AWAKE.........

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  • FormerMember
    FormerMember in reply to FormerMember

    OK...iI am back...had to get off bus...missed stop : )

    Hmmm various mentions of poo...in hospital the magic discharge ticket was earned via bowel movement...so we waited... and waited... I was given stuff to move it along...stuff to soften it up...stuff to clean me out...and we waited and waited... and when I eventually produced a smidge I made a flag (from a newspaper pic of a footballer who just scored and headline Success!) and ran around the corridors... yes really!

    What I hadn't been told...was that there nyay be a cumulative effect of all the stuff...and once home my bathroom is a lonnnnng way from my sofa... but I didn't get any warning anyway....

    Double edged sword being on your own... no one to witness the world having fallen out of your bottom...along with  a good proportion of the universe.... but also no one to help with the clean up...and I don't have a shower, so to keep wound dry, couple of inches of bath water when I really needed a cowshed hose!!! And...long after 'it' has gone... the smell....boy does that have staying power.

    Umm...has that took the sparkle off anyone's Christmas?  I can laugh now... just about... especially when someone mentions a bit of diarrhoea.... they have NO idea : )

    Good luck to all with appointments 

    Take care 

  • Oh Shimmer, that made me laugh out loud! My hubby asked what was funny. I shouldn't laugh but I just imagined how I'd feel if it was me and then I visualised it! I have had a few small accidents through chemo and thought that was bad, especially as one was in the car and I had a good 10 mins before I got home! I didn't have any real 'cleaning up' to do though, so I now count myself very lucky!! I hope you are okay now! I am still chuckling, sorry!!! Xxx

    Jo Jo x

    None of us wanted to be in this group, but we are glad we're not alone.

    Diagnosis 2/8/17 IDC Her2+, 22mm, with spread to several lymph nodes. TCHP chemo started 23/8/17, Mx with immediate, temp recon 24/1/18, rads 20/3 to 10/4/18, Herceptin by IV until Nov 18. RR Mx Jan 23. Still waiting for reconstruction, but opting for simple implants, as opposed to Diep, due to long waiting lists for diep.

  • No doubt as a shimmering unicorn

    You pooed glitter

    LL

    Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x

  • Evening all, I have noticed there has been quite a bit of talk about.....hmmmmm...poop in the last couple of days. Now strangely enough I wrote a Blog about this very issue just a few hours ago and I thought I would share it with you all. I think we are all understanding of each other now and I hope this might give you a giggle..........

    My blog was titled: THE SUNDAY DRIVER!

    WARNING.....THIS IS NOT A BLOG FOR ANYONE OF A DELICATE DISPOSITION! 

    DON'T SAY I DIDN'T WARN YOU!!!
    Today while chatting with the hospice nurse I had to mention my Bowels, just for a change! 
    So how to best describe the issues you have been having, so the nurse in question really understands what is happening with your body and what she might be able to offer to help!
    So The Sunday Driver! 
    There inside my bowel is that little Sunday driver, pootaling along at 25mph enjoying the views, it's a nice day and he's not in a hurry! 
    Then behind him is the young slip of a thing who is keen to overtake but can't slip past as its a narrow road and so he has to sit behind and wait and wait!
    The next day another driver joins the queue, she sits patiently waiting, hoping that at some point she will also be able to overtake or the Sunday Driver will put his foot down! 
    But NO, day 3 and 4 and another 2 drivers join the queue, now at this point the drivers behind the Sunday driver start to get cross, they beep their horns, they try to overtake! 
    I get stomach cramps and feel bloated! Not much fun at all! Then day 5 another driver joins and he's in a bus and makes it clear he ain't hanging around! He tries to push past and makes The Sunday Driver nervous, so the Sunday Driver decides to exit at the next junction......in doing so he is quickly followed by cars 2,3,4 and the Bus! They all hit the brick wall at full speed and splatter everywhere!
    Not pleasant and certainly not my idea of fun! Oh and guess what. This is where the next Sunday Driver takes his place and it starts all over again!!!! 
    Gone are the days where I was as regular as clockwork the day when I had a normal car driving at normal speed causing no pain and no crashes! 
    Really hoping the new tablets can speed up that Sunday driver.......but if not I will just have to laugh, because crying doesn't get me anywhere!
    Nothing like a good bowel story to help you realise that having Cancer really is SH*T........literally!! 
  • FormerMember
    FormerMember in reply to LondonLass

    Ny nite lovly ladies  x xxxxx

  • Hahaha that cat picture I!m creased to funny and your story not funny for you but a good story by far . I shouldn't laugh but made me chuckle as can relate to it . Hope your OK and sorry  your app didn't go to well . Night night ladies must try some sleep as early app in morning . xxxxFran

  • Sal - I can't say I was ever a Sunday driver during chemo. More like a grand prix - everyone off the start line as quickly as they could.

    Shellian - I'm sorry to hear you're still so down. Men are just hopeless aren't they. It will get better - either he'll improve or he'll prove himself to be a complete tool and you'll dump him. But don't worry about that now. Try to insulate yourself a bit if you can ie don't react, don't expect too much. Concentrate on yourself and getting better in body and mind. Great big hugs from me xxxx

    Lynn xx 

  • Hi Fran, just wanted to take this opportunity, while I'm wide awake.....again!!! To say Good Luck with your appointment today! I hope you get all the information you need.

    Now of course someone else wants to wish you well, my little Lucky Pants is here to say....

    As I have said before he can't guarantee a good result, but he guarantees to bring a smile to your face and he's a reminder that you are not alone as we are all thinking about you! XXXX

    Lucky Pants would also like to wish my friend Lisa all the best with her scan results today! Whatever happens Hun, I am here for you! You are an amazing lady who doesn't deserve any of this!  LP is with you every step of the way xxxx

    If anyone else is going for results or appointments today then obviously LP will be by your side! He's turned into our little mascot! Which is very cute, I think!

    Okay hime to try and sleep, although my throat feels like it's burning :-( this bloody cold I wish it would just P off!!!!!!  Xxxxx

  • FormerMember
    FormerMember in reply to Shellian

    Hi Shellian, 

    I feel I have to join in here, I haven't posted here before. My problem is bone marrow cancer and you're sadness is how I felt a week or so ago and I had great support from patients and staff and actually when I think about it in smile because there were 1 or 2 patients who didn't half gave me their all in a nagging sort of way . Nag, nag, nag and it helped me to get over the worst of it. 

    So Shellian, don't be downhearted, I'm sure he still loves you but is finding it hard to deal with. Has he had a read at any of the great MacMillan booklets? They may help. As for yourself, it's a lot to deal with and we're all in the same slowly sinking vessel and with help from other patients we'll be in a better shape mentally and you know what? The friendship bond with fellow patients becomes very strong i think.

    Take care Shellian.  Remember you've lots of friends and love here xx 

  • Hi hope 58 thankyou so much for you're reply.  He wont look at anything he says i know everything about it so he dosent need too. Thankyou for the kind words i really appreciate it.

    Peace and plenty. Xx