The operation

Hope your rash has improved Leolady56 xx

Good morning from a damp Bucks and tbh a dreary Bucks too.  Still lunch out today (and yesterday with a pal ) with friends

  are you still in hospital hoping not or we will have to come with an escape committee

Flossie25  scratching away still now moved to another cream and just go commando when indoors. Plus scarves for lunch dates

So Friday sees Herceptin No3 and first RT for me, two different hospitals and an hour's drive apart! Plus tomorrow start Letrozole. Fun filled few days ahead for me hence having some genuine jolly times before all this poop

And my new SE is .....................................

TINNITUS. Pardon............... what did you say? TINNITUS

Been driving me loopy but a side effect of Herceptin, so I hear!!! Fine if there is background noise but sleep is an issue as it wakes me up before it go goes (80's)  I mean really I did get a little WTbleep. So GP sending to my lovely onco and he will be in clinic on Friday when I get the jab for Herceptin so......... watch this space.

Do we all think there is a slight chance I can get through RT?????? Without SE's, I have been smothering boob in Aveeno (other creams are available) and in fact I resemble an oil slick

There .... couldn't post a pic at all last night so today pics galore. I think I may have been in trouble as I dropped the fbomb - think I was temporarily sent to the naughty step. In my defence - your honour - I had just read that the Letrozole I have been given is being discontinued!!! Yup so i was a little stressed.

So where are we all in the fun and games of treatment?????

Hope you are all in a good place emotionally and physically

Hugs to you all

Leolady56

Well ladies cycle 6 has landed me in hospital.....bleep, bleep and few more bleeps.

 Have had a cough for last few days and started slight temperature this morning. Neutrophils are 0.47 which is enough for them to keep me in. Waiting for rest of results to see what infection levels are etc. Sitting in accute oncology at mo waiting for bed. She said might only need to keep me overnight but have heard that before....last time it was 4.

So so fed up ladies...another school holiday of visiting hospital for poor Libby when we should have been in Greece today. It is just such a lot of poop...struggling today. Just gotta hope this is the last chemo can do to me!

hope you have managed to escape hotel NHS.

xxx

JammyR 

Oh no, blinking not good, was hoping you were going to get away without another hospital stay, when you said you had a bit of a cough I thought oh no.

Right all you can do is rest and make the best out of a bad situation, and as for Lib I think an extra special outing in the summer holidays would be good, you will be feeling much better as well and all this poo can start to be put behind you.

Big hugs and fingers crossed for your Neutrophils.

Hi JammyR,  

I've just escaped today. Feeling much better , still on antibiotics . Blood tests showed my inflammatory were now down. Another appointment to go to now  physio for my chest.

Just taking it easy for now.

Hope your feeling better soon and they don't keep you too long. 

Poor Libby she will be worried about you.

This last T cycle has a lot to answer to for causing all this trouble.

Big hugs

Jan xx

Hi Leolady56, 

Just escaped from the hotel nhs. So glad to be home.

I can't complain about the treatment as the nurses work so hard. 

Your scalp sounds sore , it could well be the wig in th heat that we have had. Hope it clears up soon. I was a bit contious on our my lack of hair in hospital and didn't want to take my hat off. However that hot weekend soon sorted that out  commando it was  , soon forgot then wondered what the sympathetic looks were all about lol.

Even work colleagues got to see the new grey bum fluff hairstyle.

I am due my 4th herceptin on Fri , must phone to see if I can still go. Don't like the sound of the SE, hope you can get rid of that unwanted noise in your ears. 

Hugs Jan xxx

Ahhhh JammyR, this is not supposed to happen!!!! I really feel for you as I am following you in our treatment. Just had last one today so will have to wait and see what it brings with it.

Hope you feel better soon, and are up and about.

Libby will be fine, we forget how resilient kids are. All she wants is mum better. Plenty of time for days out etc.

Look after yourself and get home quickly.

XXXX

JammyR 

Ohhh bleeping heck and other phrases which would put me firmly on the naughty step. I think Team operation get the prize for how much ridiculous poop can be had on this ride.

Is this a revolving door.... one out Hotel NHS and a big hooray for that but one in

Glad to here you rocked bald. I mean men do it all the time. I did go with wig - Wilhemina - today but now I look like an advert for sudocrem. Except rash on my head. 'Vanity thy name is Lindsay'. My fine bum fluff is red with a grey Mallons streak. I sent a pic to the eldest who said very kindly 'Oh you now do look like a cancer patient'. Well darling daughter THANKS!!!!!! And you look like someone who has been cut out of a will!!! 

Ladies please ............  can we all meet up one day and yell WTF we did it. And ban anything related to BC??? PLEASE

Leolady56 and her itchy mate Lindsay

JammyR Really hope you are only in for the night, so sorry to hear the last one has got you. Exactly the same happened to me, you think it’s all over then bang it comes and bloody gets you. I’m sure our resistance levels just get so low some crafty bug manages to creep in and grab hold. Thinking about you and keeping everything crossed. 

 Pleased to hear you’re out, if you’d been there much longer I think we would have had to come and get you!! 

Leolady56 Well I think your new alias should be Rash56. Just a thought here.... when I first wore my wig I got a rash that itched like mad with loads of pimple like spots, so I slopped aloe all over it. I then bought a bamboo wig cap and wore it under my wig and it cleared up and touch wood it’s not happened again, even with the hotter weather. It just may be worth a try, that’s if you haven’t already done so. 

I have at last got a very thin layer of hair (and I mean thin) The good news is that so far it’s come through dark, that’s not to say there’s not some grey hiding somewhere. I’ve now had the courage to show another friend and today my older granddaughter. She’s staying with me today and tomorrow and there was no way I could wear a wig all of that time. She was cool with it, she said it was funny, cute, soft and I looked pretty, not a bad reaction lol. 

My phone is charging so can’t look back on posts at mo so how are you Deb09,     Aspen   Jacmatholmad , I bet I’ve forgotten somebody , if I have sorry. Xxxxxxx

Hi all,

JammyR so sorry to hear you've ended up in the lovely NHS hotel! I bet that miss Libby is looking after you well and as someone said above kids are so resilient....I'm sure you will both hatch so,e lovely plans for the summer. Crossing fingers it's just one night!

 really pleased to hear theyou've escaped, hope you kick those SEs into touch

taralou CONGRATULations On last chemo, bloody well done lady 

Leolady56 that idea from @jacks77 sounds an idea perhaps? For the wig rash at least......I say rads you'll sail through as you've well and truley had your fair share of chemo poop

well the tamoxibollox has struck me, it's been building up and after finding I had a few issues in the gynae region at my last onc appointment I went to GP today. So I'm back on the waiting for appointments and results, although hopefully not C related....and hopefully not too long to wait, apparently 4 weeks for ultrasound and about 6-8 weeks for gynae consult. 

Take care all on this bloody roller coaster!