It seems I'm a patient now!

Glad the  MRI showed nothing sinister moomy,  it sorry the pain is so bad. I’m sure you are right about the grieving component, but all the extra activity isn’t helping I’m sure. I hope you get the referral soon.  Maybe they could give you an injection . Sending love and hugs xxxxx

I’ve decided to resume more yoga, a little each day. I know it’s keeping me mobile and now that I know there’s nothing that I can harm, I will try and do some each day. 

Had a lovely call from the volunteer counsellor, we spent a few minutes chatting, also the district nurse who will be on duty over the weekend too, she’s lovely.

hugs xxx

Hubs has been so sleepy most of the day after his early rice crispies start, but woke up to watch tv this evening and has found a Netflix film to watch! Sometimes I feel he’s fading away and then he perks up again! I said this to the hospice nurse and said he used to be a strong man, she said that yes, this does sometimes happen.

Son is taking his turn sleeping in their campervan overnight, daughter is over at Snape near Aldburgh, tutoring in a big room with her mask on! 

Hugs xxx

A horrible thing to think about - I was really quite concerned about finance, the carers we have are paid for by CHC and that’s for ‘end of life’ care. I was thinking if it goes beyond their estimated time then I would be faced with a bill. That was something I hated to do, but voiced to both hospice and district nurses yesterday. However they both reassured me that if it goes longer they will simply reapply for funding and both said it’s never been refused. We are financially ‘ok’ at present but I’m aware that care costs can mount up very fast. 

Son has gone off to his teaching, it was good to know he wasn’t far away if either of us needed him during the night. I’m sure I sleep a bit easier if either of them are parked on the drive. Thank goodness for campervans! 

Hugs xxx

You are so brave moomy, facing up to the horrible things. Sending hugs xx

Bless you seaspirit44, but I have to think of stuff like that as I will be managing just on a pension. Hubs gets DLA and of course that goes when he does.
And I can’t ask the kids for help (even if I wanted to which of course I don’t!) as they have been cutting their work knowing that they will struggle emotionally, plus of course they want to be able to drop everything on the spot when needed. One advantage of freelance working is that you can explain about not being able to guarantee being able to do gigs, but if you can’t, then you’re not earning of course. 

Hugs xxx

Son got back so I rapidly mowed the lawn while he listened for hubs, we now have a baby alarm which is handy (thanks, Amazon for your rapid delivery) 

Son was wanting to do it but the fresh air and gentle walking was just what I wanted.

Back is bad today (not sure why) and I’m really needing my pain relief and caffeine. 

Hugz xxx

Speak to MacMillan about finances to get peace of mind snd you can Aldo check entitled to .  It's good to be practical about these issues.  You will get 25% council tax discount but may also qualify for pension credit , attendance allowance for your own health needs etc .  Hope you have a good weekend x

Attendance allowance is currently £60 a week,  and your back pain would probably qualify you,  though you'd need an assessment. You might also qualify for council tax benefit beyond the single person reduction. You can check here:  www.gov.uk/benefits-calculators

Thank you all, will look out for benefits, the Macmillan helpline is great at that, I know. I did do a search for pension credit but our income was too much. Penalties of trying to save against any eventualities, eh?! 

Hugs xxx