I would say been feeling a little tireder last few days, but that could also be down to post cold and too much emotional baggage to deal with, so who knows. Skin definitely lot pinker this last week, been told that it will continue to develop over next couple of weeks whilst the radiation still takes effect, so to keep on with creams for next 2 weeks, after that i can stop the steroid one, but continue with the moisturiser one whilst skin settles back to normal, but that could be a good 4 weeks or so, as redness fades i can start to reintroduce my normal shower gels etc gradually. Tiredness/fatigue will still build up over the next few weeks to month or two, so just got to see how it goes i guess, but we mustvall be used to the waiting game by now.
How many you having again Jacs now you've finally got to start? Honestly though the 3 weeks have flown by
Have you to take hormone therapy too? I'm on tamoxifen about 4 weeks I think and only side effect has been fatigue.....so really looking forward to that with rads too. I wonder if it gets worse or stays the same. Some days better than others, walking definitly helps.
i have 18, 3 boosters on the end.
were you given creams, just been told to use an aqueous one. Plumped for Aveeno will see how it goes.
I was given creams, one is just zerobase, emollient cream, no no hormones for me as I'm technically not classified as having a breast cancer, mpre a cancer in the breast, don't ask long story! Lenny was a phyllodes tumour, rather than a 'standard we know how to treat it' BC. So no chemo as doesn't work on a PT, most don't get RT either, but i didn't have large enough clear margins as a PT needs a good clear margin to prevent local recurrance, hence the RT too.
Not many cases of it in general, so not amny others on here to discuss treatment etc etc
Yay fab that you have completed RT Jolly! I know you have a rubbish week but least you can cut out the daily trip to Chateau NHS now.
Jac loved the play area...even Libby would be too grown up to 'play'...bet your daughter was mortified!
Well I feel ok just bored and bit anxious about what this chemo malarky is doing to me. Been in hosp 24 hrs nearly and so far saw Dr in A&E and one flying visit from ward Dr this lunchtime. He was reassuring enough said as I am well in myself guesses another day of iv antibiotics would be enough but he assured me "oncology will be down to see me this afternoon"....nobody has been so dont know plan is for when they are going to recheck bloods and whether they want me to have the injections to boost white blood cells. Think I will push for more action tmrw.
Interestingly I was approached re a trial whereby I would come off iv antibiotics sooner and replace with oral. That could poss get me home sooner but as with all trials they said may prove zero benefit to me and slight risk wouldnt be as effective. Much as I want to go home dont want to risk being re-admitted so declined the trial.
Oh well hubby and Libby will be here in an hour then I shall attempt a decent nights sleep.
But all of you are one day closer remember. Don’t yell ‘but to bleeping what’. Coz this ship ain’t going anywhere’s until we all throw the lifeboats over and I never did like the name Titanic. And I can’t play a violin and I look nothing like Kate. Well only if you squint with the sun in your eyes. Last pic of me looking bleeping great on Walking Post. I am rocking a look in soft play with Zippy. Anyone know of a good chiropractor!!!!!!!!
Well I’m still ducking and diving. And you are all still smiling your way through work poo, chemo poo, RT poo, weird meds poo, family poo and no doubt the real stuff too poo.
But everyone is there cheering one another on and up.
So all I can see is a party by the end of October when it will be finger flicking from us all
Right now. Do I go to sleep or do I stick around to shed more pearls
Hope you managed a bit of rest overnight inbetween observations and iv ‘s!!
Hopefully, your infection markers are going down and neutraphils are going up today and you’re feeling a little brighter. Make sure you stamp if you have to see an oncologist, this morning if possible. You must feel like you’ve been abandoned!! Poor lady :-(
Sounds like Libby’s sorted and has probably got her daddy a)very organised and b)round her little finger!!
I eventually saw an oncologist yest evening. He just said continue with iv antibiotics etc but he did get me a bed on oncolog ward so hopefully that means whenever I see a Dr on rounds it will be an onco. I havent had bloods done since admitted but assume will be due some today and he was still dithering last night about whether to start the injections to boost wbc production. He muttered about going home maybe Friday but daren't get my hopes up.
Got some sleep but hospital sleep never great they must have come in room 20 times for one thing or another! Tiredness = emotional so had few mini meltdowns in the night. Just worried about rest of chemo now and also missing Libby like crazy. DH has gone to work today to try and get through things to have another day off tomorrow. My mum has Libby so will fetch her up to see me later.
So all in all guess this a down bit of the rollercoaster...few days and will chugging bag up to a high bit!
