AWAKE.........

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  • Evening all,

    Reading everything you have all been through,  the ups and the downs and I am trying to count my blessings. 

    Been a bit down and negative the last few days for no obvious reason and couldn't sleep last night.   Finally got about 5 hours so it could have been worse!

    I think it was waiting for a MRI results, took around 6 weeks and is basically inconclusive so will be repeated again in another 6 months.   I must have been subconsciously hoping for an all clear, nothing to worry about,  definitely not cancer.   No such luck. 

    Ok time to be positive 

    No serious side effects from the Letrozole and Ribociclib apart from constipation 

    Hair is regrowing nicely 

    6 monthly MRI means any issues will be picked up in good time.

    It's nearly a year since diagnosis 

    Lymphodema sleeves and MLD seem to be helping.

    I think I am starting to react to everything that has happened since October now there is more time between appointments and everything is less intense. 

    Hoping the sleepy fairy dust works it's magic tonight.

    Thank you for letting me unload, hugs to all.

  • Now it's my turn to off load.

    Are you sitting comfortably? Then I'll begin.

    The planning meetings happen on a Thursday and I couldn't wait for them to ring so I rang them.

    The results from the biopsy last week came back in time to be discussed today. The lump in the lymph node on the left side is not the same triple negative as the lump I found on the right side. It is however the hormone sensitive one I had in both breast previously. I had my suspicions this is what they would find.BC nurse says it couldn't possibly have been there six years ago but I'm not convinced.

    This I feel is a slightly better outcome to the alternative that it had travelled from my right to my left side.

    I've got to go for ANOTHER ultra sound and a Tomogram? Whatever that is and they will talk about me again next week and try to decide on treatment.

    The BC nurse said my progress had been rather tedious, I'm not sure that was the word I would have chosen. 

    I feel strangly relieved not sure why. Partly because I've explained everything to my Mum so I'm not hiding anything any more. Maybe because I've beaten this cancer at least once before.

    Sleep time now. Isobel my granddaughter is snuggling beside me. I always sleep better when she's here. 

    Night all.

    Three times! What did I do?

  • Heck! Bless you all, troubles and tribulations for  and  , times to chill and regroup? 

    Also for  and those wretched blood results, about time things worked for you, Sally!

    and also for  who has had a rough week too, hope you’re recovering steadily now at home and OH is looking after you well.

    Me? Still got that worry about daughter and she still hasn’t got a date for the excision biopsy, which will need a couple of weeks off her trombone afterwards to enable it to heal properly and now she’s not got enough time before her Elbow tour in the USA…. 

    And she’s on her way back here with Henry for a short while so I will get company on my morning walks (so glad we haven’t had him here while it’s been so very hot so often) 

    night night Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish 

    hugs xxx

    Moomy

  • Oh,  , tomography is a combination of types of scan often done with a mammogram too to build up a 3-D picture for the team, maybe that helps? I just used Dr Google!

    hugs xxx

    Moomy

  • Sending get well wishes to  Hope you are feeling much better now. 
     I remember you from six years ago when we were having treatment. Too bad things have returned and you have to face another set of treatment. You did it last time and you will do it again. Thinking of you. 
    Sending good wishes to all the Fruit Loops. 
    Jojodot X

  • Oww Fruit Loops I am sorry to read all this that everyone is goig throuh.  It really does seem like if its not one thing for one of us then its another. 

    I am so pleased you are back home  you sounded very poorly, I've only had what I though was vertigo a few years back, it didn't last long - the only thing I could try to do was sleep through it (you all know me and my sleep). .... it was horrible to say the least, goodness knows how you felt, I really don't want to even begin to imagine it - no thank you - I am so glad you are on the mend.

    Dearest  I bet you mind has been on overdrive, well done for phoning about the results, I don't think they realise how we wait and worry and worry and wait.  It sounds like you will know more once you have these other scans.  Thinking of you. ....  it was our sweet Sal that sent out the Lucky Pants Badges - together Lucky Pants and Sal arranged this - a very special keepsake Heart

    Hello  , I remember you - how are you, how is life treating you?
    I still here as the resident night owl - if only I was as knowledgeable. 

    Every night this week as been 'right, I am doin this, I am going to bed early!!" - then its like 'quick she wants to go to bed lets all create things to distract her' arrrghhh. 

     I'm pinching some sleep fairy dust, thank you, I am sure it will help me drift off that little bit quicker - even if I do fall asleep withing 5 minutes of closing my eyes (I thnk its quicker than this if I'm honest).

    It's lovely to see you back posting  we do miss you.  Not sure if you seen Silverbergs message to you asking if you sent her a 'badge in a bag' for Christmas Slight smile

    Well Fruit Loops its getting on towards 3:00am !! but first I am going to make myself the obligatory cup of tea Kissing smiling eyes

    Love you all - Night Night xxxx

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • Good Evening Everyone

    I've had a good day after a pretty good night's sleep,all things considered. Busy with my girls most of the day. This afternoon I went with a friend to an exercise class run by the local authority. It for people in treatment or recovering from cancer of any sort. It's quite gentle but there's no water to support my arthritic knees.

    Came home to a Sunday dinner really. The girls love a roast chicken and what goes with it and eat well. Naturally trained properly to prefer leg meat. Not much left for a curry tomorrow but enough.

    Off on Sunday to Thirsk and Fountains Abbey area. Back on Tuesday so I can go for this mammogram thing and ultra sound. So missing all my swimming this weekDisappointed.

    I hope everyone has a good weekend.

    Hugs to all

    Three times! What did I do?

  • Awww, I love Thirsk,  , really enjoyed my week there!

    night night Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish 

    hugs xxx

    Moomy

  • Night night Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish 

    hugs xxx

    Moomy

  • Good morning....

    Quite grey today but the rain in the last 48 hours has refilled my underground tank so I don't have to save household water anymore. That will be a big help. At times the full buckets were heavy!

    I am recovering from the vertigo but it has been slow this week. I'm lacking oomph....a bit like the after effects of flu.

    I have the neurologist rv this week but my blood test results look good....most were mid average range so perhaps he'll cut some of the pills. Weight gain is the worst side effect but I feel guilty complaining when so many of your drugs cause joint pain etc .....much worse. At least the neuropathy seems under control.....I'm so used to the problems it causes, they have become the norm but I am concerned that on other threads I read the taxoteres are still causing the symptoms and still oncologists are not preparing patients about what they should look out for and act upon. Permanent damage isn't fun.....

    Time to go. A treat for breakfast today. OH bought croissants. Unfortunately I can't start walking again yet. I don't have the strength..... it's uphill any direction from my house. It will just be a review of the garden!

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