It seems I'm a patient now!

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But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • Hi , glad hubs responded well to hospice nurse, I think it’s so hard for you to have to deal with all aspects of his care, physical and emotional. And partners often don’t take that kindly to suggestions from their nearest and dearest! His appetite sounds much improved which will surely also improve his mood. Such a difficult time for you all. Keep stomping!! Love and hugs, HFxxxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Moomy I woke up thinking of you, how was your night Prayx

  • , so hard that you have to keep chasing everything up yourself, as well as everything g else. Sending hugs xx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • Had a rather better night though I had odd nightmares. 
    Hubs has treatment today (just finished but has an iron infusion too) 

    In spite of saying he feels rubbish and often sicky, he had a bowl of Ready brek with some extra loganberries from the garden, and I made marmite sandwiches with a hard boiled egg (it’s always been our ‘travelling’ combination!) and he scoffed them too, so that’s two reasonable meals already today! 

    He’s bagged a bed for today’s treatment and we’ve seen the specialist nurse who is getting pharmacy to check what the best antidepressant to mix with all the rest of his meds. She’s also going to get a dietician to phone to see if there’s anything that I’m missing.

    They want to continue with Avelumab as once stopping immunotherapy there’s not any possibility of starting again. But there are a number of other drugs to try; so even though this cancer is terminal they are really going to try and improve quality of life for him, I just hope right now he’s at rock bottom and will come back up for a while! Axitinib is the drug they’ve stopped and it’s the one that has the worst side effects but is a quick acting one on the cancer, so she says it’s good that he’s had a couple of complete courses, as Avelumab is a slower acting drug. 

    Moomy

  • Specialist nurse here has checked blood results again and thyroid levels are dropping slowly (result of Avelumab, apparently) so she’s going to get a low dose of Levothyroxine started. She’s checked with GP practise and they’ve got Citalopram getting prescribed. Both of those will help, but as they will be starting together they won’t know which has done the job, haha! 

    Hugs xxx

    Moomy

  • He’s just managed to eat FAR more than usual, a pack of biscuits with a coffee! 

    waiting for pharmacy and then transport now 

    Hugs xxx

    Moomy

  • Sounds as if you have had a good review of the drugs - so many interact which causes other problems.! Hope you get some action soon on the pressure areas,perhaps a ripple mattress would help, District nurse should have access to one,although again it may be an area thing. If all else fails speak to the Hospice again - all these services should be working together.

    Hope you both get a good night's sleep and recover from your long day. More HuggingHugging

  • I’ve got a third meal down him today, plus a small packet of biscuits! I suspect the gentle talking to by two different specialist nurses plus a probable time scale for feeling rather better may have had an effect. I hope so, anyway! 
    hugs xxx

    Moomy

  • One exhausted hubs went to bed, I will wake him for tablets later….

    Hugs xxx

    Moomy

  • He was just a tiny bit less negative when we said goodnight after his tablets tonight…..

    hugs xxx

    Moomy