So in  5 days time I have the operation to remove the tumour - randomly known as Ian.
Hi Deb09
Great to hear your doing good with the chemo. I had my first cycle of fec today went in for 09.30 finished by 13.30. The cold cap was not as bad as I thought and when I got used to it couldn't feel the cold. The nurse did say if your hair thins it will be colder. I will have to wait and see what the hair decides to do. I'm trying to think positive and hopefully it might help.
Do you use a silk pillow case I have one ready but still in the bag so far.
I'm trying too stick with cannulation to avoid a Picc line mainly because I'm a radiographer and I would have to into work and be the patient.
Keep up being busy and before you know chemo 2 will be in the bag.
Jan x
Thanks Jo, well if it is chemo so far it really has been ok so don' t stress about it and I'm hopeful with the hair that's good that you know people that the cold cap has worked for, it would be one major stress not to have to contend with, il keep you posted! Xx
feeling the same way. Somehow found this weird norm too and I keep thinking when is it all going to go pear shaped. And await the proverbial to hit the fan. Well that will be Monday. More than survived rocked it. Managed a day out in Marlow with no knicker debacle.
Toxo not sure which on the list mad me giggle more. Can I bill you for the Tenas. NOOOO Sick at the airport as I am heading there next week
Cleaning is a dirty word. Wash your mouth out or my bathroom or kitchen or ?????. I went for haircut and no one on this blessed site has noticed. YOU are all worse than my hubby
Jbee and Deb well done lovely ladies. And for the record I am ****** it. If they tell me CT is my next option I so want to have a dose of your strength.
So ........... walk and a haircut. Living the vida luca. Oh and woo hoo I cooked supper
Take care
Leolady
Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x
Jan, my first evening after the chemo I was a bit nauseous but after that I have been ok so far and not nearly as bad as I thought so fingers crossed it will continue for us both! I have swapped to a silk pillowcase as it does seem to let my head move without any tension on my hair and I've loosely tied it up having only washed it once since the chemo which is a bit of a downside to this saving hair lark but it if helps then I'm sticking with it for now! They haven't offered me a picc line as last time it went ok once they had warmed my arm with heat pads so hopefully it will go ok again next time! Hope you're managing the injections ok, I've had the hubby doing mine for me which I think he sadistically enjoys a bit too much haha! One tip is advise is if you start to feel sick, take the emergency sickness tablet straight away and for me within the hour it took it away! Keep in touch with how its' going and we are both now one hurdle down so we can do this, big hugs Deb x
Ladies
On another thread Tox reminded me of this Cold play song. (Uplifting things thread)
https://www.youtube.com/watch?v=k4V3Mo61fJM
May your gods be with you
LL
Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x
Think we need to add sadistic hubby to the bingo list. Can we speak to Jolly please
My other half has had a lot of ops - think it is 22 with hips and heart - I've replaced / renewed so many dressing. He is gutted as he has yet to reciprocate. So we both get a square crossed off
Take care
Leolday
Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x
Leolady- you would gallop through chemo I've no doubt about it but don't you worry about it lovely lady as I dont' think you have that path to follow but you do have a fabulous break away which I hope you have lovely time and hopefully you can update us on your escapades on your return! Xx
Hi ladies.Â
Well tonight I’m the bringer of good good tidings........results of nuclear bone scan are CLEAR, no nasties lurking anywhere. The scan included a mini CT and my surgeon said my lungs are CLEAR too. I am euphoric as with the rib problem and bruising, I thought I may not get such a positive outcome.Â
Nausea still a problem but subsiding, 7 days, thought it would only be for a couple. Tummy cleared up and best of all I’m eating again. Well I say eating, more like having the munchies after smoking something funny. I actually couldn’t stop today, breakfast, snacks, big evening meal, ice cream, pretzels, the list goes on lol.Â
The itch mob are all over my head, if I didn’t know better I would think I’ve got nits. This nasty hair cut is on its way out already and I can’t wait.Â
Small grumble, as I’m on day 7 (zero white cells) my appt was as they opened at 8.45 as BCN didn’t want me in a waiting room today. Now can you guess what happened????? Give you a clue.........notes, appointment, consultant, waiting time.Â
Yes well they didn’t have me down for an appointment on their system, so they didn’t have my notes and then couldn’t find them. Consultants name wasn’t on the board receptionist looked confused, sit down I will check.Â
45 minutes later I ask again about consultant, her response was that she didn’t think he was in until the afternoon. I’m guessing at this stage she may have left me there until 2.00 when he was due to arrive without saying anything and hoped I wouldn’t notice lol.Â
By now empty waiting room is full, a woman hacking without her hand in front of her mouth, watched 7 staff come in and walk straight past the hand gel.Â
Yes I’m moaning on such a joyous day but seriously this a cancer clinic where hygiene, organisation etc should be paramount.Â
Ok so the consultant was actually due in and they eventually found my notes and I got the result I so needed. A happy ending but can you find something for the bingo card for me please.Â
Hope you all have a good Friday ladies xxxxxx
Jacks77 - fantastic news and lovely to hear positive vibes what a relief for you, onwards and upwards! Even though your appt with the consultant was a bit of a farce waiting around it all came good in the end and I'm sure theres ' a place on the bingo card for the incompetence factor lol! I have started with the itchies in the scalp as you say it is like having a dose of school nits I'm day 10 post 1st chemo and nervous about the hair whether it will stay or go from wearing the cold cap! Anyway have a lovely bc stress free weekend, big hugs Deb x
And that is a great bog WOOOOO HOOOOOOO from the S East. Well hopefully as the news was good you could giggle about the debacle of appt. Not at the time I guess
Just off for hubby to get another jab - Arthur Rightus - in the other hand. But as we were chatting away I mentioned that I would once again be taking part in the RSPB Great Bird Watch.
Mr Leo's response 'All you blue tits need to stick together.'
Hope that gave you a giggly start to a misty and murky Friday
Take care
Leolady
Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x
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