Well I suppose the good thing is the DX didn't come back flashing high risk so that in itself nodes well in terms of chances of recurrence. Sorry you weren't in a position to make an immediate decision but I think we would all do the same in your situation. Whilst I think we all accept that chemo may well need to part of our treatment I certainly wouldn't rush into it as beyond the obvious (it not being nice) there are other longer term risks associated with chemo....so it's a pros and cons situation. So yes a pain to have to wait again now but absolutely the right thing to do. Hope you can find a little box in your head to place the whole chemo question in until after 26th and can relax heading into Xmas.
Mr Sox....agree it is a very confusing thing and I'm nowhere near to understanding what all the ER, HER stuff really means and what all the options are. So for you to have it twice with different pathology both times can only imagine will make it even more confusing.
Shellian- thanks for advice re Macmillan helpline. I imagine I'll be calling them after my results tomorrow!
Jolly - hope you get that call today if not ring/email them again until they speak to You!
Ali - hope you got a good sleep after chemo .
Leo - enjoy your lurgy and Ian free day. Hope you can have some nice days feeling well leading up to your procedure next week.
We had rough night DH has cold, work stress and is extremely worried about tomorrow. So it was my turn to be strong and take care of him when he couldn't sleep. Naturally by the time he was feeling brighter my nervous thoughts crept in and I woke up feeling worried. But fine now up and about and heading to Xmas play at school. Just takes a deep breath to get going some days.
Maggies is a cancer charity they are online but also have centres with lots of activities information etc. Im unlucky theres none near me. If you google maggies it tells you all about what they do. Xx
Jammy I absolutely had no idea what to do, in a small room with results that were 50/50 and a do you want to have it or not question.Â
Hence I opted to pay for the extra test and even then can still make my own decision. I have filled in chemo paperwork ready to start it first week of Jan if I decide to go ahead.Â
Waiting really isn’t bothering me, genuinely it is giving me much needed breathing space and time to enjoy my family over Christmas.Â
The results are almost irrelevant in a way, if it’s low then bingo the decision is made for me, cowardly maybe but it would be easier. If it’s high yes I’d have the same dilemma but with a slightly different edge and hopefully I can make my decision being more informed as such.Â
I will be thinking about you tomorrow, your results are far more important than me worrying about shall or shan’t I have chemo.Â
It’s a sunny day here in Kent, after yesterday’s awful weather it’s pleasant to see some brightness out there.Â
I had the top up done on my eyebrows today ladies, ooooh bit more painful than the first time but I love them. Just one less thing to worry about going forward and no more purchasing of eyebrow pencils lol.Â
Hope you’re all having a good day oh and mrsox hope you’re not too knackered after our early morning partying on here :-DÂ
Sounds like a really good approach Jackie the breather will do you good and as you say you aren't losing time as you as set to go with the chemo in Jan if (big if) you decide to go for it once you have the next results. If it comes back low then fab but you've got all bases covered.
Wishing I could fast forward 24 hours to know what they'll say to me tomorrow. My big fear is if need lymph node operation the nurse said to me that they do it asap and do operate right up to Xmas. Really don't fancy another op next week having had one just 2 weeks ago. Hopefully nodes will be clear then it will take us straight to the chemo/no chemo discussions. What will be will be though and had really lovely day at school performance and doing christmassy things. To be fair since finding lump on 13 Oct most days have been pretty normal days and I've not suffered any pain/ feeling unwell so feel quite lucky (if that's the right word, guess getting BC to start with is bloody unlucky!) in that respect. If can get up to Xmas the same I'll be happy.
Hope everyone feeling ok today. Better get shoes on and do school run xx
I have read through posts, jacks I'd be the same wanting to make a proper informed decision so don't blame you wanting to take time to make the right choice for you.
Just a quick post as tired and brain mush, brain mush thanks to work, and tiredness thanks to es who set the smoke alram off at 5.30am making toast!
Have got in from work, phoned BCN who said nothing to tell me as it was 'still with the consultant' and she wouldn't be seeing him til monday when hes back in, except hes busy mondays as its operation day, but call back late monday and she may or may not have anything to tell me.
So do i assume that they are still discussing my case as its not as 'normal' as some and they perhaps do not know what route to take yet, or there is nothing more to be done, hence why nothing to say, (be nice to know that though) or something else entirely like Lenny made a dash for it from the path lab to escape further prodding and is now roaming the countryside looking for where else he could cause havoc, hiding in ditches and under hedges, which tbh is far too good a lifestyle for him, which might explain why 4 weeks post op I'm still none the wiser to much.
It must be very difficult for you waiting & waiting like this. It’s hard enough waiting for results when you know when they’re going to be in but just waiting blind must be double hard. At least you know it’s going to be at least next week when you hear something now; not that that makes it better to cope :-(
Jacks wow what a decision to have to make, think you have made the right one to get another test and take time to think. Â There are alternative therapys to try, some not at present legal in UK but something to research, where there is a will there is a way. Â
Bigguy hope your visit from the in-laws was not too unbearable.
Jolly' can't believe your still waiting for your results, it' not right.
Well I did not sleep well last night but was told by chemo nurse yesterday that would be because of the steroids they gave me st 3pm. So the steroids I need to take for the next few days I will take 8am.
I have taken the anti sickness tabs and have not been or felt sick all day, been a bit light headed and what felt like the beginning of a headache but did not turn into one. Â So all in all a bloody good day for me today
Ali Yes that's really good news had been wondering how you were doing today. Hope you continue to feel well the whole cycle, certainly bodes well that the anti sickness tablets work.
Jolly - well.I suppose it's progress that you've had a call from them even if they couldn't tell you anything. Appreciate yours isn't a common case but doesn't make it any different for you needing to know!
Hope everyone has a had a productive day. Early night for me I think will let you know what happens tomorrow. Be glad to get the reading off after 16 days it's looking pretty shabby and ready to see what boob looks like underneath it...as is Libby who seems to like medical stuff!!
