AWAKE.........

Well you know where you'll find me if you can't sleep!! Xxx

Wow LondonLass that must be so frustrating. There's only one thing to do ...

Time for the world's biggest tantrum. Unfortunately, I've learned that it's hard sometimes to get people to take notice unless you either shout or cry. Personally I prefer shouting as it's not so humiliating. 

I can't believe it could be that difficult to sort you out - they must come up against chronic pain every day. Is there a pain clinic you could get a referral to, even if it meant a trip to London? 

Think the getting angry will be next week if I don't hear back from my BCN! Watch this space! In the meantime I have to try and make the most of the next few days and try not to let the pain and flushes and sweats get to me........which is easier said than done!

Let's hope they can start communicating with each other next week and with me, or I'm going to get really Angry!

Xxxxxxxx

Good. It's the only way.

I really feel for you Londonlass. I find I can accept if people have made a genuine mistake but if I think they are being offhand or blaze (read that blaazey- I can't do an accent), I want to batter them with a big stick!

Definitely get your angry, insistent self out. How dare they! I want tyo say they are being unproductive but I'm not sure that is even a word...

Sending you a hug and empowering vibes. ((()))

Not unproductive, unproactive!

Thanks Lilythepig, I just wish I was under one person or maybe 2 who communicate with each other. BUT currently, I have a........

GP: who doesn't seem to trust her own judgement

BCN: who talks the talk, but doesn't necessarily walk the walk!

Hospice Nurse: Who was doing okay, but the. Went on holiday

Palliative Nurse: Who was fantastic, but seems to be only accessible through BCN!

Oncologist: Seems only interested in making sure the Cancer is stable! 

So these are the people I am relying on to 'help' me, to help me live as normal and 'happy' a life as I can! I don't think I'm asking for a miracle. I would just like to:

Work out what's causing the pain!

Find pain relief that works

Reduce hot flushes to a level that I can live with

Find something that helps me to sleep, just a bit better! 

Is this really expecting too much?? 

Thanks for all the support, I wish the health care professionals could see things from our point of view, but clearly at the moment that's not happening, well for me anyway xxxx

Had an okay day today. Was in pain, but managed to cope with it. Had a nice lunch out and then just chilled out. Tonight I am feeling tired, but  am still wide awake! I lay down in bed 1.5hrs ago, but I just wasn't ready to settle. I tossed and turned, kicked duvet off, pulled it back on, got sweaty, dried off.....but no sleeping :( Surely at some point my body will just give in?! 

Anyway I shall keep relaxing and hope that eventually I drop off......to sleep......not off the bed!!  As that would clearly wake me up!!!

Night night all, wishing everyone sweet dreams xxx

Sorry to hear you're not asleep yet but I guess that's almost normal lol. Have you thought about getting back up if you're not ready to settle? Do you have an armchair in your room, where you could sit and read? 

Hope I don't get to chat to you too much today. xxxxx

Oh PS I'm so glad you had a nice day.

Hi Lynn, how are you doing? Have you returned to Earth now? Not so zoned out or away with the fairies!

I have tried getting up and going back downstairs, I've watched tv, read a book, listened to the radio etc etc

Also tried lavender in my room and on my pillow. I've tried a Luke warm bath, I've tried relaxation techniques! But nothing seems to help. Even if I do manage to drop off, it's usually short lived as a night sweat is never far behind. 

But hopefully next week I will talk to someone and get this pain and the hot flushes sorted or at least try too. Then maybe just maybe my sleep will fall back into place! I can but hope  xxxxx