Ah, Deb09 you've discovered the great 'overlarge mouth' side effect - it helps when you need to cram all those extra drugs in!
Looking good in the cold cap though ...
5 cannulation attempts - impressive! You'll be black and blue. I'm glad I've gone for the central line option as I it often appears that I have no veins - I AM one of the undead...
Funny enough my breast care nurse called today with my brain MRI appointment, 19th April is the fastest they can get me in, but have my numbers to call if they get a cancellation .
SE of T kicked in right away, think because I had not got over the last lot properly. Took codeine and paracetamol before bed along with sleeping tablet and had a great night. Feel ok today so all good here.
Feeling a bit more relaxed about all this brain scan thing, just have to accept that if there is something then it's a good job I have a good eye doctor as Oncology told me I did not need any scans.
Just the wait now but hey we should be used to it by now.
Got GP this afternoon for meds review, and going to ask about R1 n R2 cream let's hope she is more accepting than my oncologist was.
I'm 8 steroids in ready for my first T tomorrow ... anxious as I feel like I'm starting all over again with SE and not knowing what to expect. I have to stay positive and I always tell myself that this blinking CT is doing me good. What would happen if I wasn't having it.. not a question I'd like to answer.Â
Anyway.... anaemia .... my level of haemoglobin dropped 2 weeks ago to 99 or 9.9 it depends on how they measure it. My Onco told me that they consider a blood transfusion if it drops below 100 so they would give me a few days and test the level again. A blood transfusion is something I didn't really want although after having one you are supposed to feel fantastic! !!!
So, I ate liver, spinach, kale and any other green veg and also lots of steak. Within 7 days my level had increased to 110 or 11.0... I honestly couldn't believe it, so I've carried on. I'm absolutely fed up to the back teeth with it but tough luck, I'm sticking with it just in case it really is doing me good.Â
Also, I have found prune juice good for constipation. Only a small glass full, as you end up going through the eye of a needle!!! If you know what I mean, but the day after everything was back to normal for me.
I'm only suggesting things that can make our journey easier. Â
Lets hope the SE stay at bay and are minimal this time, a good nights sleep certainly helps. Another week to wait for your scan is a blow and as always with this blasted BC it is just a regular but inconvenient occurrence. Been thinking about you lots and yes the fact you’re getting a scan you were told you didn’t need can only be a good thing, if you know what I mean. Sorry that sounds bad but I’m sure you understand what I’m trying to say.
Its amazing having this thread and the ladies on here, it’s kept me going for the past few months thats for sure.
So regarding the haemoglobin, I’ve just phoned the surgery back and it is 95.01 I guess that’s why the GP has said iron tablets. I think I will try your suggestions before taking them, I just don’t want the constipation back. I love prunes so getting some prune juice will suit me fine, it’s better than bloody Movicol. Thanks for the advice xxxx
Janeydoll - Wishing you all the best for tomorrow, try not to worry too much over the se as you know we are all different and our bodies handle things in different ways! I found the EC relatively ok compared to some ladies but my body doesn't seem to tolerate this so well! I suffered for a few days with the muscle and bone pain but with plenty of rest, wheat bags and hot water bottles and regular pain meds i came through it! This time having realised that the muscle pain is an issue for me they have given me morphine as too many painkillers made me sick! If you can get them tomorrow at the hospital to prescribe you as much meds as possible then you can be prepared just in case! I think oral thrush on the Docetaxel is very common so Nystatin drops are good along with Difflam mouthwash! Also omprazole for indigestion as is also a common side effect are good to combat the acid reflux you may get along with a strong constipation drug! They gave me all of these for my first lot of Docetaxel and it's good to have to hand! Jyst to re-iterate you may get a few side effects but equally you may have none of them and sail through so just take it as it comes lovely! We are here for you and if I can help just ask but if I send some garbled message in the next few days it may be because I'm away with the fairies on the morphine lol! Big hugs Deb
Aliblue - That's fab I'm so glad the se have been ok for your last dose, you definately deserve it lovely as you have had a rough time of late! I'm glad you are sorted for your scan and although you still have to wait a bit longer which we all know the waiting part is pants you can get sorted and hopefully its' nothing to be concerned about! It's weird how different trusts work as I had ct and mri after I was first diagnosed but I know they all operate differently! I'e had a rough time today after 5 goes at the cannula my hand is crushed and the cold cap was on for 4hrs due to the delay with the cannula but all done now so off to bed for an afternoon nap as I'm totally pooped! Big hugs Alison xxx Deb xxx
Jacks77 - Im ' not getting any notifications either! Glad you are feeling better lovely lady and you have been socialising with a friend it s the best feel good tonic around! just remember no more chemo means no more se for you woopy woop! Hope the anameia can get sorted now and you will be well on the road to recovery! Its' been a rough old day for me so I'm off to bed to lick my wounds, well my battered cannla bruised swollen hand lol Big hugs and lots a love Deb xx
Explains why i thought it had been quiet for a day or two.
Nothing much to report here, see the onc for post RT appoint in a couple of weeks. Still got a cold of some sorts, as soon as one goes another one appears. The joys of a battered immune system. Attempted hockey again last night was going well until i fell over YS who accidently tried tripping me up and popped my already dodgy knee. Typical the BC roundabout was slowing down a bit finally and everything else is trying to stop me in my tracks, shouldn't really complain i guess, could be worse, could have had to do the chemo rollercoaster and the plethora of SE all you lovely gals have been struck with.
JammyR how nice of your BCN to leave a lovely message. Grrr. Some people just do not think.
and Jacmatholmad enjoy your galloping, would love to join in but current lameness will see me at the knackers yard first i reckon, no grand nationalling for me any time soon. Lol
Sorry forgotten name already and i only read it a coup,e of mins ago, i hope the MX has gone well for you today. Hope you're home again soon with no pesky drain to get in the way. Be kind to yourself, and do the exercises!
Right off to look for my memory as that seems to have vanished recently, if anyone spots it please let me know
So a quick hour at hosp for bloods and onco appt turned into 3 stressful ones due to cock up NHS style.... onco appt had been cancelled and moved to tmrw appt without them telling me. Very good nurse turned it around and asked main onco man to see me. Turned out to be good job she did as right away onco said need steroids from tmrw morning and nobody had give me a prescription. Anyway sorted now... he did his best to play down T side effects but wasnt v forthcoming on the painkiller front just gave me few cocodamol to try if get bone pain. He did say hid preferred route of SE are very bad on cycle 4 is to switch to the other drug (the one you having Leo.. mind gone blank!) and have it weekly for 6 weeks.
hope all goes well tomorrow chemo twin... you are 1 day ahead of me. I have first T on Friday. Lets hope its not too bad for either of
Deb09 hope the morphine and extra SE medication help this cycle. I dont really understand why they dont stagger steroids as standard it does seem odd that we have shed loads for 3 days then nothing!
take care of yourself and hope the colds stop soon. .
jacks77 glad you are feeling much better, start of the upward turn for you I am sure. Get RT ou t of way and then a summer of lovely things for you.
Leo and Jac hope you enjoyed your walk ladies.
Ali and Bigguy hope SE stay manageable. Will be thinking of you on 19th Ali.
Right pop back on later ladies. After marathon morning at hospital went took Libby bowling this aft with her friend and now need to take her friend home before tea and her gym lesson. No time for SE today .
