AWAKE.........

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  • Hi , sending huge hugs to help a little bit, you know your not being stupid, we like answers and it’s great that you want to be proactive. Here’s hoping the 23rd comes quickly for you and you can talk it through xx

    SantababyHeart️
  • Sending more hugs your way:) 

    Is there any way you could ask for a phone consultation before then? It's only a week. .. but that's a long time when anxious. Xxx

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Thanks  and  hugs all very much appreciated.

    I popped upstairs to try and find my previous letters to see if its always said that and I'm just being silly. But sadly no the last 2 letters my onco wrote 'scans show Stable Appearance'!!!

    So either it's a different secretary who felt they wanted to sound more intellectual OR there are changes, obviously small changes which is good, BUT still changes which will probably mean me puttinJoymy big girl pants on and starting another line of treatment....which in all fairness I should of been on 4years ago, so I suppose I can't moan!! Well I can, but then its 2020 and let's face it Shit Joyppens.....must be why there was a lack of loo rolls JoyRoflJoyRoflJoyRoflJoy see I can still find something to laugh about!! Xxx

  • Hi  I'm sorry it didn't say 'stable appearance ' but to me 'no significant changes' means just that. No change that is significant means a change that doesn't matter, maybe gone smaller. So i know this is what you need to ask and are planning for another treatment and that is a sensible thought. Everything still crossed here xx

    Helen
  • Thanks Helen, I like your thinking! I know it's not the end of the world. I just to be prepared for the fact that this might mean I need to go onto the hormone drugs and after having such a nightmare on Tamoxifen and it not really working for me,  I'm DREADING starting on another drug!! 

    Yes its official My name is Sal and I am a wuss!!!! Flushed

  • Hey, Sal, 

    you’re not a wuss, and honestly, Letrozole isn’t dreadful, I’ve coped for over 2 years.....

    Hugs xxx

    Moomy

  • Former Member
    Former Member in reply to moomy

    Good evening all ....I have managed to log on and read the posts after a few days of my I pad playing up......there are so many posts I can’t begin to concentrate enough to reply individually. Pleased you are starting to improve londonmumofone . Sal , you are catching “ overthinking “ from me , well, I hope that is what it is .....

    I am interested in all your news , sorry I can’t keep up , I am hopeless , best wishes to all ! Me x

  • Hi  think most Onco and surgeons are guilty off dehumanising when dictating letters . It will be so much better when you face to face with questions .Remember me saying surgeon in his annual mammogram letter said no sign of cancer in remaining breast which he saw as a positive thing ! Really what was he expecting said my brain .lol 

    So stop overthinking you would talk everybody else out of it .Start planning your Christmas .....the one in summer when we hopefully free 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • Former Member
    Former Member in reply to Northerner

    Hello Sal,

    sorry to hear your results are causing you worry.  Annoying the wording is not clear.  Can you phone up, as someone else has suggested?  Or you have to put the worries in a box, close the lid, and don’t open it until the 23rd when you can talk it through with oncologist.  I think LP needs to stay at home with you for a few days to help you through, though it was nice of him to pop in to see me this afternoon l He was a bit late after going to the mammogram this morning in a different hospital, and calling in at Costa for hazelnut chocolate with double cream, but he was quite tired when he got there, so generally quite well behaved, apart from pinching one of the caramel matchmakers another patient had brought in for the nurses. And I think he might have also eaten my gluten free Brie and cranberry sandwich because strangely it wasn’t in the fridge when they went to get it out.  So he definitely won’t need supper when he gets home.

    Big hugs Sal,

    Judith

  • Hi Sal,

    I do suspect it’s ‘Consultant-speak’ for want of trying to say ‘stable’ he wanted to ‘flower it up’ 

    hugs xxx

    Moomy