The operation

Jacks77

Glad second chemo went well, 6 hours is a long time, especially when you are just waiting around for half of it.

JammyR

Hope all runs smoothly today, rest over the weekend and be gentle with yourself.

Bigguy

Your white cells need a kick up the backside  sent you a friend request then I can private message you.  I have been taking a supplement but will tell you in private message.

Mrsox

Glad your managing the side effects of chemo, keep up the good work a and carry on posting you do cheer me up.

Leolady

Hope your well and enjoying your family time.

JollyG

Wow you are doing so well with RT. Have fun with the retail therapy.

Deb09

Glad you are managing the side effects. And getting out with hubby, sounds good to me.

Hope everyone who I did not mention is well and fighting hard.

Stay strong 

Aliblue- thanks I'm following your lead as we have similar diagnosis, it's tough but we are all strong ladies and will get through this pile of poop together! X

JammyR - you will be there now as Ali says take things easy afterwards x

JollyG - nearly there on the rt front it's gotta feel good x

Jacks - hope you are ok, I'm feeling a bit sicky today the normal chemo poop

Bigguy- hope those white cells are reproducing well, I am like you eating soup and bread but trying to have chicken and veg and potatoes in the evening to boost those cells dont' know if it helps though x

Leolady- hope you are well and looking forward to the rugby perving session on Saturday as am I but the result has to be Eng-er-land all the way!

Jbee - hope all is ok with you too!

Mavi - haven' t heard from you in a while hope you are ok must be nearing your 2nd chemo soon x

Anyway time for the injection with the sadist hubby big hugs to you all xx Deb xx

Good to hear you are not too bad after round 2 Deb09 . I am just at that point where I feel nearly back to normal. However my hair has started to depart in hand fulls. Luckily it's just thinning all over,  might have to have a trim to make it look thicker before round 2 next week.

Interesting to read how different trusts give different amounts towards wigs. My trust in Cumbria only give you a voucher if you don't have the cold cap. Not sure what happens if the cold cap fails !!!

I am thinking about all you other lovely ladies at different stages , too many to name but I follow your progress x

I too will be watching the ruby , something about big muscled men sliding around  in mud .England for sure.

Have a lovely weekend all,

Big hugs

Jan x

Deb Jammy LL with us cheering them on they will win

And I do take exception to perving = I mean really I am just interested in the body balance and poise of a good rugby player. I think I may need to start a thread on here Anatomy and Physiology and Letching!

Oh lovely ladies I feel for each and every one of you. I think a big gentle group hug will be needed. I am in such a good place at the moment which feels good and wrong all tied up with a bow. Next week’s onco appt. Will no doubt change some of that.

Now last night we stayed in a hotel. On booking in they found no evidence of our booking. Mr Leo had phone to prove paid and reservation. BIG BIG sorry from manager and so we got THE BRIDAL/HONEYMOON SUITE. I’ll post pics.

Mr Leo popped down to the bar to meet daughter and her future in laws. He ordered his drink and asked for it to be charged to the room. He was asked which room. Told them. Then got several CONGRATS  from others at the bar!!!!! Hilarious. He did explain.

‘Swing low sweet chariot coming for to carry me home.’ Quick practise. Yup in fine rugby raucous voice.

Take care and be gentle with yourself

Leolady

oooh truly deserved Leo, after all Ian's put you through!

Well the mysterious parcel from yesterday that needed signed for is indeed my notes...i only asked for the path report, but got sent the whole kit and kaboodle. Plenty of reading for me to do tonight then. Right off to change then over to the city to have lunch, browse a couple of shops if time permits and go and get dose 7, just under half way already. Doesn't time fly when you're having fun.

Jbee66 - sounds like you are having exactly the same effects from the chemo and cold cap the same as me! I had no hair loss until day 19 then it was a few brush fills of single hairs which looked quite a lot when I brushed it but I still have full head of hair but it feels a bit thinner in my ponytail, like you I'm going to have a bit cut off the length to try thicken it up too! After the 2nd cold cap hair is still the same but will probably shed a bit more close to chemo no.3, my wig is on hold until 14th Feb but they can reorder it again so I'm going to do that and save my £250 and see if the hair hangs on! Oh you are joining our rugby perve sesh too eh, ooh I mean the tactical manoeuvres of the strong rugby players teehee! :-) big hugs to you Jan xx Debxx

Hellllooo

Thanks for your good wishes. Jacks that sounds promising that you had no nausea yest...long may it continue.

Nice to see you are in upbeat mood Leolady and it really isnt worth giving appointments any thought until the day they happen as nothing will change outcome.

So chemo number 1 is done! Arrived for 10am appt and was home at 2 including the additional 2 hours for cold cap. Living 4 min drive from hosp does help! Jackie they gave me the anti-sickness tablet 1 hr before too (but i had it in chair whilst she was sorting cold cap etc so wasnt too much of a prob). She said they have literally just started using it in last couple of weeks and getting good results. Felt fine during the chemo bit. Cold cap was er......bloody cold...but bearable after first 10 mins. Last half hr or so was getting fed up with it more due to tightness and me getting tired but nurse expertly distracted me sorting drugs for home etc. So laid on bed now bit spaced out and ever so slightly nauseous...going to gave one of the tablets in a mo and try and have a nap. Plenty of time for side effects to creep in but least for now am ok and feel better that can start counting cycle days. If nothing goes wrong no appts unti onco  on 28th, bloods 1st March and chemo 2nd March. Fingers crossed.

Thank you ladies for your continued support couldnt do this without you all.

xxx 

JammyR 

Take care. Be gentle with yourself.

Fondest hugs

Leolady

Thank you Leo. 

Well its the weekend so no appointments for any of us and most excitingly we have Valentines to look forward to next week!! Surely our OHs will pull something special out of the bag for us this year?! Actually we don't bother with it since we had Libby. Apart from last year when my husband had a meeting with an important posh client who nipped into M&S to get his Mrs a huge bunch of flowers. My DH thought he had better look decent and get me some too. Of course he came in and told me why he had got them which spoiled it hugely!!!

So feeling ok still although too early to count any chickens am well aware side effects are ready to pounce at any moment. Slept from 10-7 although just realised I only took one steriod and it says take 2 each time hopefully no harm done have had proper dose this morning. Feeling about 90% normal. Dont know whether to take anti sickness if dont feel sick, instinct says yes but packets said if needed. CT ladies any advice?

Libby having day out with parents so lots of time to rest today. DH is in attentive mode, well until rugby comes on!

Hope you are all ok x

Good morning ladies. 

 I didn’t eat anything but toasted bagels and the odd bowl of porridge for 7 days past 1st cycle then the munchies really set in and I couldn’t stop. Sweet stuff, normally my fave, went out the window and it was full on savoury. I have bought a boss to go blender and have been having a smoothie every day, I get my veg and fruit I. One go and have bought anti oxidant supplements to throw in after doing some research. PM me if you would like the list. 

Im seeing the onco before my third cycle because of the problems last time so will get the Emend prior so as to prevent the hour wait at the hospital. I really hope you get those white cells up it must be so frustrating. 

 Yes it was too long with travel etc so hopefully I can cut an hour off next cycle by having the meds beforehand. I hope you’re feeling better. 

Deb09 The nausea is better this time, well so far. Had a bit of a sticky time last night because I had some dinner, which I didn’t manage last time, think it was a mistake. I got halfway through and felt really ill. I have been taking my Emend in the morning an hour before breakfast and that’s been fine. The cyclizine that’s now been given along with the O one may be what’s actually helping too. 

 What a beautiful room, for a lovely lady  Hope you enjoyed your evening and slept well. 

 Pleased to see you’re getting through your rads with a bit of retail therapy thrown in. Did you have to pay for your notes? I’m going through a case with the NMC at present regarding my initial diagnosis. The case was looked at and has now been referred by their legal team to the fitness to practice one. I may just request my notes from my surgery from the point I went in to her in June and my hospital notes at the end of my main treatment. 

JammyR Really really hope you’re feeling ok today. Been thinking about you so much, God willing you have the mildest of side effects. Take it easy and rest, do not think you have to be Super Woman just listen to your body and take it easy. 

So last night when I had my shower I had a BIG melt down because what was left of my hair was there in the shower tray. Don’t know why it had that effect on me as I ddnt have too much  left. I called my OH and he came up and got me out of the shower and wrapped me in a warm towel and cuddled me. Oh my I sobbed ladies, a different kind of crying, one that truly came from my heart and he cried with me.  I felt stripped of everything and raw to the bones, no. hair doesn’t define me but it sure had an emotional impact on me then and when I eventually looked in the mirror. We sat together on the bed chatting and he told me he loved me just the way I am now and that my eyes looked beautiful and then played me Joe Cocker’ unplugged version of ‘you’re beautiful’, the tears were of a different kind. 

I hope you don’t mind me sharing that with you all, I am rarely able to do so but it was just such a touching and emotional part of my journey and writing to you about it now has given me gentle silent tears on my face.

Well last night I had 6 and a half hours sleep, just amazing, got up twice for the loo but straight back to sleep and that’s with the steroids. Nausea still at bay but I’m going to be a bit more careful with food today just incase. Tiredness seems to be more of an issue this time but I’d prefer that to the rest of it that’s for sure. 

I hope I haven’t gone on too long ladies.

Sorry if I’ve missed anyone, sending you all lots of love and hugs and hope you all have a good weekend. Xxxxxxx