxxx

Think the worst I’ve dealt with (so far!) is trying to think of a CD to get played when having a CT so that I WOULDNT sing or jig around! Haha!

hugs xxx

Getting more information is a good plan moomy ... sending a hug xx

Thanks all. Having a sooooper chilled weekend as to be honest Im paranoid of catching anything before Monday.

Had a lovely meal out in the Hathersage in the Peak District yesterday lunchtime Flossie25. Had to dodge the heavy showers on the way back to the car, which was a shame as we might have done a longer walk/explore

Now putting feet up. Slightly weirdly Im planning to binge watch Greys  Anatomy this weekend. Didn't watch any of it first time round so started with season one on Thursday - now I feel addicted.  

Hope everyone is enjoying themselves

xxx