The operation

JollyG, Carry On should’ve carried on!! In fact when I’m settee bound for a day or 2 after next chemo I’ll try & get some from somewhere. I love the inuendos to!! We must have a similar sense of humour ;-)

So glad you’ve had a lovely time away, shame you couldn’t go on steam train for old times’ sake - maybe next time eh?? 

Hope appointment ok tomorrow - let us know how you get on xx

There's been a few on recently on itv3? Certainly before and over xmas. Carry on camping, i love harriets laugh and her poor hubbys suffering when she takes charles hawtry into their 2 man tent. Lol

Appointment not til tues, but once back,  full on school, work, sports, and stuff routine starts again, which includes the next round of appoints, which means brain back in full bc coping mode

As both Jammy and my big sis nagged me I called GP now have kick ass anti histamine but no idea what has caused the rash. I am normally a rash type person having very fair English rose skin and strawberry blonde hair. So I know to avoid lots of smelly soaps and creams so where this little bleeper has descended from nit sure. GP warned tabs could knock me out!! Woo hoo another 12 hour marathon.

Maybe we could raise money by sleeping???

Molly oh the positive joy and bliss of your own loo, bed , shower linen, endless list . Linen not slept in by the world and his ma. 

 Sat typing this on phone OMG it will be out the window in a moment!!!

A loo story. Friends who came 2 nights ago. They have a 10yr old son. Think he may be on the spectrum. Anyway he was greatly disappointed to find that once again we were a home that did not have a heated loo seat. Apparently when they lived in Japan...... yawn .,,,, all loo seats were heated. Well blimey I’d never get hubby out of there if we had that!!! Then again for those heading for RT and CT you might just appreciate one. Mmm thought

Jammy / a chocolate pen! Santa or a well meaning relly buy that! It’s just smacks of two ton of Vanish required.

Jolly I’m back Monday and trying to firmly shove that to back of brain. It’ll be the What next . Then again not so bad as my youngest returns to work then having been off most of last year to sort out her eating disorder. I’m more anxious for her than me - she’s the nurse.

Bigguy maybe when and I mean when we all meet up we can have a festival of videos, Prosecco, choccy pens and the essential mushroom coffee party

Sorry if I missed any of you off the list. Couldn’t be doing with juggling laptop and phone tonight .

So off up the hill to Bedfordshire . Challenging as we live in s bungalow . Hey ho

Sink or swim 

We all stand together

Take care

Leolady xx

Good evening ladies. 

Apologies I’ve missed out on a few goings on. Just too much going on in my head to sit down long enough and concentrate. 

Eventually got to see my original surgeon today re my ribs and bruising. Had an ultrasound on armpit and all seemed fine. He’s referred me for a bone scan just to check things out. 

Would you believe they didn’t have a record of me in the Breast Care Unit!!! I had my surgery in a different hospital and was transferred to this one for oncology. My doctor sent a letter in November to transfer me over and nobody dealt with it. 

I now know why I haven’t seen anyone at all since my surgery or been called in for any scans/tests, you just couldn’t make it up could you. 

LL I am hoping for a long long sleep like you have just had, struggled for the past few nights. I love your idea of us having the frog song, the words are very appropriate. 

Thanks for the info Ali. Pleased to hear that you think it’s not as bad as some of the horror stories I’ve read. 

I remember your post when you got your chemo date through. I’m sure I will be the same because it becomes a reality when you open that letter. 

Joanne I spoke to the oncologist about my holiday which is in May and he said there’s still a chance I could be finished with that and radiotherapy by the end of April. Do you have have a cut off date that you have to give before you lose more than the deposit?

Jolly I’m glad you enjoyed your few days away. It’s very wet and windy here too and just seems to bloody well stay dark most of the day. I hope your appointment goes well on Tuesday make sure you update us as soon as you can. 

I know there’s been the odd discussion re wigs and hats etc on here. I am thinking about what I should do. My BCN gave me some leaflets with some wonderful hats etc and they look amazing, mind you the models with them on look like I’ve never looked lol. I don’t think I’m brave enough to go commando and it’s too bloody cold at the moment anyway. Any thoughts ladies?

Being a part of this wonderful group just gives me strength, I hope everyone feels the same, you’re all amazing. 

If anyone has got an appointment/ treatment etc tomorrow, I hope all goes well. 

Xxxxxx

Leolady - glad you went to Drs. Hopefully your sis has a bigger influrnce on you than me a random virtual chum or else I might start leading you very very astray.! Yep choc pen a gift from a relly but we never made it to shops for chocolate as decided to do some craft stuff instead. Hoping she forgets about the chocolate pen!

Jackie - how are you my love? News still sinkimg in Im guessing.

Jolly/Bigguy - Im a child of 70s too so cant beat a good carry on film. Good call to fill a sofa day with them. 

Molly - glad you are home you will feel so much better in your own bed. Hope recovery goes well.

Well just persuaded hubby we should blow a bit of money and have a family day out on Saturday. Will make a surprise treat Libby to mark the start of her birthday week. She doesnt need another treat really but in the mood to make the most of feeling well at the moment (numb/achy arm excepted) and make the most of no dance lessons which usually take up most of Saturday. So thinking we may go to The Deep at Hull. While since been there and they have penguins...me and Lib love penguins! 

Bed beckons cant get enough sleep right now...nodded off whilst "on duty" earlier. Lib playing happily in her room, laid on my bed and was listening to her chatting to herslf. 30 mins later she pops her head around door "mummy i guessed you were asleep so left you a little while, was just coming in to check on you!". 

xxx

Just want to ask who was it who stole my 'sleep fairy'. Hope fully you Jacks as it would seem from the frog team you are in most need of it at the moment. 

I got the 'hot flush fairy' last night. 

At around 3.30 am I had a great thought. If we took all our hot flushes and turned them into a source of 'renewable energy. Women could rule the world. We'd then get rid of all the *********hole males who seem to think they know what's required. We could use the money to good use. Just a thought. Does the frog team have a scientist in it??????

Jacks the NHS is amazing when the chips are down but  boy do they do a 'right royal c****** up' too. You may remember back in November that they were going to send myself and another lady home!! They'd sort of forgotten us!!! If it wasn't for a seriously arsey staff nurse we would probably still be there. As most things are electronic these day how in the blue blazes did this happen. Maybe you could ask. 

Ah Jammy envious I loved The Deep when we went there, great choice. But take it gently hey! Ah no ....... big sis has a different power over me. She broke my arm when I was little. Honest. So she always threatens to break it again if I don't do as I'm told. Feel free to lead me astray. As you have probably guessed I lead a quiet sedentary life in a tiny village. As an OAP I don't get out much. Believe that if you like.

Those Christmas decs need shifting. I don't need bad luck for not putting them away. Heaven knows what awful thing could befall me!!!! Hubby in a good mood so shall use that to help me shift stuff.

Have a good day

Take care

arm in arm

hand in hand

we all stand together

Leolady xxxxxxxxxx

Jackie - apologies sweetie, I think we posted at same time last night so only just read yours. Glad surgeon being cautious and checking the rib pain out...sure to be just post op niggles and good that scan was clear. I kind of worry that I havent had any scans yet if you know what I mean once in a while I get the "what if" worries! Keep us posted re your chemo date and we will be here ready to distract you....might have to ask Leo to do a few more "knickers in trouser leg" occurences just to keep you smiling! 

I think if I need chemo I will try cold cap, purely as I think Libby impact could poss be lessened that way but if it goes, it goes I guess all we can do is face it head on knowing thousands and thousands of people are in the same boat. The main wig shop which serves my area of West Yorks in Leeds is 2 mins from my work so already imagining getting a few girls from work to be my style advisers! 

Cut off for my hol is mid March so no need to do anything yet. If it is chemo and rads wont be done till late June so would def need to cancel I think but really its justva week in the sun we can do another time. I know Libby would be upset but we will do something else over the summer for sure. I'm more concerned for your hol as I know its not something you could move as easily as its a much bigger holiday so thats great they think you might be done by then, will keep various things crossed!

Leo - a beautiful but annoying child who goes by the name of Libby stole my sleep. Rare she wakes up but she was struck by a mystery "bad tummy ache" at 2a.m. It was so severe she needed to come in our bed....but cleared up after 1 cuddle and she then slept wedged on my good arm whilst I struggled to get operation side comfortable rest of night! 

 Hot flush fairy doesnt visit me yet, I get the PMT and period pain fairy. Give it a few months and the hormone drugs will fast forward me 6 years to menapause land!

Yet again just been to door to collect parcels from postman in dressing gown. Just set me and Lib a mission to be dressed by midday as parents coming at half past and we are all going for walk along canal and doubtless a sneaky coffee in the pub next to it.

Oh Leo - we've made stuff with the choc pen. Was surprisingly straightforward and we have a fridge full of choc shapes etc now and a childs face full of surplus choc!! 

Afternoon all

LL Glad you managed a 12 hour sleep, shame it did not last, hot flushes as well now, you and me both.  Well done getting the rash sorted.

MollyRiver

glad you are home, always the best place to recover. And yes your son is right you are a Superhero a cancer fighting Superhero. You are a star.

Jammy

A chocolate pen kit, well bet you both enjoyed making it.

Jacks

glad you got seen yesterday helps to put your mind at rest.  No record of you in the Breast unit, only the NHS eh. Lets hope you will get bone scan CT scan Heart scan done quick as they like to do them before chemo starts. 

I have a wig which I have worn once, I shaved my head 27 Dec.  I have some bamboo wig liners which I wear under my wig and also under all hats.  I have a couple of bandannas and a couple of hats, I also have 2 sleep hats as your head gets very cold.  I wear the bamboo liners under all hats as otherwise the hats are difficult to get on and in the right place as your head is like Velcro.  I am getting my wig lady to make me some hair to go under my hat, its on a headband its just fringe and bit hanging out the sides and back, none on top but when you put your hat on it looks like you have full head of hair, which should be easier and more comfy if the weather gets warmer.

Bigguy

Yes Carry on films are great, they just keep popping up all the time.

Jolly

Glad you enjoyed your time away.

Yes chemo day was yesterday cycle 2, did not get picc line done as local hospitals are not doing any minor ops at the moment as they are full.

So chemo nurses got me the best cannula man around and after arm being in hot water for 20 mins he got it first time, I was sweating I can tell you.  Had to have a heat pack on my arm all through the chemo as my veins were very sore and I could see the chemo tracking up my arm.  Been told to take paracetamol and keep a heat pack on if it is still sore.  Chemo Doctor on the ward had put in a urgent request for a Picc line to all hospitals near me as she wants it done before the next one.

Came out or chemo unit and was a little bit light headed this time round, good job I was not driving.  Had a terrible nights sleep but probably due to the fact that I did not get my steroids until 4pm as chemo unit were running 90 mins behind.  Hoping for better sleep tonight as had steroids at 8am.  All good today still feel a little light headed and eyes feel very dry which is a new one on me.

Hope everyone is well

stay strong

Unfortunately it wasn’t me that stole her. 

I’m making up for it today, I’m still in bed!!!!! Haven't nodded off but just sorted out my online food order, replied to emails, looked at headware and booked an appointment for a wig consultation for next Wednesday.

My watch keeps telling me to stand up every hour, I just tell it to p off. 

Yup I agree re the NHS. It was almost farcical yesterday, a nurse red faced and running around, the consultant looking suitably embarrassed and me having to reel off the grade, size and other info re my tumour for him to write down. It’s sorted now but trust me I will be making sure that nothing like it happens again going forward. If it wasn’t for me having the problems with my ribs I would still be off their radar. 

Love the renewable energy plan, I can do some studying whilst lying here and get my degree course up and running. It’s the getting rid of the a***hole males that excites me mostand will spur me on to study hard. 

Did the Christmas decs early this year, finding glitter in my mushroom coffee became a bit annoying. 

I think I’m going to have to get myself up and showered as my diabetic cat has an appointment for blood tests at 6.00. We had one last night for 6.15 and she just knew it was happening. We didn’t get the basket out but as soon as I approached her she was off like a rocket. I said to my OH she must fully understand the English language...... right let’s get her, you hold the basket I will drop her in, I will tempt her with treats etc etc.

Put the treats that cats make holes in the wall for down and she looked at me with a face that said ‘you must think I’m stupid’. 

Anyway tonight we aren’t speaking to each other about it the V word is banned, doors and Cat flap closed, wish me luck. 

Hope all of you froggies are having a good day xxxxxxx

Thanks for the info on the wigs Ali. I have seen the fringe pieces that go with hats. For me that would be a massive plus because I’ve had a fringe my whole life so when I go on Wednesday I will be asking about that straight away. I received an email back from them saying that they also have hats and scarves etc so hopefully it will be a one stop shop for me. It says on their website that they take the NHS voucher if it’s made out to them, I don’t even know what that is??

Mmmm well I haven’t been asked about a CT scan or anything re my heart. I’m only getting the bone scan because of the problems I’ve had over the past week. I really hope it doesn’t delay things for me as now I know I’ve got to have chemo I just want to get it started and over with. 

I really hope they get you sorted out before your next cycle. My OH will be coming with me to my sessions so I won’t need to drive afterwards either. Still filling me with dread at the moment that’s why I want to get things started so that I don’t have too much time to change my mind. Have read that dry eyes can be a side effect, it said to mention to them and that can give you something for it. 

Hope you sleep better tonight xx