So in  5 days time I have the operation to remove the tumour - randomly known as Ian.
Jacks77 - Hi there lovely, just to reiterate we are here for you! I havent been on for a while as ive just come back from a family holiday but so glad to be able to send you good luck for Thursday but im sure you will be ok, its flipping crappity crap though all the worrying, lets just hope that after Thursday you will have your mind put at rest and a course of treatment sorted to fix the pain you've been having!
JollyG - Hoping all goes smooth and according to plan on Monday, will be thinking of you and send you big hugs, its proper shitty thst you have another op to go through but it will get rid of the bleeding reocurring Lenny once and for all so the final hurdle and you can relax, you can do this xxx
Aspen - Fab news for you i see, thats wonderful xx
JammyR - I also struggle with the dreaded Letrozole, it really does cause the muscles to ache and stiffen especially if getting up from sitting i am a woman of 90 years so think we are all in the same pensioner state on the achey front but as Jacks77 says i think we sort of get used to feeling like a 90 year old bird!
Hope everyone else is ok, nothing to report from my end, still waiting to get my hair back to normal and struggling with the Letrozole but on the whole trying to move forward, love to you all Deb xxx
Just nipping on to say hello - I can't offer any hugs as I have a sore throat that is now turning into a cold, so I'm not passing any germs around.
Leolady56, I hope your doctors appointment goes well for you, thankyou for the update on Mrsox, I have messaged and am due to phone.
, I hope you are okay. I love the picture of the Doc. As soon as I seen this I thought of Mrsox.
Deb09, it is good to hear from you, I think many of us have this struggle with letrozole, however, I do think 'is it the tablet' or is it 'this is how are bodies are with the oestrogen been taken out' (faster than nature intended).
jacks77, hello lovely, sorry you are going through all of this. I hope your results will be okay. Over the last couple of weeks my arm is getting stiffer especially if I need to raise it over my head, say to do my hair, I have to either move it very slowly and painfully up or sort of 'pull it up'. I have wondered is this a 'delayed reaction from radiotherapy' or that I have not used it as much as I should (I can't see what I have done different to be honest, so don't think its this).
I know we all say 'try not to worry' and it is in our nature to worry, but, if you can 'put it out of your mind till you go for your appointment, it is what it is, so worrying won't help - it will just ware you out and cause you upset, upset that you don't need.
Owww can you imagine all us on the letrozole all sitting on a comfy settee for a few hours than watching us all get up and hobble around - what a sight we would look. My hubby thinks I am putting on my walk when I go into the kitchen, he laughs and i have to say 'I'm not joking, this is me, this is how I have to walk till I get going... arrrrghhh.
Well, me and this cold are off to bed. Sending love to all xxxxx
Well i'm alive and back home. Just feel like a well tenderised piece of meat, but sure that will pass soon.
Bit nippier than 4 weeks ago, but guess that's due to then taking more of my pectoral muscle again for the margin.
jacks77 hoping you are doing ok too how did it go on thursday??
Glad to see you are back safe and sound. Please let this be the last time for you and that you can recover fully and get on with life.
My results aren’t until this Thursday, not long now. Xxxx
Hi ladies.
How are you? I hope the healing process has started and you are comfortable and taking it easy!!
Good news for me, my PET scan was cancer free, so so relieved.
Some RT damage to my chest wall and degeneration in the shoulder on the surgery side. Confirmed Lymphoedema so I’ve been referred to a clinic to get that sorted at last. Hopefully it may relive the pain I’ve been in for so long.
It’s been a long haul to get to this point with so many cock ups along the way, umpteen hospital visits and scans with me asking on 3 separate occasions if it could be Lymphoedema and the same response every time...no!!
I treated myself to more than one G&T tonight and oh boy it felt good!!
Hope all is good with everyone Jackie xx
Wowww jacks77, I have been thinking of you today and wondering how you have got on..... well, I have just read your post "yahhhy this is wonderful news, you have gone through so much over this time, I am so, so pleased for you. With regards to the lymphedema... I think with the wonderful people on this group we learn so much, to the point where in some ways we even know more than the nurses we see - we look into everything deeper, we have a fantastic group of ladies and gents on here that know so much - that we learn so much, however, at the same time, we are in such a vulnerable place, we are so vulnerable and we want to be able to trust the people treating us.
I am so pleased for you, I bet that Gin & Tonic was one of the best you have had
Sending love to Flossie25, and hoping all is well with
Right, me and the tail end of this cold are off to bed.
Sending love and hugs to everyone xxxx
WhatHappened You're up late!!
I thought I might sleep tonight but no such luck, I was dozing earlier and then bang I’m back here wide awake. I agree we get so much good information on here and particularly in my early days I found out things no doctor or nurse could or would tell me.
Yes those G&T’s hit the spot and I thoroughly enjoyed it.
I’ve got a dear friend I met on here who knows plenty about Lymphoedema and has given me lots of advice and info.
I hope everything is going well for you and thank you for your lovely words.
Sending hugs to all of you lovely ladies.
Jackie xx
Lacomtekp Hi Karen
Yes it is a lengthy process and laying there for an hour on your own before the scan is really boring. It does give you peace of mind so it’s worth it.
I stopped at 3 G&T’s, I’m not used to it or maybe it was because they were home measures
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