It seems I'm a patient now!

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But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • Oh  my love is with you and your family, you are all so brave. So pleased that the response teams have been on hand and so caring. I hope you can have a peaceful day with your loved ones xx

    SantababyHeart️
  • Waiting now for the hospice team who will fit a syringe driver, but after they have given him more Midazolam as it certainly seems to be helping keep him calm. 

    none of us have had much sleep, I’ve phoned to delay the carers till the hospice team have been.

    Hugs xxx

    Moomy

  • Just love and thoughts xx

  • My thoughts are with you all. Take some comfort in the fact that you are all doing everything within your powers to make this stage as easy as possible for your dear Hubs. No one could do more.

    Hugs to you all.

    WallyDug

  • Have they given you an update on how things are progressing?  I know it's hard but I think knowing what's happening will help you and your children.  We were told once they put a syringe driver in for my mother she would gradually get more sleepy and then lapse into a coma from which it would just be a matter of hours.  I think it was after just under a week she suddenly became very alert and bright and asked for some cottage pie I made.  She ate a few spoonfuls and chatted more than she had for a while.  The following morning she just didn't wake up. She never woke again as she'd lapsed into a coma.  It wasn't for a few hours though it was for 3 days.  Hospice nurses quite surprised as not normally that long.  This was over 30 years ago though so medication has changed.   We were glad to be prepared though and that it was a gentle end.  

  • Bless you all, hospice nurses (including our favourite lovely one) have given him an injection again and fitted a syringe driver, they will be in daily. She said as he’s gone down so fast within the last couple of days, it will be days now, if that. 

    all the family plus extended are here, bless them. 

    Hugs xxx

    Moomy

  • Sending love to you all. Thinking of you XX

  • Thinking of you all @moomy and sending love xxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • My GP who is the musculoskeletal person plus one of the two with cancer special interest in the practice came by virtually on his way home, lovely chap. He checked hubs over and was happy with how the nurses are managing everything, asked if I was getting enough rest and was I alright. Obviously I shook my head…. And tears were about to come….. Obviously he met our two kids too, so knows the family though briefly. Syringe driver is working wonders, hubs is peacefully sleeping. 

    We have been fed, daughters partner raided a nearby supermarket for really tasty healthy food, and made sure everyone is both eating and resting afterwards. 

    Hugs xxx

    Moomy

  • Former Member
    Former Member in reply to moomy

    pleased to hear that family is all around you, and that you have all been well fed.

    Thinking of you all.  Peace to your household.

    Judith